WheezyRider's CPAP therapy

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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Pugsy
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Re: WheezyRider's CPAP therapy

Post by Pugsy » Sun Dec 26, 2021 8:21 pm

zonker wrote:
Sun Dec 26, 2021 8:13 pm
um, he HAS changed the thread title. but for some reason, it doesn't show on all posts.

needs to be changed on original post???

(to quote vinny barbarino-i'm so confused!)
Replies made when the original topic and before his change will say "Re: How can AHI be higher while awake".
Those topics won't change when original topic is changed but any subsequent replies made after he edited the topic on the original first post will reflect to new changed topic "Re:WheezyRider's cpap therapy".
This is just the way things work when topic lines are changed. Replies reflect original topic and won't change up to when the topic was edited and any replies after the edit will reflect the change.

Now I could go in an edit each reply and change the topic but it's a lot of work for me and it simply isn't needed anyway.

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zonker
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Re: WheezyRider's CPAP therapy

Post by zonker » Sun Dec 26, 2021 8:40 pm

Pugsy wrote:
Sun Dec 26, 2021 8:21 pm

Now I could go in an edit each reply and change the topic but it's a lot of work for me and it simply isn't needed anyway.
don't bother.

i've been confused for 67 years. i'm used to it.
:lol: :lol: :lol:
people say i'm self absorbed.
but that's enough about them.
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Re: WheezyRider's CPAP therapy

Post by wheezyrider » Sun Dec 26, 2021 9:21 pm

Miss Emerita wrote:
Sun Dec 26, 2021 5:12 pm
Many thanks for this additional information.
No, Thank you! This is a lot to digest. And I still have people yelling at me for forum etiquette violations, but it's a start.

I've been trying to get my doctor to take a look at my reports but I'm getting a run around. The heart failure should get his attention. I'm pretty fit and active, although I'm getting old and I have just started my SA therapy which I was advised to do 30 years ago.

I am posting my stats from the beginning. It's the one page summary but it does show that the CSR is trending up from the start.

My EPR was set to level 2 and full time. I turned it off. And thanks again for your help.

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Re: WheezyRider's CPAP therapy

Post by palerider » Sun Dec 26, 2021 9:57 pm

wheezyrider wrote:
Sun Dec 26, 2021 9:21 pm
And I still have people yelling at me for forum etiquette violations, but it's a start..
Oh, nobody's yelling at you, you're getting grumbled at, especially when you started trying to tell the moderator she didn't know what she was talking about.

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Re: How can AHI be high while awake?

Post by palerider » Sun Dec 26, 2021 10:00 pm

zonker wrote:
Sun Dec 26, 2021 8:13 pm

um, he HAS changed the thread title. but for some reason, it doesn't show on all posts.

needs to be changed on original post???
An excellent example of the concept are our favorite frog's cancer threads, if you start at the beginning, you'll see the titles change as the subject matter changes through the journey. She just edits the subject line in the first post whenever she has new information.

Keeps things neat and tidy in one easy to follow thread, and you know what the progress is.

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Re: WheezyRider's CPAP therapy

Post by Pugsy » Sun Dec 26, 2021 10:28 pm

Oh I wasn't yelling but I was trying to ward off someone else who likely would come along and be swinging a big 2 X 4 to convince you to stay in one thread. I have seen them get really ugly with that 2 X 4. I was just using a small switch to gently slap your hands. :lol:
I really don't care so much about a gazillion threads but there are some people here who it matters a LOT to them and they will do some yelling for sure. They come along and actually do yell at newbies then I have to slap their hands for being rude.

There is a very practical reason why we like for newbies to stay in one thread for a while though. Don't have to forever...just while you are sorting through things and having all sorts of questions form in your mind. While I try to read almost all new posts/threads....I don't always have time to respond right when I read something unless I can do it quickly. If I have to go back and sort through a lot of different topics it takes time and what I end up doing is thinking to myself...I will read and respond later...and then I get busy and forget and don't go back....so people don't get an answer from me. Now often someone else will pick up the slack but not always because some members just won't even bother trying to look back and they just end up not responding either.

So you don't have to use this thread forever...just help us help you by keeping all discussion in one quick easy area to get to for right now and maybe next month or so until you get things better sorted out.

All that said....I agree with Miss E and I also strongly urge you to eliminate EPR from the mix just to see if you get lucky and those centrals go away with EPR going away (or sometimes just being reduced). It might happen...I can't promise or guarantee it but it might and it's an easy experiment to make.

