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Posted: Tue Apr 03, 2007 8:37 pm
by djdixie
James, I'm fairly new to this board so I'm not familiar with your history, but in reading just this thread, I'm again reminded just how much life has changed in our house since my husband found out what was causing his sinus trouble. Please forgive me if this possibility has already been discussed.

Larry had sinus problems for years and would keep a sinus infection for months despite numerous antibiotics. He would literally have a sinus infection 9 months out of 12. He'd finally have sinus surgery which would leave him infection free for a couple of months and then the cycle would begin again. He had 5 sinus surgeries in all over the course of 6-8 years. We went to several different doctors including a highly regarded specialist at the University of Virginia Medical Center, who was not able to give us any new insight. Larry is also diabetic which, of course, made the whole process that much harder. It was a real struggle for him to just do routine tasks. Many days he would come home from work and just lay down on the couch until time for bed. He felt awful more days than not.

About 6 years ago, our 19 year old daughter started having chronic sinus problems and we were told she needed surgery. We desperately did not want her to start on the same merry go round and decided, as a last resort, to see a nutritionist. She put Meg on an elimination diet to see if food allergies might be part of the problem. Larry decided to do the elimination diet with her to see if it helped him. After about 2-3 weeks Larry started feeling better. He found out he has numerous food allergies (wheat and corn at the top of the list) but he was thrilled with the news! He has only had 2 sinus infections in the last 6 years and both of those responded quickly to antibiotics. If he eats drinks a coke (sweetened with corn syrup), he can feel his sinuses getting thick and painful almost immediately.

Larry had previously had skin tests for allergies that did not show up either wheat or corn. For reasons I won't bore you with, the elimination diet is much more accurate than the skin tests.

The big question to us is, why was this not even mentioned by anyone as a possibility?? To say that this changed his life in a BIG way is no exaggeration. And it's all about what he eats!! He could have avoided all those surgeries and had a normal life for all those years! Just by not eating certain foods! This should be the very first thing the doctors suggest!

Our daughter also found out she had food allergies. She's allergic to red meat! Four days after cutting that out of her diet, she was headache free for the first time in close to 6 months.

Okay - I know this is probably more information than you ever wanted to know, but if it can make the same difference to someone else that it has made to Larry, I'll shout it from my roof!

Interesting side note-Anyone familiar with J.J. Redick, the college basketball superstar? Our nutritionist is his mom!


Posted: Tue Apr 03, 2007 9:17 pm
by jskinner
Slinky wrote: Looks like you don't even need CPAP given last night's sats!!!! What the devil were the stats during your evaluation study that they decided you need CPAP???
My sleep study numbers where AHI 55.2


Posted: Tue Apr 03, 2007 9:32 pm
by christinequilts
djdixie wrote:He found out he has numerous food allergies (wheat and corn at the top of the list) but he was thrilled with the news!

Poor James is going to feel ganged up on, I just PMed with my experience with extreme corn allergy a moment ago-lol. James, no conspiracy here- just coincidence

dj- If you ever want to talk about dealing with a corn allergy, let me know. I was diagnosed 10 years ago, but only told to avoid major source of corn and that highly processed corn derivatives didn't have any corn protein left to cause a reaction. Sounded great and I wish I was true for me, but a small amount of maltodextrin & within hours I have body wide swelling, most noticeably in my feet & ankles...I still can't figure out how it can change my weight by 10+ within 24 hours. I got 'corned' at Target a couple months when they were popping fresh popcorn, to the point it affected my breathing for several hours and now have to carry an EpiPen at all times.


Posted: Tue Apr 03, 2007 9:40 pm
by SleepySandy
christinequilts wrote:I got 'corned' at Target a couple months when they were popping fresh popcorn, to the point it affected my breathing for several hours
Wow, Christine. What do you do now? Do you avoid Target? Leave if they're popping popcorn? Send a scout in ahead of you to see if there's a popcorn smell?

I imagine you avoid movie theaters...

That must be so hard to live with.

Posted: Wed Apr 04, 2007 6:54 am
by Slinky
Whoops, color me red-faced, James. I'm so used to COPD. Musta been thinking in COPD mode rather than OSA mode. Duh! Good luck w/the ENT today! Maybe a light bulb will come on and he'll pull an answer out of the clear blue sky. (Well, we can always hope).

can you stand one more post on allergies?

Posted: Wed Apr 04, 2007 8:42 am
by girlsaylor
James, I'll be thinking of you today. Will look for your update.

As to the allergies, I have a similar allergy story, tho my symptoms are different.

Due to my many medical issues, and several diets I've been handed by well-meaning, but very busy specialists, I went to a nutritionist to try and sort them all out. She came up with a very strict dietary plan, specifying exactly what time to eat, what to eat, and how much to eat. At the next visit, she expanded the food choices.

Now, I am in compliance (most of the time) with the recommended dietary guidelines for GERD, high blood pressure, high cholesterol, diverticulosis, and the list goes on and on. Basically, I eat no canned or frozen foods (not hard to avoid frozen food as I live without a freezer on a boat). I eat only fresh fruits and veggies, usually raw, for maximum fiber and vitamins. Red meat is restricted as well. I have switched to raw unprocessed sugar when I have sugar at all; also switched to organic milk and eggs, which taste so much better in addition to being better for you.

