CPAPtalk.com

zonker wrote: ↑

Tue Jun 04, 2019 5:44 pm

if your study had come back with an ahi of ZERO, then you wouldn't have sleep apnea.

I wonder if he knows how to read a sleep study summary? I wonder if he knows how many minutes he slept (or didn't sleep) in each sleep stage? I wonder if he knows false negatives are not uncommon? I wonder if he even has a copy of the study summary?

Hopefully, he has a bed partner who will tell him if things still don't sound right.

ChicagoGranny wrote: ↑

Tue Jun 04, 2019 6:46 pm

zonker wrote: ↑

Tue Jun 04, 2019 5:44 pm

if your study had come back with an ahi of ZERO, then you wouldn't have sleep apnea.

I wonder if he knows how to read a sleep study summary? I wonder if he knows how many minutes he slept (or didn't sleep) in each sleep stage? I wonder if he knows false negatives are not uncommon? I wonder if he even has a copy of the study summary?

Hopefully, he has a bed partner who will tell him if things still don't sound right.

don't forget, he's been on cpap for ten years!

which means something, i guess.

mph143 wrote: ↑

Tue Jun 04, 2019 5:06 pm

Well, I got my sleep study back and my AHI was at 2, In other words, i no longer have sleep apnea. The CPAP machine WAS causing all of my symptoms as I thought. So to all of you struggling with sleep apnea, I wish you well...except for that one cretin on here that was sure it wasn’t my CPAP and I have weird symptoms, ....xxx profanity removed by moderator...

Wow. I never had somebody call me a cretin or feel the need to swear about my comments. I try to be nice and really didn't think I said anything insulting. Nobody else here has had issues with "getting dizzy/lightheaded spells, headaches, loss of balance" since losing weight. The problems didn't exist on cpap before weight loss, so no idea why it would suddenly be the cpap causing it. If it were cpap related, I would think it would have come up a few times in the last 10-20 years with so many people on this forum. If that were truly the problem, then none of us here would be able to help you. And we did want to help you.

Anyway, glad to hear you no longer have sleep apnea. (I do hope that sleep study was without the cpap.)

I honestly hope you have continued good health and the sleep apnea does not return.

zoocrewphoto wrote: ↑

Wed Jun 05, 2019 1:39 am

mph143 wrote: ↑

Tue Jun 04, 2019 5:06 pm

Well, I got my sleep study back and my AHI was at 2, In other words, i no longer have sleep apnea. The CPAP machine WAS causing all of my symptoms as I thought. So to all of you struggling with sleep apnea, I wish you well...except for that one cretin on here that was sure it wasn’t my CPAP and I have weird symptoms, ....xxx profanity removed by moderator...

Wow. I never had somebody call me a cretin or feel the need to swear about my comments. I try to be nice and really didn't think I said anything insulting. Nobody else here has had issues with "getting dizzy/lightheaded spells, headaches, loss of balance" since losing weight. The problems didn't exist on cpap before weight loss, so no idea why it would suddenly be the cpap causing it. If it were cpap related, I would think it would have come up a few times in the last 10-20 years with so many people on this forum. If that were truly the problem, then none of us here would be able to help you. And we did want to help you.

Anyway, glad to hear you no longer have sleep apnea. (I do hope that sleep study was without the cpap.)

I honestly hope you have continued good health and the sleep apnea does not return.

Mr zippy mph was *probably cursing at me, I'd imagine Though, I believe there were several 'cretins' that thought it had nothing to do with the cpap... *shrugs* don't care at this point.

palerider wrote: ↑

Wed Jun 05, 2019 1:43 am

Mr zippy mph was *probably cursing at me, I'd imagine Though, I believe there were several 'cretins' that thought it had nothing to do with the cpap... *shrugs* don't care at this point.
[/quote]




are you calling me a cretin?

zonker wrote: ↑

Wed Jun 05, 2019 11:42 am

are you calling me a cretin?

late 18th century: from French crétin, from Swiss French crestin ‘Christian’ (from Latin Christianus ), here used to mean ‘human being’, apparently as a reminder that, though deformed, cretins were human and not beasts.

ChicagoGranny wrote: ↑

Wed Jun 05, 2019 11:46 am

zonker wrote: ↑

Wed Jun 05, 2019 11:42 am

are you calling me a cretin?

late 18th century: from French crétin, from Swiss French crestin ‘Christian’ (from Latin Christianus ), here used to mean ‘human being’, apparently as a reminder that, though deformed, cretins were human and not beasts.

are you calling me a christian?

Whether you know it or not, you are.

zonker wrote: ↑

Wed Jun 05, 2019 11:42 am

palerider wrote: ↑

Wed Jun 05, 2019 1:43 am

Mr zippy mph was *probably cursing at me, I'd imagine Though, I believe there were several 'cretins' that thought it had nothing to do with the cpap... *shrugs* don't care at this point.

squint.gif
are you calling me a cretin?

If I WERE to call anyone a cretin, it wouldn't be you, it would be the OP... but, no, I'm not calling anybody a cretin.

If someone without OSA uses PAP, that generally does not cause dizziness, if they are otherwise in good health. Anecdotal assumptions notwithstanding.

Losing that much weight that quickly? It takes the body a while to adjust to that. Sometimes a little dizziness that is temporary can be a good sign of improved health. But of course a doc should always be in on any symptom that might be pointing to something more insidious than that.

A PSG done to see whether discontinuation of CPAP may be a good idea should occur several days after discontinuing PAP, since there can be some residual effect from using PAP in that it can take a while for fluid to build back up in some patients in certain areas of the upper airway, in my opinion.

