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Re: UARS/FL/RERA (PLMS): My Sleeping Drawbacks

Posted: Mon Sep 21, 2020 12:58 pm
by mper!?
Hi, BIPAPers
_ well, guys, today I am completing a 630-day journey on APAP (first 1.5 months) and VAUTO (since then). Some five days ago, I posted a summary of my historic and some thouthgs, elsewhere in another pertinent thread above;

_ After my last post in this thread some things undergone some changes in my therapy, which I would like to share and question on similar things out there:

(A) first, my diagnose on UARS, PLMS and RLS, as mentioned above, has changed a little. UARS (even with no flagged RERA, FL always zero in p95 column, and maximum < 0,1 on maximum column) keep going a significant drawback on some 10-15% of my sleep nights. UARS looks a very-very tough thing to tame! I have realized how sensitive we, UARS people, are: herein below I am attaching one deleterious example of Unflagged RERA of last night (I have tons of prior examples of this) at 3:07 hr. A less-than-50% flat top flow reduction (sometimes I call this quasi-hypopnea), simultaneous with stuck-dream/nightmare, partial suffocation, was enough to wake me up and go on for some two hours awake (sometimes worries take advantage of this RERA and attack for so long). Such flow reductions and arousals/awakenings/wakeup always occur either during or interrupting REM sleep;
(A.1): for a quite some time I have been trying a pressure-based solution for such subltle FL/quasi-hypopneas, followed by arousals/wake-ups, either changing IPAP, EPAP or PS. Though, never went on IPAP > 13.0 and EPAP >7.8 (current value);
At the very beggining of this year I started all over again with a new self-titration as per Resmed guide:
(A.2): minor OSA terminated at some EPAP 7.2/7.6. Then, as per this guide, I tried to tame RERA and quasi-hypopneas by increasing IPAP up 13.2; it did not work. Increasing leaks leaks on my FFM eventually prevented me froom going higher;
(A.3): right these days I am trying increasing EPAP (influenced by readings on this Forum) and see what happens, while keeping PS:4.0.I am currently on 11.8/7.8/4.0.

Would anybody have analog experiences? Increasing EPAP is indeed promising? If so, I could eventually try harder on taming my leaks when above around 12.4/12.6 (it appears kind of threshold for my FFM, and I find difficult to think on another mask, other than FFM f20).

(B) second, concerning PLMS, I have found out this would not be actually a major drawback for my sleep. I do awake sometimes during NREM, without any respiratory effort, but usually go back to sleep after maximum some 5 minutes. More serious though used to be RLS after waking up, which very often led me close to craziness. Fortunately, I have been facing very sactisfatory results with CBD oil (started on
August, 13th, this year; only 7mg daily thus far). Combined with so-called Energy Techniques (EFT and others), I think I am OK from this side.

all the best

Re: UARS/FL/RERA (PLMS): My Sleeping Drawbacks

Posted: Tue Sep 29, 2020 7:01 am
by mper!?
Hi, dear folks_

_ as you might know I am on this OSCAR/BPAP realms for some 2.5 years, trying to tame an UARS and RLS;

_ Still learning a great deal, even though, no doubt for me, I consider I have success on my therapy at a certain level of 80-90% most of the time. However, I have been experiencing kind of unusall change of sleep pattern for last couple of months, which I would like to share and ask for similar experiences and insights:

_ Intrigued thing is: from somewhere on August 10th, before I started up CBD oil for RLS (August 13th and slightly later) my sleep pattern have changed from kind of (1) "not planned, segmented-later-to-get up sleep", in two phases (first phase followed by readings, meditations, energy therapies) to more (2) "solid 4.5-6 hrs, higher sleep effiency" (please, see attached);

_matters of the fact (taking into account my How You Feel daily index; no intention to be precised here, but it works by averaging some 6 times a day) is that I have been feeling worse with latter sleep pattern;

_ I am kind of stuck on what sleep pattern to pursue, that is, would be better keep on trying to get up later on (2), or, weird decision, get back to (1) "segmented two-phase style", stopping CBD oil, and so on. For reason I have not undertood yet, it appears later-than-6:00 morning hour sleep would be crucial for me;

_ worth mentioning that with Clonazepam 0.5mg (up to may, 15th this year), I used to have improved (2) style, with higher How You Feel Index than sometimes happens these later days. I would never return to, though;

_ quite recently I researched on the so-called "segmented sleep" (you mightg want to google this: https://www.mattressnerd.com/polyphasic ... ted-sleep/). There are claims it could be more natural and would work better, at least used to be so in pre-industrial times.

many thanks