CPAPtalk.com

sleepyjane wrote: Here are the magnets I use with excellent results.
http://www.webvitamins.com/product.aspx ... &term=osmx

link doesnt work for me

Elle wrote:Sorry, my post was flippant. I thought you were having us on here but I can see the problem is bigger than I first perceived it. I hope you find what you are looking for but this might not be the place

elle,
i don't understand this comment...why wouldn't this be the place? i've read countless posts from people who have osa but are suffering from a secondary sleep disorder like plmd, or have any number of other ailments, and they are free to discuss and ask questions and get help, or at the very least compassion and support...

as far as "having us on", you'd be amazed at the number of people out there who think osa is a joke and that cpap is a bunch of crap...how can something as simple as sleep deprivation cause so many problems...how can blowing air up your nose solve the problems? you have to admit, it sounds pretty ludicrous, unless you are living it and realizing the benefits of cpap, as we all are

if you are not someone who suffers from all of the possible side effects listed on a prescription medication, or someone who has had a trusted md steer you dangerously wrong, you can't know how important it can feel to find something else to address your problems...if you are one of the many people who blindly trust their md's and take whatever is prescribed for you regardless of the possible long term effects, then you wouldn't understand how demoralizing it can be to be patronized and condescended to by a member of the medical community...i don't know what it's like in the u.s. but here in ontario there is a growing realization that what we naively call 'health care' is truly 'sick care' because that's where all the money is...i know there are many medical professionals out there who care and who do their job (my sleep doc is one of them, thank goodness), but i know there are just as many pill pushers who whip out their prescription pads at the drop of a hat.

sleepyjane, as for your comment about 'where are all the nice people?', i can understand that you feel attacked, but please know that there are many more kind people on these boards who wouldn't feel the need to pick your posts apart statement by statement, and to those who do feel the need perhaps you should ask yourself why you'd rather attack a woman who is clearly struggling, and has stated so, than offer her support and compassion...i'm wondering that very same thing myself

After realizing that she wasn't pulling our leg ... with so much going on in the thread, I felt like she needed more than this forum is equipped to handle. Of course we all have side effects, emotional and physiological, and all topics are valid. I felt helpless and somewhat confused by so much information.

I guess because I have been helped so much by this forum I attempt to contribute by looking for 'solutions' when I read a query but this request seemed overwhelming and I didn't want to see her frustrated by the lack of help available. I wasn't telling her to go away but was just kind of explaining why I at least could not help and that perhaps other people on here felt the same helplessness and thus came across as not so sympathetic. Hope this clears it up a bit.

what was that Dan Aykroyd used to always say to Jane Curtin during the news on SNL? it's the tongue!

Natural remedy for OSA? mmm.....

Well since OSA is mainly caused by the tongue simply falling into the back of the throat and blocking off the airway when all the muscles that control it relax during sleep....and cpap pressure only pushes your tongue out of the way....

There has to be many alternative natural treatments one could try, but some not so natural, one could try:

1. Getting a tongue piercing ring or post put in your tongue (hey those are popular, bet more popular than a divot over your nose from a cpap mask).

2. Having a pierced ring placed in your chin, then put a rubber band from the tongue post to the chin ring, that should hold your tongue well out of the airway (personally, I would prefer rare earth magnets implanted approach in the tongue and a maxillary retainer mouth piece you put in the mouth for sleep with a piece of metal attached to it that the magnet would attract to and hold the tongue in place). Only problem you may have with that approach is when eating with a fork or spoon, your tongue may stick to them. Sticking your tongue on a frozen steel pipe outside wouldn't be advisable either

3. Or you could simply sleep on your stomach or side, much harder for ole gravity to pull the tongue back into the airway that way. Reason sleep studies test you in different positions and why it is always seen worse on your back than any other positions. Get yourself a massage table from Costco and sleep face down

I keep reading about a new medication that is supposed to lessen the AHI you have from OSA. I guess it works similar method to that of viagra but only impacts your tongue (got to write to How'd they do that?). Of course viagra has also been shown to make OSA condition worse, but who cares about sleep when you are on viagra

Dear Snoredog.