The problem for some people is that once a brain is rewired to be touchy about airway status during years of sleep-disordered breathing, all it might take is a cold or two, some allergy symptoms, or simple passage of time to start ruining the person's sleep again. It is unfortunate how that works, but it is what it is, at least for some. As I understand it, anyway.

Be careful.

Personally, I would continue to use PAP just for the humidity and filtering overnight, and for just-in-case situations, even if my AHI was usually low without it. But I'm odd that way. Sort of a belt and suspenders sort of guy.

That's so awesome that your sleep test showed you no longer need to treat your apnea! Good job with the weight loss.

I would suggest you hang on to your CPAP though. The stats for KEEPING weight off are pretty dismal. Hopefully you will be one who does, maybe looking at the CPAP in your closet is good motivation to keep the weight in check.

mph143 wrote: ↑

Sat May 25, 2019 8:43 pm

the pressure was screwing up your inner ears, throwing off your balance/ lightheaded etc.

Yes I feel lightheaded dizzy off-balance on cpap. I stopped using it and symptoms going away. There seems to be quite a lot of similar posts. Not sure why it's ignored.

omar wrote: ↑

Fri Aug 16, 2019 12:47 pm

mph143 wrote: ↑

Sat May 25, 2019 8:43 pm

the pressure was screwing up your inner ears, throwing off your balance/ lightheaded etc.

Yes I feel lightheaded dizzy off-balance on cpap. I stopped using it and symptoms going away. There seems to be quite a lot of similar posts. Not sure why it's ignored.

Just because some ignorant fool posts something doesn't mean it's true, or that anyone should pay attention to it.

I've lost 35lbs since January and before that roughly 20lbs after starting cpap. I have had some wicked dizzy spells within that time though nothing recently. It was usually spurred by crawling under a vehicle and looking up at what I was working on and boy did I go for a ride! Then it would pass but still kinda lingered for a few days, every now and then I'd feel a little wonky. Being due to weight loss though, I never got that sense. I figured blood sugar and not having eaten, though I am not (or wasn't b4) hypoglycemic.

mph143 wrote: ↑

Sat May 25, 2019 11:04 am

I lost 50lbs down to my goal weight and I noticed I am getting dizzy/lightheaded spells, headaches, loss of balance. I have gone to every doctor there is, cardiologist, ENT, emergency room..etc etc all turned out fine. I stopped using my CPAP and the symptoms have almost disappeared. I did another sleep study and I am awaiting results. Has anybody else had a similar experience? I am hoping my newest study will reveal that my sleep apnea is cured or at least I can get a oral appliance. I have been faithfully using my CPAP machine for about 10 years and it is a pain in the ass. Thanks

WOW. My experience is so similar to this, that i had to register on this forum just to respond to it. Here's my info: i'm 55, currently weigh 180 lbs. A year ago, i weighed 240. I know that doesn't sound like a lot, but there's more to the story, i have pulmonary sarcoidosis, and have had it since i was 24. Presently i have about 71% of 'normal' lung capacity, due to the scarring that the disease has done over the years. The difficulty in breathing has limited my physical activity, so that maintaining a healthy weight has always been nearly impossible for me, and being overweight made CPAP necessary. CPAP became necessary for me in 2015, only 7 lbs of pressure, and i used it faithfully every night, 7-9 hours a night, always with no heat and no distilled water. In March 2020 i decided to give keto a try, since it's a diet program that doesn't require exercise. It turned out to be very successful for me. It was around November 2020 that i reached 60 lbs weight loss and shifted my focus from losing weight to maintaining weight. In December, for some reason the winter was especially dry and CPAP was drying out my nose, so for the first time ever i decide to start adding distilled water. by mid-February i start feeling the symptoms that mph143 mentions - light-headed, headache on the right side of my head. These started out to be periodic throughout the day, but within a week they were constant, and only got worse. Pressure behind my right eye, and at the back of my neck, and horrible pain for which the word 'headache' is totally inadequate. I went to the emergency room twice, thinking i was literally going to die from the pressure in my head. I have seen an ENT and a neurologist, and had an MRI of my brain (which revealed nothing). The neuro has prescribed Topamax, which i am taking daily. Prior to this episode my blood pressure was good - it had previously been a problem when i was overweight, but after losing 60 lbs, i have gone from taking 3 BP medications a day to taking only 1, and my BP is usually right on 120/80 or a little below, w/ pulse in the 70s and pulse-ox right at 98 or 99. Your BP goes up with pain, and i have recently seen mine as high as 170/115 when the head pain was at its worst.

it never occurred to me that this might be a CPAP issue. I recently decided to try sleeping without CPAP, only because the quality of my sleep was never as good as i would like, and also because my dog is scared of the CPAP equipment and always leaves the room when i put it on, so to keep her next to me, i tried sleeping without it a few nights. I noticed that i felt a little better, after nine weeks of real misery, but still didn't connect the dots. After 3 nights with no CPAP, i used the CPAP on the 4th night. The next morning was some of the worst pain of this whole experience, lasting all day, and it finally occurred to me that the pain was connected to CPAP. It's been three more nights since then, without CPAP, and i'm really starting to feel great again.

I have no idea what this is, or why this pain might be related to CPAP or to weight loss. Maybe it's just a coincidence. But the similarities are enough to make me want to join the discussion. I have another visit with the neurologist in 10 days, and i will of course be sure to mention this to him. Also, i have another sleep study scheduled in a couple of months. Considering how good i feel without CPAP, that study may not be necessary.