Favorite tricks to reduce apnea WITHOUT CPAP/BIPAP etc
- Miss Emerita
- Posts: 3444
- Joined: Sun Nov 04, 2018 8:07 pm
Re: Favorite tricks to reduce apnea WITHOUT CPAP/BIPAP etc
To get an ASV, many patients must “fail” regular PAP and bilevel PAP. It seems cruel to me. Anobono, good luck hanging in there.
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Re: Favorite tricks to reduce apnea WITHOUT CPAP/BIPAP etc
Thanks. 61 days with a machine, for an average of 7.5 hours per night, including 3 nights with the pulse-oxygen meter, and the results were discouraging in terms of the numbers and types of events showing a clear lack of improvement, and a concerning pattern of frequent oxygen desaturation. We tried a whole bunch of settings with no improvement. Both the respiratory therapist and the lung specialist agreed that I'm one of these fairly rare "complicated" cases for whom CPAP is not the solution, to the extent of recommending I don't continue treatment until I get the ASV.Miss Emerita wrote: ↑Thu Dec 30, 2021 8:59 pmTo get an ASV, many patients must “fail” regular PAP and bilevel PAP. It seems cruel to me. Anobono, good luck hanging in there.
They were quite impressed with my commitment to stick with it this long though. I wanted to give up quite a few times, but after being too tired for so many years, I need to see this through. My SO has had a CPAP for years, and they're offering no real support because all they end up saying is "Funny. It works for me.". No sympathy for me. Well, I'm reaaaally happy for them LOL. So, that topic is now off limits and I'm on my own
Hopefully the wait for the ASV won't be too long. Actually it's getting an ECG first to rule out a rare heart condition that makes ASV dangerous that may take a long time in my area, especially during the pandemic. Otherwise, the doctor could have just read the specialist's report and replied "Go ahead with BiPAP ASV".
At least, I have gotten very good at adapting quite well to changing sleeping conditions. I'm about to go to bed and try to fall asleep on my left side. Sweet dreams, maybe.
- Respirator99
- Posts: 343
- Joined: Mon Jul 05, 2021 12:39 am
- Location: Australia
Re: Favorite tricks to reduce apnea WITHOUT CPAP/BIPAP etc
OK, so you have central sleep apnea, which an ordinary cpap won't treat. Hence the need for an ASV. The "rare heart condition" which contraindicates against ASV is severe congestive cardiac failure, with ejection fraction <35% (if I remember correctly). You'd know if you had it.Hopefully the wait for the ASV won't be too long. Actually it's getting an ECG first to rule out a rare heart condition that makes ASV dangerous that may take a long time in my area, especially during the pandemic. Otherwise, the doctor could have just read the specialist's report and replied "Go ahead with BiPAP ASV".
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* Oscar help
* An alternative to Oscar - try SleepHQ
I have no medical training or qualifications. Take my advice for what it's worth.
Re: Favorite tricks to reduce apnea WITHOUT CPAP/BIPAP etc
I would skip alcohol for the mean time for sure, and in case you suspect UARS I personally feel skipping intense sports is smart as well (no proof, own experience).
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Re: Favorite tricks to reduce apnea WITHOUT CPAP/BIPAP etc
I never drink, so that's not an issue. I don't have any symptoms of cardiac disease or suspect any. It's just the specialist exercising due diligence by ruling it out. No arguing with them anyway. I can't move forward without them. An ECG is not a big deal anyway, except for the delays I may experience, but that's a different discussion, and I'm not at risk of dying in the meantime.
Re: Favorite tricks to reduce apnea WITHOUT CPAP/BIPAP etc
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people say i'm self absorbed.
but that's enough about them.
Oscar-Win
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Oscar-Mac
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but that's enough about them.
Oscar-Win
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- chunkyfrog
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Re: Favorite tricks to reduce apnea WITHOUT CPAP/BIPAP etc
The best revenge against sucky insurance is to survive in spite of
their best efforts to prevent you from costing them money--(by dying.)
You go!
their best efforts to prevent you from costing them money--(by dying.)
You go!
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Re: Favorite tricks to reduce apnea WITHOUT CPAP/BIPAP etc
Couldn't fall asleep on my side. So, I remembered I had a wedge pillow at the back of a closet and slept on that, mostly of my back in a recline position. I slept okay for me, better than some nights during the CPAP trial in fact. I did wake up a few times in a hurry when my soft palate closed my airway, but that's kind of expected. I've ordered a soft neck brace like some people use to keep their neck straight to prevent snoring and apnea. It wasn't expensive and may help.