I am religiously following your posts and commend your comments with surgical precision. Your various posts like on melatonin and your comments with regard to College Girl shows your clear line of thinking, irrespective of what others may have a different opinion, which is always appreciable. I would like to know, which is the new medicine you are reading about. I suffer from lot of central apneas and can only sleep for six hours each day. Any suggestions will be gratfully acknowledged.

[quote="sharon1965"]

sleepyjane, as for your comment about 'where are all the nice people?', i can understand that you feel attacked, but please know that there are many more kind people on these boards who wouldn't feel the need to pick your posts apart statement by statement, and to those who do feel the need perhaps you should ask yourself why you'd rather attack a woman who is clearly struggling, and has stated so, than offer her support and compassion...i'm wondering that very same thing myself

well, rooster, i can definitely see your point, in that if someone is not prepared to listen to answers, then why do they ask the questions?, and if you already know everything, then what help could you possibly need? i still think, though, that sleepyjane sounds like someone who is truly struggling and, at the same time, eager to help others and share info...maybe a little over enthusiastic? too many posts? too many links? ok, but maybe it's just theraputic for her to post her experiences...what would be the harm in that?

...however, i'm not here to agree or disagree with the specifics of the opinions written about on this thread; everyone has their own way of coping; my comment was more about the fact that a few people seemed to think it's appropriate to castigate someone on the basis of spelling and grammar (you may want to read back to guest(lyza)'s post), and really, what does anyone get out of that? i have read some truly cringeworthy posts on these boards, but do i need to point them out? who am i to judge? that's more what i was getting at, rooster, not just the fact that sleepyjane's topic on this particular thread seemed to bring out the worst in some people, especially those who appear to be resistant to change..

thanks for your input,
sharon1965

There are all types of personalities here:

The blunt people who say what they think.
The ones, like me, who appear to lack compassion or tact.
And the truly compassionate and caring people who express themselves as such (and I wish I were more like them).

And I think that diversity is what keeps this forum healthy and refreshing.

It takes a Village.

deebatt

I am sorry the link doesn't work for you. I tried it and it works ok for me. I will try to post it here again. Should it not work, either post and copy it or Google the words magnelyfe 10,000 Gauss and you should get several options and prices,

Let me know if you find the info OK

http://www.webvitamins.com/product.aspx ... &term=osmx

sleepyjane wrote:deebatt

I am sorry the link doesn't work for you. I tried it and it works ok for me. I will try to post it here again. Should it not work, either post and copy it or Google the words magnelyfe 10,000 Gauss and you should get several options and prices,

Let me know if you find the info OK

http://www.webvitamins.com/product.aspx ... &term=osmx

thanks Sleepyjane. it worked! unfortunately these wont "work" for me...you see i work with 1.5T and 3T magnets (15000 gauss and 30000 gause) so my "big" magnets will wipe out any of the "therapeutic" ones in the link you gave. After all these years of working with superconducting magnets strong enough to pic up a car I'm finding it hard to wrap my brain cells around the "10000 gauss" magnets worn on the body. I just picture myself wearing them on my wrist and having the kitchen refrigerator pulling across the room to me LOL

It would be helpful in any discussion for a person to differentiate between what they believe and what they know.
A person is free to believe in the tooth fairy, easter bunny, and anything they like.
Some believe with all their being that 72 virgins await them for certain acts.

Others do not believe this.
Regardless of how strong a persons belief or faith is in something , it will always be a belief, not a fact.

When a person makes totally irrational claims of effectiveness of their snake oil, then they should clearly say this is thier belief, not based on anything but what they want to believe.

When a person makes the statement:
Here are the magnets I use with excellent results.
http://www.webvitamins.com/product.aspx ... &term=osmx


Just what is meant that they use it with excellent results.??
How is this determined?
Impossible!!
Reminds me of a posting by a person who reported doing something that seemed to be working fine.

I replied that I had a dog in my back yard I got to keep the elephants out of my back yard and that seemed to be working fine too. Same difference.
Beam me up Scotty

Dear Sharon (parts of this also apply to others)

You cannot know how much your post meant to me. I am feeling so unbelievably attacked on here. Now people are taking to sending messages to my mailbox to attack me further telling me my "mind is totally closed on any reason or logic. I am misled by my intelligence, and I do not differentiate in what I know and what I think or believe." Tomjax, who has insulted me before and it apparently ticked I stood up for myself also let me know my critical thinking skills are frightening and that and that I evidently require no proof in conforming to others thinking" Statements I have made and even my wonderful, brilliant doctor's
statements are called ridiculous.

