Cease CPAP Use Two Weeks before Sleep Study?

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
dataq1
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Re: Cease CPAP Use Two Weeks before Sleep Study?

Post by dataq1 » Mon Apr 25, 2022 8:48 pm

lazarus wrote:
Mon Apr 25, 2022 8:12 pm
The very, very mild evaluating cessation is a different story entirely, to me.
Yes, agree two different things.

BTW, I asked DR. about stopping using my dreamstation1 last summer (just after the recall).
His response was: Your APAP is 5 years old.
a) any out-gassing of VOCs happened a long time ago
b) Since you have not been using any ozone products, and your humidifier is in the air stream, particles if any, likely would have been "caught" by the water. (or at least you would have seen some).

so.... keep using your APAP as prescribed. If you see black particles in the humidifier water, or tube then let me know.

If you want to get a replacement machine at no cost, go ahead and do so.
But in his estimation, there was no reason to suspend therapy to try to find a "new" pap.
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Tec5
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Re: Cease CPAP Use Two Weeks before Sleep Study?

Post by Tec5 » Tue Apr 26, 2022 9:35 am

Follow up after talking with the admissions desk at the sleep lab, for whatever it's worth.
(I did not mention anything about any controversy or discussions here on cpaptalk)

What preparations are expected prior to my sleep study reassessment?
(they knew that I had previously had an at-home sleep study)

The nice lady explained about clothing and avoiding eating meals that might lead to heartburn or gastric distress, don't come overly tired (from exercise for example), or overly stressed, don't come "high" -- in other words all the common sense stuff.

And then she said that I should stop using my APAP for several days prior to testing to obtain the most accurate assessment.
So I gently questioned this instruction (me acting dumb).

She went on to explain that the practice in their lab is to suspend existing therapy for about 5 days for a retest. Said that my doctor already knows this is their practice, but the doctor can say to NOT suspend therapy, he understands that the accuracy of the test my be degraded. "It's up to the Doctor to tell us to NOT implement our standard practice".

So, in my case, it's a matter of having a discussion with my doc (to suspend or not).

Consequently, should I just leave it alone - and have the test done with a 5 day therapy suspension, or insist on a consult with my doctor to discuss this?

The general mood I've sensed here in this thread is that It's a bad idea to stop therapy, but if my doctor advises me to suspend (for this retest) how should I "push back" .
(I really can't use the reasoning "I heard it on the internet")
I am neither a physician nor a lawyer, so DO NOT rely on me for professional medical or legal advice.

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SleepGeek
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Re: Cease CPAP Use Two Weeks before Sleep Study?

Post by SleepGeek » Tue Apr 26, 2022 9:47 am

You could not use it tonite then you will have your answer in the AM.

You can contact your doc just to know where he stands.

You can always not let them know what you did. I think thats what I would do.

Did I miss the reason for this sleep study? You know you have OSA are you having trouble?
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Rubicon
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Re: Cease CPAP Use Two Weeks before Sleep Study?

Post by Rubicon » Tue Apr 26, 2022 10:13 am

TTBOMK the only 2 reasons for discontinuing xPAP for a day or 2 to reverse the hysteresis effect are:

1. Patient has changed insurance and needs to requalify for CPAP coverage (and this would be someone borderline. If you know they desat to 40% w/o therapy you can bet they're going to qualify about 10 seconds after removal of xPAP); and

2. A patient who had corrective surgery and you need to know precisely how well they will do after surgery. These guys would have surgery, go back on xPAP for a month or 2 then return for re-evaluation.
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Rubicon
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Re: Cease CPAP Use Two Weeks before Sleep Study?

Post by Rubicon » Tue Apr 26, 2022 10:19 am

Oooh maybe 3:

Somebody lost a ton of weight and they want to see if they can do without xPAP.
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lazarus
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Re: Cease CPAP Use Two Weeks before Sleep Study?

Post by lazarus » Tue Apr 26, 2022 10:21 am

Tec5 wrote:
Tue Apr 26, 2022 9:35 am
. . . or insist on a consult with my doctor to discuss this?. . .
Depends. A message to doc's staff might be in order if you have concerns.

My doc knows not to suggest I suspend for any amount of time. I am very severe. I consider my life very dear to me. But that's just me. And I'm not you. There is no need for me to have a diagnostic study, since simple OSA is the full diagnosis and PAP is the "cure." I will always use PAP, so testing me without it would be a worthless exercise in futility for everyone involved.

That said, for YOU, it all depends on your history, overall health, feeling about risks (all tests have risks, even if just a paper cut that could get infected :-) ), and what the trade-off is for risk/benefit in relation to the purpose of the retest. Therefore, I would consider your negotiations with your doc based on his expertise and knowledge vs. your understanding of what information is needed all to come into play. Maybe no right or wrong answer, as long as your entire team is on the same page about it. It is a nebulous area for the very mild AHI, if that is your situation.