Re: Favorite tricks to reduce apnea WITHOUT CPAP/BIPAP etc
I know what you mean. But in my case, it's really having to wait to get an ECG that is the hold up. With the COVID situation, I can only hope it doesn't take too long. Everyone is short-staffed and, understandably, working under more restrictive conditions.chunkyfrog wrote: ↑Fri Dec 31, 2021 12:06 pmThe best revenge against sucky insurance is to survive in spite of
their best efforts to prevent you from costing them money--(by dying.)
You go!
- chunkyfrog
- Posts: 34395
- Joined: Mon Jul 12, 2010 5:10 pm
- Location: Nebraska--I am sworn to keep the secret of this paradise.
Re: Favorite tricks to reduce apnea WITHOUT CPAP/BIPAP etc
Where do you live?anobono wrote: ↑Fri Dec 31, 2021 12:12 pmI know what you mean. But in my case, it's really having to wait to get an ECG that is the hold up. With the COVID situation, I can only hope it doesn't take too long. Everyone is short-staffed and, understandably, working under more restrictive conditions.chunkyfrog wrote: ↑Fri Dec 31, 2021 12:06 pmThe best revenge against sucky insurance is to survive in spite of
their best efforts to prevent you from costing them money--(by dying.)
You go!
It's not like that here--yet, anyway.
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Re: Favorite tricks to reduce apnea WITHOUT CPAP/BIPAP etc
Canadachunkyfrog wrote: ↑Fri Dec 31, 2021 12:14 pmWhere do you live?
It's not like that here--yet, anyway.
- chunkyfrog
- Posts: 34395
- Joined: Mon Jul 12, 2010 5:10 pm
- Location: Nebraska--I am sworn to keep the secret of this paradise.
Re: Favorite tricks to reduce apnea WITHOUT CPAP/BIPAP etc
Oh, that explains a lot.
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Re: Favorite tricks to reduce apnea WITHOUT CPAP/BIPAP etc
Really?
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Re: Favorite tricks to reduce apnea WITHOUT CPAP/BIPAP etc
that's good!anobono wrote: ↑Fri Dec 31, 2021 12:09 pmCouldn't fall asleep on my side. So, I remembered I had a wedge pillow at the back of a closet and slept on that, mostly of my back in a recline position. I slept okay for me, better than some nights during the CPAP trial in fact. I did wake up a few times in a hurry when my soft palate closed my airway, but that's kind of expected. I've ordered a soft neck brace like some people use to keep their neck straight to prevent snoring and apnea. It wasn't expensive and may help.
my source for the cervical collar seems to be temporarily (i hope) out. which did you get? and was it 3" or 4" or?
_________________
Machine: AirCurve™ 10 VAuto BiLevel Machine with HumidAir™ Heated Humidifier |
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear |
people say i'm self absorbed.
but that's enough about them.
Oscar-Win
https://www.apneaboard.com/OSCAR/OSCAR-1.5.1-Win64.exe
Oscar-Mac
https://www.apneaboard.com/OSCAR/OSCAR-1.5.1.dmg
but that's enough about them.
Oscar-Win
https://www.apneaboard.com/OSCAR/OSCAR-1.5.1-Win64.exe
Oscar-Mac
https://www.apneaboard.com/OSCAR/OSCAR-1.5.1.dmg
Re: Favorite tricks to reduce apnea WITHOUT CPAP/BIPAP etc
I didn't look too closely. It turns out to be a 3".zonker wrote: ↑Fri Dec 31, 2021 2:47 pmthat's good!anobono wrote: ↑Fri Dec 31, 2021 12:09 pmCouldn't fall asleep on my side. So, I remembered I had a wedge pillow at the back of a closet and slept on that, mostly of my back in a recline position. I slept okay for me, better than some nights during the CPAP trial in fact. I did wake up a few times in a hurry when my soft palate closed my airway, but that's kind of expected. I've ordered a soft neck brace like some people use to keep their neck straight to prevent snoring and apnea. It wasn't expensive and may help.
my source for the cervical collar seems to be temporarily (i hope) out. which did you get? and was it 3" or 4" or?