I saw nothing in the initial forum rules that said the ratio of help to questions would be a certain percentage. First of all, I did try to help others in this post and others. I offered no less than 30 recommendations of alternative and natural treatments for a number of sleep disorders in this thread alone both in the first post of this thread and in others
throughout the thread.

I don't know if the people on here realize that about 98% of the threads on here are very technical primarily discussing different machines, masks, and things of that nature. I saw virtually no thread speaking of natural and alternative helps. Why is it that one thread out of thousands bothers people so much that it is attacked from the start as ridiculous and
ridiculed.

Why can't it stay on the topic it was intended for sharing help along the vein of the title and sitting here in the vast minority one in 5000 posts on allopathetic and technical advice for those who are interested in learning and sharing what they know on this topic.

Aren't there 5000 other points you doubters and haters can post at without coming here to hijack it. What is so upsetting and intimidating about this topic that people come on here and seek to diminish it? I could see if you were a shareholder in cpap machines, a doctor not wanting any competition to your treatments, a drug company maker fearing the loss of 5% of your market, but you are supposed to be fellow sufferers of sleep problems trying to help and share with others and seek advice.

I have been on the same cpap machines for years. I did not even know they made auto pap and auto bipap until about 10 days ago. I have been on the same mask for 10 years. I did not even know there was such a thing as full face mask until a week or so ago. Never heard of
mouth taping. Since nearly all of the threads revolve around technical topics that I know nothing about, how am I supposed to help answer these threads? Just say anything with no knowledge of what I am talking about when different mask or machines are asked for..I know
nothing about interpreting sleep studies etc.

I was so grateful for the kindness I received on my first post "please help I am so desperate" were I felt suicidal to find compassionate people on here since in my own life and family all I receive is rejection and criticism. I was so grateful for the hope I had after 25 years of suffering and new disorders starting to take hold taking me where I didn't want to go. I have had little hope of ever feeling better for so long. I have been through so many traumas (rapes, 20 wrecks, cancer, surgery, deaths, etc) for so long. I saw a future of no hope..colored further in addition to the problems that never stopped, by severe clinical depression I have lived with well over 20 years. People would tell me things will get better, but they never did. And that and the shaded way, clinical depression makes one feel is very hard on one's hope

I found hope here but now find so much criticism and meanness. It makes me want to leave as I am sure those who dislike me would like, and yet hope of maybe getting better keep me here. I cannot give up when I m getting closer to finally feeling better.

My expertise is not on various technical and cpap machines and others topics so roundly discussed on this forum, but on alternative health. I have shared and will share the area I am familiar with, I actually was so grateful for the help I got, I wanted to help others and went looking for threads to answer but after through going through some pages of them really saw none I was qualified to answer. On the one where someone's husband was not getting treatment, I saw one where I could use my experience and words to help and I did so. But I wonder how many other people ask questions and answer few who are criticized for it. For heaven's sake, I have only been on here less than 2 weeks. And I help plenty of people in real life.

If one read my initial post listed above, one of the things that threw me into a tailspin of considering suicide for the first time in many years was the cruelty and meanness of having 5 family members all criticize me behind my back and having it get back to me or overhearing it at my aunt's funeral. This caused me upset and I would up staying up two days with no sleep and talking to suicide prevention 8 hours total over the course of that week due to duress.

I have been told for years by my children to stop going back to empty wells hoping for some caring in my family after years of constant criticisms despite achievements in life on my part. I can't seem to do anything right by my mom. (I am sure my openness will give people knew fodder to attempt to hurt me with).

But I did not think it was right to "write off my family" as my kids suggested and kept forgiving due to my beliefs. However, something happened to me in the last weeks. I decided I will NOT take it anymore. I am sick of constant criticism and I will be self protective from now on and not allow people to hurt me without a word to defend myself. I decided that I had tried more than most people would as far as family and I would reduce contact with my family, be as self nurturing as I am other nurturing and I also felt motivation for the first time in a long time to try to change my life for the better in order to help myself and also others.

