Riding the dragon
Posted: Mon Jun 06, 2022 8:43 am
I will protect institutional & MD identities wherever possible.
I was diagnosed late last year. It took 5 months to get my setup because well, we know what's been going on with computer chips, shipping, and human viruses.
My DX: 60 events/hr, complex & obstructive.
I didn't care for the place that did the initial study, so I transferred to the local university. I had my doubts about the specialty sleep center, but the process itself is fairly well understood. It's the interpretation & treatment is where things can get dicey.
Note: The Mayo Clinic website states that they do their studies in one night, splitting 4 hours for unassisted observation and 4 hours of support titration. The sleep specialty outfit used two nights, the first being 8 hours of unsupported observation and the second night was titration. Titration is supposed to yield your therapeutic air pressure settings.
Apnea has quite the learning curve. In conversations with the U MD, he shared that over pressure from CPAP can create stints of complex apnea. I expect to hear from him this week, he's been having lost time from his own medical issues. He also warned that even the best medical websites should be cross checked (re:Mayo Clinic). I've been a PTSD/depression/anxiety survivor most of my life. There's a good deal of crossover in symptoms. I'll know more when he gets the telemetry from the Airsense 11. The stated goal is 5 or less events/hr, I've never seen less than 10, and range from 20-30. I can tell immediately when waking what my count was overnight. It ranges from foggy to wanting the family coronary, just so the pain stops. (Cardio hypertrophy, it runs in the family) It's not localized pain, rather it's fatigue like I've never experienced before. I used to bicycle 75 miles @20MPH when I had time, sometimes logging 2K over a summer. Nothing even close to this stuff. Recovery doesn't happen, the exhaustion subsides as the morning passes on. My medical people are out of gas, this is the remaining treatable issue. While I was transferring my sleep treatment to the university, I consulted with the CPAP OEM's respiratory therapist. She wanted to have the U MD write orders for BiPAP equipment. As I said, the U MD is going to get into the data and see if there's induced complex apnea. Fun fact: SSRIs are known to lower REM time.
I was diagnosed late last year. It took 5 months to get my setup because well, we know what's been going on with computer chips, shipping, and human viruses.
My DX: 60 events/hr, complex & obstructive.
I didn't care for the place that did the initial study, so I transferred to the local university. I had my doubts about the specialty sleep center, but the process itself is fairly well understood. It's the interpretation & treatment is where things can get dicey.
Note: The Mayo Clinic website states that they do their studies in one night, splitting 4 hours for unassisted observation and 4 hours of support titration. The sleep specialty outfit used two nights, the first being 8 hours of unsupported observation and the second night was titration. Titration is supposed to yield your therapeutic air pressure settings.
Apnea has quite the learning curve. In conversations with the U MD, he shared that over pressure from CPAP can create stints of complex apnea. I expect to hear from him this week, he's been having lost time from his own medical issues. He also warned that even the best medical websites should be cross checked (re:Mayo Clinic). I've been a PTSD/depression/anxiety survivor most of my life. There's a good deal of crossover in symptoms. I'll know more when he gets the telemetry from the Airsense 11. The stated goal is 5 or less events/hr, I've never seen less than 10, and range from 20-30. I can tell immediately when waking what my count was overnight. It ranges from foggy to wanting the family coronary, just so the pain stops. (Cardio hypertrophy, it runs in the family) It's not localized pain, rather it's fatigue like I've never experienced before. I used to bicycle 75 miles @20MPH when I had time, sometimes logging 2K over a summer. Nothing even close to this stuff. Recovery doesn't happen, the exhaustion subsides as the morning passes on. My medical people are out of gas, this is the remaining treatable issue. While I was transferring my sleep treatment to the university, I consulted with the CPAP OEM's respiratory therapist. She wanted to have the U MD write orders for BiPAP equipment. As I said, the U MD is going to get into the data and see if there's induced complex apnea. Fun fact: SSRIs are known to lower REM time.