For the record, a negative finding in a HOME test is NOT scientifically considered valid proof that a patient will not benefit from PAP. That is why negative findings or inconclusive findings in a HOME test must be followed up with a lab/center-based NPSG. Only positive findings in a HOME test are considered meaningful as a consensus in the industry.

My personal mind set isn't diagnosis-based when it comes to PAP in general. I feel that there are two kinds of humans on this planet: (1) those who can benefit from PAP and (2) those who can't. I am very simplistic on that. So "proving" that a human would not have benefitted from PAP on one particular night does NOT mean that much to me in my patient-based pragmatic approach to it. I think of PAP as something slightly outside the medical model of testing that has been force-fitted into present medical approaches in order to get the full benefit of the medical profession's involvement in order to spread the word and get the simple mechanical pressurized-air treatment to as many in the public as possible who can benefit.

So how your doc's approach and lab's approach fits into your way of thinking is something I'm willing to comment on with more information, but without knowing your full circumstances and your way of thinking, my words don't mean much. I leave it up to you to decide how much more you are willing to share and how much comment you welcome.

Most of all, I would listen to Pugsy carefully. She may not always bat 1000, but there is no other person I'd rather see at the plate when the game is close.

-Jeff
Last edited by lazarus on Tue Apr 26, 2022 10:45 am, edited 1 time in total.
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Re: Cease CPAP Use Two Weeks before Sleep Study?

Post by Rubicon » Tue Apr 26, 2022 10:44 am

Tec5 wrote:
Tue Apr 26, 2022 9:35 am

Consequently, should I just leave it alone - and have the test done with a 5 day therapy suspension, or insist on a consult with my doctor to discuss this?
What was the AHI on the home study?

If a suspension is warranted, 2 days is plenty:

https://academic.oup.com/sleep/article/36/3/405/2656933
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Re: Cease CPAP Use Two Weeks before Sleep Study?

Post by lazarus » Tue Apr 26, 2022 10:57 am

Rubicon wrote:
Tue Apr 26, 2022 10:44 am
. . . 2 days is plenty:

https://academic.oup.com/sleep/article/36/3/405/2656933
42 people, oddly screened. Chose two-day evaluation arbitrarily and then only studied that.

I respect the study, but would not extrapolate any applicable treatment or diagnostic conclusions from it.

Hey, just me.
The people who confuse "entomology" and "etymology" really bug me beyond words.
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chunkyfrog
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Re: Cease CPAP Use Two Weeks before Sleep Study?

Post by chunkyfrog » Tue Apr 26, 2022 11:13 am

Repeated, but unnecessary sleep studies, on the outside chance
that insurance can deny paying for supplies.
Sounds like an HMO to me.
Low premiums--you get what you pay for--good luck with that!
I already know what it's like to go without cpap--even just a few hours.
It's bad enough to fight in court!

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Re: Cease CPAP Use Two Weeks before Sleep Study?

Post by loggerhead12 » Tue Apr 26, 2022 11:30 am

chunkyfrog wrote:
Tue Apr 26, 2022 11:13 am
I already know what it's like to go without cpap--even just a few hours.
It's bad enough to fight in court!
I wouldn't bother with court. Just go with the flow and tell them what they want to hear. "Absolutely, I've been off CPAP for two weeks."

My sleep apnea can be diagnosed in about 30 seconds if I'm tired and there's a recliner nearby.

Tec5
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Re: Cease CPAP Use Two Weeks before Sleep Study?

Post by Tec5 » Tue Apr 26, 2022 11:33 am

chunkyfrog wrote:
Tue Apr 26, 2022 11:13 am
Sounds like an HMO to me.
Low premiums--you get what you pay for--good luck with that!
Actually traditional Medicare and G supplement
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Tec5
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Re: Cease CPAP Use Two Weeks before Sleep Study?

Post by Tec5 » Tue Apr 26, 2022 11:42 am

lazarus wrote:
Tue Apr 26, 2022 10:21 am
A message to doc's staff might be in order if you have concerns.
Frankly I had no concerns about a retest until I read this thread and the other one (about a two? day suspension).
I am neither a physician nor a lawyer, so DO NOT rely on me for professional medical or legal advice.

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Rubicon
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Re: Cease CPAP Use Two Weeks before Sleep Study?

Post by Rubicon » Tue Apr 26, 2022 11:59 am

lazarus wrote:
Tue Apr 26, 2022 10:57 am

42 people, oddly screened. Chose two-day evaluation arbitrarily and then only studied that.
CG's reference carried a study out, but TTBOMK nobody else dared try that again after her post.

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Re: Cease CPAP Use Two Weeks before Sleep Study?

Post by Rubicon » Tue Apr 26, 2022 12:03 pm

ODI lags a bid tho:

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chunkyfrog
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Re: Cease CPAP Use Two Weeks before Sleep Study?

Post by chunkyfrog » Tue Apr 26, 2022 12:09 pm

Since professional opinions vary from one night to two weeks, to not at all;
--the best bet would be to shop for a doctor that agrees with YOU.

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