Due to this, I stuck up for myself and my believes when these strangers starting trying to kick me and this thread. Apparently, that had earned me some enemies who enjoy trying to upset me by their comments,

Can I say that have not succeeded ..no I cannot. In fact, when beginning this letter I was crying quite a bit. I cannot make a highly sensitive person who is emotional into a person who brushes everything off like my son is able too. But I will not leave this forum when I have new hope. I will not stop posting things on the alternative line that might help someone someday.

I know that there are plenty of people who believe in and use alternative health and who see the dangers in some of the allopathetic treatments and who question their doctors rather than blindly following them. I know there are smart people who believe in the results of alternative/natural cures because I have met them...people cured of cancer who were given no hope and I have witnessed the results in myself and others I have advised.


Sharon, I thank you for your kind compassion..it was so welcome and helped me when I am being so roundly criticized for posting and for seeking help and I do know there are people on here who do not pick apart everything someone says, go out of their way to be mean, tries to demean them by slandering their intelligence and pointing out errors (which are not any more than others do) in attempts to try to demean them. who don't keep track of one's posts and their ratios of asking to telling, tell them they have no ability to learn, people who though they have lived it themselves can find no compassion for another sufferer whose sleep deprivation is affecting their cognitive ability and emotions, and so forth.

People who they themselves express no open-mindedness and them mirror their deficits in you by saying you have no open-mindedness or willingness to learn are blind to their hypocrasy.

In light of all this, you, Sharon, stand out as a beacon of hope that kindness is not dead in an era where it is fast diminishing.
I thank you for your clear and compelling statements below (quote) if you are not someone who suffers from all of the possible side effects listed on a prescription medication, or someone who has had a trusted MD steer you dangerously wrong, you can't know how important it can feel to find something else to address your problems...if you are one of the many people who blindly trust their Md's and take whatever is prescribed for you regardless of the possible long term effects, then you wouldn't
understand how demoralizing it can be to be patronized and condescended to by a member of the medical community...i don't know what it's like in the u.s. but here in Ontario there is
a growing realization that what we naively call 'health care' is truly 'sick care' because that's where all the money is...i know there are many medical professionals out there who care and who do their job (my sleep doc is one of them, thank goodness), but i know there are just as many pill pushers who whip out their prescription pads at the drop of a hat.(end quote). How wonderfully you expressed them on behalf of so many who can identify with your excellebnt statements.

Finally, although I do not think the people who feel the need to be unkind from someone so obviously in need of a little kindness and compassion will hear what you are saying and continue to be blind to their antagonistic stance and less than kind words will here, you, I certainly appreciate you seeing it and trying to jog others to ask themselves why they are relentlessly attacking me and why they feel the need to kick someone when they are down.

Your post really helped me and I know someday God will let us know how our actions and words impacted and affected those around us and I believe the smallest act of kindness will not go unpaid in that day. Bless you. You were very kind and I can't tell you how much it meant. I have had more criticism than I can bear in life and it is hard to come to a place of hope and support and feel people are trying to chase you away and needing help so badly, you must stay and cry in order to get it.

the above psot by guest was made by me (sleepyjane) but I apparently was not logged in and I can't delete and repost under my name to clear that up. Thanks again Sharon.

Snoredg,


Thanks for your attempts at levity to lighten this thread up a bit.

Rooster,

If you feel I deserve criticism for my ratio of asking to help, please see my response to Sharon where I address this (under guest). I thought this forum was a place to get answers which I am attempting to do. If I know it all,l why am I so grateful for help I have received and why do I continually say how I learned more on here in my less than 2 weeks on than in all my years of diagnosis (15 years) and from doctors combined.

A person who knew it all would not seek help by asking questions nor apply and assimilate and mention things hs has learned on here when speaking to her doctor and provioder in the attempt to feel better.

I am sure nothing I can say can change your animosity towards me so I won't try.

I do not see the necessity to answer questions I do not know the answer to, by my own admission, just to change the soc-alled ratio you listed in order to satisfy your requirements for being on this thread (although I am certain you do not analyze people you don't hate's ratio of asking to informing).

I answer things I do know and one thing I am familar with its alternative health and I have not only started this thread for the purpose of helping others and allowing other people to share and thus help others but also listed at least 30 or more things and links that might help others in this thread.

Should it be necessary, I can recap them and relist them in one post, so you may count them up with more ease.