Want advice. Feeling worse on CPAP than off.

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
AFAFAF
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Want advice. Feeling worse on CPAP than off.

Post by AFAFAF » Tue Oct 26, 2021 2:42 am

Just want to know what DATA from OSCAR I should show to get advice. Also how many days worth of too. Thanks!

E: Graphs now posted for advice.

E2: I feel worse on the machine than without. Sleeping even longer than my usual 12 hours a day. Not too sure what to do ...
Last edited by AFAFAF on Wed Nov 03, 2021 12:50 am, edited 3 times in total.

GrumpyHere
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Re: What graphs/data in OSCAR to show to get advice?

Post by GrumpyHere » Tue Oct 26, 2021 4:40 am

The required data are flags, flow rate, pressure, leak, flow limit.

The easy way to set the OSCAR (v1.2) graphs in the preferred order and format:

1. Go to View menu - Reset Graphs - Standard

2. In View menu, turn on Sidebar

3. Again in View Menu turn off Daily Calendar and Pie Chart

4. Set Graph Height in File Menu -> Preferences -> Appearance Tab

On my setup, when set to 80, I get really squished up graphs.

At 192, the 5 graphs (flags, flow rate, pressure, leak, flow limit) are nicely spaced out.

At 160 I also get snores as the bottom graph.
ResMed S9 VPAP Adapt, p10 mask

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zonker
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Re: What graphs/data in OSCAR to show to get advice?

Post by zonker » Tue Oct 26, 2021 10:58 am

AFAFAF wrote:
Tue Oct 26, 2021 2:42 am
Just want to know what DATA from OSCAR I should show to get advice. Also how many days worth of too. Thanks!
grumpyhere takes care of the what, as to the how many, the forum only allows 3 days worth as an attachment and those 3 days will be plenty to start out on.

oh! and please post them right here in this thread instead of starting another. thanks.

good luck!
By replacing your morning coffee with green tea, you can lose up to 87% of what little joy you have left in your life.

AFAFAF
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Re: What graphs/data in OSCAR to show to get advice?

Post by AFAFAF » Wed Oct 27, 2021 1:28 am

Here are my last three days. I've been feeling even more tired on the machine than off, so feeling quite hopeless tbh. Bit of a headache today when upped from 4 to 5 min, but might just be from poor sleep.
Attachments
OSCAR 1.3.0 (Profile_ AFAF) 27_10_2021 6_27_02 PM.png
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OSCAR 1.3.0 (Profile_ AFAF) 27_10_2021 6_26_59 PM.png
OSCAR 1.3.0 (Profile_ AFAF) 27_10_2021 6_26_59 PM.png (226.56 KiB) Viewed 578 times
OSCAR 1.3.0 (Profile_ AFAF) 27_10_2021 6_26_53 PM.png
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Pugsy
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Re: What graphs/data in OSCAR to show to get advice?

Post by Pugsy » Wed Oct 27, 2021 6:16 am

Need a bit of history from you please. Please take the time to answer all of them.

1..Do you take any meds of any kind? If so, what are they?
2..Where do you live?...and at what altitude?
3..Are you actually sleeping very much with the mask and machine on? Or doing a lot of laying awake with mask and machine on?
4..What were the results of your sleep study that earned you this machine? Do you have copies of those results? If not, request copies ASAP. Home study or done in a lab? Did you ever have a sleep study done with mask and machine on to sort out optimal pressures? Or did they just tell you that you had Sleep Apnea and give you this machine and tell you the machine would sort out the pressure needs?
5..Any other physical or mental health issues going on that might impact how you sleep and/or feel?
6..Normal bedtime and get up times?
7..Age and male or female?
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AFAFAF
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Re: What graphs/data in OSCAR to show to get advice?

Post by AFAFAF » Wed Oct 27, 2021 8:25 pm

1..Do you take any meds of any kind? If so, what are they?
olanzapine (2.5mg) and escipratolam (20mg)

2..Where do you live?...and at what altitude?

Sydney around 96m altitude.

3..Are you actually sleeping very much with the mask and machine on? Or doing a lot of laying awake with mask and machine on?'

Yeah mostly sleeping with it. Maybe 20 mins then asleep.

4..What were the results of your sleep study that earned you this machine? Do you have copies of those results? If not, request copies ASAP. Home study or done in a lab? Did you ever have a sleep study done with mask and machine on to sort out optimal pressures? Or did they just tell you that you had Sleep Apnea and give you this machine and tell you the machine would sort out the pressure needs?

Findings were:

exhibited fragmented sleep architecture throughout his home diagnostic sleep study. He had a sleep
efficiency of 79% with a prolonged sleep latency of 40 mins and frequent arousals. REM sleep was reduced. Sleep was
predominately in the lateral positions and supine REM was seen. The Epworth Sleepiness Score is normal at 4.
The study was characterised by flow limitation and frequent obstructive hypopnoeas with an AHI of 30/hr. These events
were associated with an average oxyhaemoglobin desaturation of 3% with a nadir saturation at 90%. Average saturation
during the study was 94%. The desaturation index was normal at 3 events/hr.
Frequent snoring was observed throughout the night. Sinus rhythm was observed on ECG throughout the study with a
baseline heart rate of 58 bpm. Blood pressure was normal at 112/62mmHg.

