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Posted: Mon Feb 19, 2007 6:21 pm
by Linda3032
Rbud, I know this is all too overwhelming for you. At this point, please register, find out what equipment (machine and mask) he is using, and then list that in your profile.
Tell the poor lad to hang in there. Help is on the way. You too.
Posted: Mon Feb 19, 2007 6:42 pm
by snorin747
I was initially diagnosed with sleep apnea about 14 years ago. They labeled it obstructive sleep apnea. I had surgery, I was in my mid30's, it was not fun. Although it did help. But some 14 years later, I am in the same boat. Please follow up with the ENT doctors.
-747
Posted: Mon Feb 19, 2007 7:00 pm
by Snoredog
snorin747 wrote:I was initially diagnosed with sleep apnea about 14 years ago. They labeled it obstructive sleep apnea. I had surgery, I was in my mid30's, it was not fun. Although it did help. But some 14 years later, I am in the same boat. Please follow up with the ENT doctors.
-747
My brother who is 14 months older than I had his tonsils taken out as a kid, he doesn't have OSA (he had a PSG after I had a stroke from it). So I think there are a lot of benefits to that surgery when you are younger which will help when you get later in life.
I would even consider the MMA advancement procedure based upon his age it will only impact him harder as he gets older.
Posted: Mon Feb 19, 2007 8:35 pm
by blarg
Just wanted to let you know I understand what it's like to be 14 with OSA. In 5th grade I slept through an entire Saturday.
The auto he currently has can be set to a fixed pressure, but more than likely, the minimum pressure just needs to be increased. Was he titrated?
sleep apnea in 14 yr old
Posted: Tue Feb 20, 2007 11:42 am
by rbud
No, I don't recall anything about "titrated". But the mouth open thing may be the problem. He does only have the nasal mask. I will register and get back with the information. We are actually changing machines today to a preset level of pressure, maybe 8 or 9. We'll see how that works. Thanks to all, it has helped. Talk to you all soon.
Re: sleep apnea in 14 yr old
Posted: Tue Feb 20, 2007 12:00 pm
by Wulfman
rbud wrote:No, I don't recall anything about "titrated". But the mouth open thing may be the problem. He does only have the nasal mask. I will register and get back with the information. We are actually changing machines today to a preset level of pressure, maybe 8 or 9. We'll see how that works. Thanks to all, it has helped. Talk to you all soon.
Titrated or titration refers to a determined pressure setting (like 8 or 9) based on pressures tested during a sleep study OR using an "Auto" (which is short for auto-titrating CPAP)......which is what they were attempting to do with your son by letting him use that machine with a range or pressure.....trying to zero in on the best pressure for him. Unfortunately, sometimes things don't always go as planned in those "at-home titrations" (like mouth-leaking) and getting the machine set up properly.
If the place you're getting this equipment from is heavily into Respironics (REMstar) machines, I would suggest asking them for a machine that records nightly statistics so his therapy can be monitored with software.
The Respironics machines that record statistics are:
REMstar Pro 2 w/C-Flex
REMstar M Series Pro (w/C-Flex)
REMstar Auto w/C-FLex)
REMstar M Series Auto (w/C-Flex)
These machines all have "Smart cards" that store the nightly statistics and can be downloaded with Encore Pro software by way of a card reader. (like the following link)
https://www.cpap.com/productpage-bundle ... undle.html
Best wishes,
Den