Using bilevel pressures can sometimes cause centrals to pop up when people don't normally have a lot of centrals.
When we use any sort of exhale relief we are creating a bilevel pressure situation where we have 2 distinct pressures...one for inhale and one for exhale. It's a small subset of people who have this happen though. It's not like it happens to everyone. I use what would be equal to 4 cm EPR and I don't get any real centrals at all beyond a very rare sleep onset central on occasion. I have a friend that when she used the same equivalent of 4 she would get 15 to 20 centrals every hour all night long but when we dropped it to 3...the centrals all but totally went away.
Someone else I know ended up having to turn EPR totally off to get rid of his too many centrals. It just varies between people.

Again...no guarantees that it will make any difference at all in your centrals but it might and is certainly worth at least giving it a shot. Sometimes it does work and wouldn't it be nice if you were one of those lucky people?
If you aren't one of the lucky ones...no need to panic and worry needlessly. It can be dealt with but you will have to be the squeaky wheel and get your doctors attention.

Good luck and back to your regularly scheduled programming.

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Re: WheezyRider's CPAP therapy

Post by Miss Emerita » Mon Dec 27, 2021 12:00 am

I’ll look forward to seeing what happens with no EPR.

I realize I forgot to ask: at what altitude do you live? Have you changed altitude in the past months? High altitudes can lead to CAs, which is why I ask.
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Re: WheezyRider's CPAP therapy

Post by wheezyrider » Mon Dec 27, 2021 1:03 pm

Miss Emerita wrote:
Mon Dec 27, 2021 12:00 am
I’ll look forward to seeing what happens with no EPR.

I realize I forgot to ask, at what altitude do you live? Have you changed altitude in the past months? High altitudes can lead to CAs, which is why I ask.
Ask and you shall receive. I am at 600ft elevation, +20floors up, if that matters. No I haven't changed altitude recently.

I didn't sleep well last night, but no CSR's. I fell asleep fairly easy, and I woke up around 1am and couldn't fall back to sleep right away, and woke up multiple times. Again multiple factors, anxiety too, so not sure if this result captures my SA activity. I think woke up with a cold too, although my breathing wasn't difficult, at least sinus breathing until the day wore on.

I have another call into my sleep center too. Let me know if I should zoom in on anything, and I turned off EPR.

Thanks again!

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Re: WheezyRider's CPAP therapy

Post by wheezyrider » Mon Dec 27, 2021 1:16 pm

Pugsy wrote:
Sun Dec 26, 2021 10:28 pm
Oh I wasn't yelling
I know, I didn't get offended at all by your comments and I meant no criticism of you and the forum process. I was just trying to figure out what it was and you gave me good guidance that I tried to follow with mixed success, and technical issues. Others, however thought I was protesting the advice apparently and went with that. I think I got your message and tried to relay that I was trying to follow rules so I didn't make it difficult, and so on, and so on.

Thanks for your direction and advice. I am not a trouble maker, I just play one occasionally on the internet.

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Re: WheezyRider's CPAP therapy

Post by Miss Emerita » Mon Dec 27, 2021 2:39 pm

I'm glad you're calling the sleep center; keep pestering them!

Your high elevation could certainly be contributing to your CA problems.

Could you post a 15-minute zoomed-in view of some part of the cluster that starts at around 3 a.m.?
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Re: WheezyRider's CPAP therapy

Post by wheezyrider » Mon Dec 27, 2021 5:09 pm

Miss Emerita wrote:
Mon Dec 27, 2021 2:39 pm

Could you post a 15-minute zoomed-in view of some part of the cluster that starts at around 3 a.m.?

Am I zooming the right section? Let me know if I need to redo this snippet.

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Re: WheezyRider's CPAP therapy

Post by chunkyfrog » Mon Dec 27, 2021 5:19 pm

Single thread strategy is less work for those wanting to help.
And remember; we're all volunteers here.

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Re: WheezyRider's CPAP therapy

Post by wheezyrider » Mon Dec 27, 2021 8:07 pm

I have congested sinuses and will probably use a full mask until it clears up. Should I still leave EPR off? Any other adjustments I would make going to a full mask? Other than selecting mask type.

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Re: WheezyRider's CPAP therapy

Post by Miss Emerita » Tue Dec 28, 2021 12:09 am

If you’re still up — yes, leave EPR off again. Could you try a fifteen minute zoom where the CAs are thick and you were probably asleep? You could do that on the chart for tonight, perhaps.
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Re: WheezyRider's CPAP therapy

Post by wheezyrider » Tue Dec 28, 2021 8:03 am

Miss Emerita wrote:
Tue Dec 28, 2021 12:09 am
If you’re still up — yes, leave EPR off again. Could you try a fifteen minute zoom where the CAs are thick and you were probably asleep? You could do that on the chart for tonight, perhaps.
Here is a zoom for the same night. Last night I tried a full mask because I have a cold, also heavily medicated with antihistamines. It was a disaster and most of my events are UA's too. I could post but I think it's anomalous and maybe not worth sharing. I feel better and going back to a nasal mask.

Thanks for looking at my data. You need a tip jar on your profile.

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