Conclusion:
Severe obstructive sleep apnoea and minimal arterial oxygen desaturation.

Need anything else? Was a home study.

Sleep doc just said I should try low pressure but nothing exact and to go for APAP since he doesn't know the exact pressure I need.

5..Any other physical or mental health issues going on that might impact how you sleep and/or feel?
Depression. But I feel more worse waking up tired on the machine than off regardless of condition right.

6..Normal bedtime and get up times?
Not sure. When I developed sleep apnea 4 or so months ago I had been sleeping 12 hours around 1am-1pm. But I've only been on APAP for 5-6 days and it's been wonky, from sleeping late to waking late, to taking long hours naps on the machine since I'm so tired on it.

7..Age and male or female?
Male

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Pugsy
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Re: Want OSCAR advice!

Post by Pugsy » Wed Oct 27, 2021 9:20 pm

Try turning EPR off and see what happens.
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AFAFAF
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Re: Want OSCAR advice!

Post by AFAFAF » Mon Nov 01, 2021 1:44 am

Turned EPR off. First couple days it looked better. Although I felt relatively the same. But now I've started leaking but feel just as crappy as usual. People have suggested I may need ASV due to how many central apneas I have. Attached is sleep study, and first day with EPR off.
Attachments
Redacted Sleep Study.pdf - Google Chrome 29_10_2021 5_59_49 PM.png
Redacted Sleep Study.pdf - Google Chrome 29_10_2021 5_59_49 PM.png (316.23 KiB) Viewed 427 times
Redacted Sleep Study.pdf - Google Chrome 29_10_2021 5_59_43 PM.png
Redacted Sleep Study.pdf - Google Chrome 29_10_2021 5_59_43 PM.png (610.32 KiB) Viewed 427 times
OSCAR 1.3.0 (Profile_ AFAF) 1_11_2021 6_43_29 PM.png
OSCAR 1.3.0 (Profile_ AFAF) 1_11_2021 6_43_29 PM.png (246.44 KiB) Viewed 427 times

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palerider
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Re: Want OSCAR advice!

Post by palerider » Mon Nov 01, 2021 1:55 pm

AFAFAF wrote:
Mon Nov 01, 2021 1:44 am
Turned EPR off. First couple days it looked better. Although I felt relatively the same. But now I've started leaking but feel just as crappy as usual. People have suggested I may need ASV due to how many central apneas I have. Attached is sleep study, and first day with EPR off.
You don't have anywhere near enough centrals to warrant an ASV.
Get OSCAR and come chat on IRC: #cpaptalk on irc.libera.chat

Accounts to put on the foe list: mper!?, DreamDiver, Geer1, almostadoctor, sleepgeek, ajack, stom, mogy, D.H., They're often post misleading, timewasting stuff.

AFAFAF
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Re: Want OSCAR advice!

Post by AFAFAF » Wed Nov 03, 2021 12:23 am

What about from the sleep test? I just feel really awful on the machine and don't know what to do.

24 obstructive
45 Central
252 Hypopnea

Wouldn't most of the Hypopnea be central based?

AFAFAF
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Re: Want OSCAR advice. Feeling desperate

Post by AFAFAF » Wed Nov 03, 2021 12:40 am

I'm sleeping 12+ hours and not feeling too great (feeling worse on CPAP than without). Some Cheyne Stokes Respiration has appeared too should I be concerned?
Attachments
OSCAR 1.3.0 (Profile_ AFAF) 3_11_2021 5_37_12 PM.png
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OSCAR 1.3.0 (Profile_ AFAF) 3_11_2021 5_37_15 PM.png
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OSCAR 1.3.0 (Profile_ AFAF) 3_11_2021 5_37_41 PM.png
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Pugsy
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Re: Want advice. Feeling worse on CPAP than off.

Post by Pugsy » Wed Nov 03, 2021 8:55 am

That's not CSR. It's just periodic breathing of which CSR is one form of PB but there are other forms of PB.

You need to be having a chat with your sleep doctor though. I don't see minor tweaking with your machine being able to resolve all your issues. Sorry.
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AFAFAF
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Re: Want advice. Feeling worse on CPAP than off.

Post by AFAFAF » Wed Nov 03, 2021 9:29 am

That's unfortunate. I wonder if I should just stop using it if it's making me feel worse on it than off.

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palerider
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Re: Want advice. Feeling worse on CPAP than off.

Post by palerider » Wed Nov 03, 2021 2:56 pm

You feel terrible because you're not sleeping.

Your pressure is too low, causing you more sleep disturbances.
Get OSCAR and come chat on IRC: #cpaptalk on irc.libera.chat

Accounts to put on the foe list: mper!?, DreamDiver, Geer1, almostadoctor, sleepgeek, ajack, stom, mogy, D.H., They're often post misleading, timewasting stuff.

AFAFAF
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Re: Want advice. Feeling worse on CPAP than off.

Post by AFAFAF » Wed Nov 03, 2021 11:34 pm

Can you explain why you think I have many sleep disturbances? Maybe I just don't remember them but I feel like I usually just sleep through them.