Re: UARS/FL/RERA (PLMS): My Sleeping Drawbacks
Posted: Mon Sep 21, 2020 12:58 pm
Hi, BIPAPers
_ well, guys, today I am completing a 630-day journey on APAP (first 1.5 months) and VAUTO (since then). Some five days ago, I posted a summary of my historic and some thouthgs, elsewhere in another pertinent thread above;
_ After my last post in this thread some things undergone some changes in my therapy, which I would like to share and question on similar things out there:
(A) first, my diagnose on UARS, PLMS and RLS, as mentioned above, has changed a little. UARS (even with no flagged RERA, FL always zero in p95 column, and maximum < 0,1 on maximum column) keep going a significant drawback on some 10-15% of my sleep nights. UARS looks a very-very tough thing to tame! I have realized how sensitive we, UARS people, are: herein below I am attaching one deleterious example of Unflagged RERA of last night (I have tons of prior examples of this) at 3:07 hr. A less-than-50% flat top flow reduction (sometimes I call this quasi-hypopnea), simultaneous with stuck-dream/nightmare, partial suffocation, was enough to wake me up and go on for some two hours awake (sometimes worries take advantage of this RERA and attack for so long). Such flow reductions and arousals/awakenings/wakeup always occur either during or interrupting REM sleep;
(A.1): for a quite some time I have been trying a pressure-based solution for such subltle FL/quasi-hypopneas, followed by arousals/wake-ups, either changing IPAP, EPAP or PS. Though, never went on IPAP > 13.0 and EPAP >7.8 (current value);
At the very beggining of this year I started all over again with a new self-titration as per Resmed guide:
(A.2): minor OSA terminated at some EPAP 7.2/7.6. Then, as per this guide, I tried to tame RERA and quasi-hypopneas by increasing IPAP up 13.2; it did not work. Increasing leaks leaks on my FFM eventually prevented me froom going higher;
(A.3): right these days I am trying increasing EPAP (influenced by readings on this Forum) and see what happens, while keeping PS:4.0.I am currently on 11.8/7.8/4.0.
Would anybody have analog experiences? Increasing EPAP is indeed promising? If so, I could eventually try harder on taming my leaks when above around 12.4/12.6 (it appears kind of threshold for my FFM, and I find difficult to think on another mask, other than FFM f20).
(B) second, concerning PLMS, I have found out this would not be actually a major drawback for my sleep. I do awake sometimes during NREM, without any respiratory effort, but usually go back to sleep after maximum some 5 minutes. More serious though used to be RLS after waking up, which very often led me close to craziness. Fortunately, I have been facing very sactisfatory results with CBD oil (started on
August, 13th, this year; only 7mg daily thus far). Combined with so-called Energy Techniques (EFT and others), I think I am OK from this side.
all the best
_ well, guys, today I am completing a 630-day journey on APAP (first 1.5 months) and VAUTO (since then). Some five days ago, I posted a summary of my historic and some thouthgs, elsewhere in another pertinent thread above;
_ After my last post in this thread some things undergone some changes in my therapy, which I would like to share and question on similar things out there:
(A) first, my diagnose on UARS, PLMS and RLS, as mentioned above, has changed a little. UARS (even with no flagged RERA, FL always zero in p95 column, and maximum < 0,1 on maximum column) keep going a significant drawback on some 10-15% of my sleep nights. UARS looks a very-very tough thing to tame! I have realized how sensitive we, UARS people, are: herein below I am attaching one deleterious example of Unflagged RERA of last night (I have tons of prior examples of this) at 3:07 hr. A less-than-50% flat top flow reduction (sometimes I call this quasi-hypopnea), simultaneous with stuck-dream/nightmare, partial suffocation, was enough to wake me up and go on for some two hours awake (sometimes worries take advantage of this RERA and attack for so long). Such flow reductions and arousals/awakenings/wakeup always occur either during or interrupting REM sleep;
(A.1): for a quite some time I have been trying a pressure-based solution for such subltle FL/quasi-hypopneas, followed by arousals/wake-ups, either changing IPAP, EPAP or PS. Though, never went on IPAP > 13.0 and EPAP >7.8 (current value);
At the very beggining of this year I started all over again with a new self-titration as per Resmed guide:
(A.2): minor OSA terminated at some EPAP 7.2/7.6. Then, as per this guide, I tried to tame RERA and quasi-hypopneas by increasing IPAP up 13.2; it did not work. Increasing leaks leaks on my FFM eventually prevented me froom going higher;
(A.3): right these days I am trying increasing EPAP (influenced by readings on this Forum) and see what happens, while keeping PS:4.0.I am currently on 11.8/7.8/4.0.
Would anybody have analog experiences? Increasing EPAP is indeed promising? If so, I could eventually try harder on taming my leaks when above around 12.4/12.6 (it appears kind of threshold for my FFM, and I find difficult to think on another mask, other than FFM f20).
(B) second, concerning PLMS, I have found out this would not be actually a major drawback for my sleep. I do awake sometimes during NREM, without any respiratory effort, but usually go back to sleep after maximum some 5 minutes. More serious though used to be RLS after waking up, which very often led me close to craziness. Fortunately, I have been facing very sactisfatory results with CBD oil (started on
August, 13th, this year; only 7mg daily thus far). Combined with so-called Energy Techniques (EFT and others), I think I am OK from this side.
all the best