I would rather not have Narcolepsy. I would rather it be a sleep quality issue that is more nebulous. I really would. I know you both don't believe me, but I know I have it. I have known sine I was 18 that something was different about me. I now have two doctors who believe I have it, before it was just one. My family also has a history of hypnagogic hallucinations, which is a dead ringer for it.Pugsy wrote: ↑Thu Aug 11, 2022 6:14 amIMHO Part of your brain actually wants to have narcolepsy because there is a pill for that problem.
You want the fatigue issues you are having to be fixed by a pill and the cold hard fact of life is that your train wreck sleep quality may not be from narcolepsy and it's going to be much, much harder to figure it out and fix it.
I am going to be out of touch for about a week starting tomorrow afternoon. Going to Las Vegas to visit my daughter and grandson. So my time here is going to be limited to approving new account posts and not approving spam posts.
I don't do a lot of replies on the iPad I will be taking. Typing on it is a PITA.
You are in good hands with Rubicon though.
I appreciate you both talking to me about this. And I know you have my best interest in mind. I really appreciate it. But I won't try to keep convincing any of you about this. I will leave it to the doctors. I believe them. I am excited about getting treatment for a condition I have had since I was 18. If you don't believe me, that is fine.
Furthermore my fatigue issues would not be magically fixed by a pill. They would be fixed by an extremely controlled substance. GHB. I would be taking GHB for the rest of my life. As well as, probably, other stimulants that would be juicing my circulation and blood pressure all the time. Not exactly some thing I’m thrilled about.
My doctor has mentioned that he has patients with severe apnea that have no fatigue issues whatsoever. I know that sleep apnea can cause many of the symptoms that I have and other people have here, but fixing sleep apnea is not a magical fix-all. And you also have to ask yourself why do I have train wreck sleep. There could be a lot of different answers. But it’s pretty clear from the literature that narcolepsy causes tons of sleep wake arousal‘s. So to me it seems like the simplest answer, not the most complex like some of you are making it out to be.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3746724/
It’s a little bit frustrating I feel like I am not being believed, and I am being asked to deny some thing I’ve known about myself since I was 18.
Again I understand that you all are friendly nice people that are trying to help me. I am extremely grateful for that help. But I’m going to stop posting on this thread until after I know more because I am feeling frustrated.