The hoped-for benefits included weight loss, which is an ongoing goal. But as a side benefit, my skin cleared up. I mean, I've been on every acne treatment known to mankind, from the antibiotics, to the facial scrubs, to the benzoyl peroxide creams, to even 2 rounds of accutane treatment years back. Here it turns out I cannot tolerate food additives. We haven't narrowed that one down by an elimination diet, and I'm not sure we'll even go there. I've gone from the teenage acne to adult acne to only an occasional small blemish. Felt odd to have breakouts and be a grandma, believe me. But now, my skin is basically clear! I couldn't ask for a better outlook on life, from a clear face. I'm no longer feeling like I need to have my hands up covering the latest blemishes. I can look in the mirror and see clear skin!

Just wondering if diet could help you as well....

girlsaylor

Posted: Wed Apr 04, 2007 9:19 am
by jskinner
Had my visit with the ENT this morning. Was a bit worried that my nasal swelling would not be too bad since I had not used CPAP the day before. I used CPAP right up until the time of the appointment today and then drove there just in time.

His file on me was out for dictation so I had to brief in on my situation from the beginning. This time he used a decongestant to remove all the swelling in my nose before inspecting it. He said that both of my inferior turbinate where large and also again mentioned my slightly deviated septum.

The thought that I should start with surgery to address the nasal issues and then if that didn't help only then consider surgeries to improve the OSA. So he has scheduled me for surgery for May 10th. This will be to straiten my septum (Septoplasty) and to perform a turbinate reduction.

I'm a bit nervous about it all at this point. In particular about the turbinate reduction. In some ways it seems to me like treating a symptom rather than the problem. Second and more concerning is the slim possibility of creating Empty Nose Syndrome (http://emptynosesyndrome.org/ens.html)

Anyway something has to be done so at least now some definitive actions are being taken. Is anyone has had one or both of these operations I would like to hear from them. In particular if you had any problems or regrets.


Posted: Wed Apr 04, 2007 9:36 am
by frete50
I truly hope this helps with all your medical problems. Good luck with your surgery.

Becky

Posted: Wed Apr 04, 2007 9:45 am
by Wulfman
jskinner wrote:I'm a bit nervous about it all at this point. In particular about the turbinate reduction. In some ways it seems to me like treating a symptom rather than the problem. Second and more concerning is the slim possibility of creating Empty Nose Syndrome (http://emptynosesyndrome.org/ens.html)

Anyway something has to be done so at least now some definitive actions are being taken. Is anyone has had one or both of these operations I would like to hear from them. In particular if you had any problems or regrets.
I don't know if you can get hold of Michael Jackson (aka. "The Gloved One") to find out what happened there, but I would consider his an EXTREME case.

Seriously though, good luck with whatever they're going to do to you.

Best wishes,

Den

Posted: Fri Apr 06, 2007 12:10 am
by MLefholtz
jskinner wrote: I'm a bit nervous about it all at this point. In particular about the turbinate reduction. In some ways it seems to me like treating a symptom rather than the problem. Second and more concerning is the slim possibility of creating Empty Nose Syndrome (http://emptynosesyndrome.org/ens.html)

Anyway something has to be done so at least now some definitive actions are being taken. Is anyone has had one or both of these operations I would like to hear from them. In particular if you had any problems or regrets.
Hi James. My name is Mike. I joined this forum today to reply to your post. I'm brand new to all this OSA business. Just had my second sleep study last Sunday night. AHI 58. Pressure 9. I am not new to nose problems, however, and want to share my experience.

Man, you've been through a lot of treatment and frustration! I think you are doing the right thing, and I want to encourage you to have hope.

I have had both of these operations, septoplasty and turbinate reduction. I was approaching 40 when, as I've always put it, "I had my nose replumbed". This was in the early 80's, I'm 63 now. Prior to this surgery, I didn't have nearly the involvement with doctors that you have had, although I did have periodic sinus infections. Mostly I just had a great deal of difficulty breathing.

I used the decongestant, Actifed, religiously. Before that I had gone through an addiction to a nose spray called Neosynephrine. I didn't know that I had a deviated septum until I went to my ENT doctor. He indicated that I had a deviated septum, what he called "overgrown" turbinates, and, if I remember correctly, some nasal polyps in there somewhere.

The surgery, itself, was somewhat grizzly. I have no idea if the procedure is similar today, but it seems likely. The first aspect was that I had to be awake, although anaesthetized. It was painless, but bizarre. The surgeon removed cartilage, turbinate and polyp tissue. The last step was to use a sort of spreading plier to break bone so as to enlarge the airways. I still remember hearing the crunch. After this, the entire nose cavity was packed with gauze. I don't remember how long it was before they removed the gauze, but it seems like it was half a day to a day.

When they removed the gauze, I knew I had done the right thing! In spite of everything being raw and swollen, I could breathe better than I had for maybe twenty years. As my nose healed up, my breathing got even better. The improvement remains to this day.

Did it solve all my breathing/sinus problems? No. I had/have pollen and mold allergies. Up until recently, I would still have to periodically take decongestants. However, I have never had to deal with chronically painful sinuses, nor any sinus infections to speak of since this surgery.

To tell you the truth, I had never heard of Empty Nose Syndrome until I read your post, but I did go to the url and read the material thoroughly. While I have no reason to doubt this information, I can truthfully say I have not experienced any of the symptoms listed. Perhaps I was just fortunate to have a good ENT. At any rate, my wife also had this surgery a few years after I did, and she has never suffered from any of these symptoms either (she had less success than I did, experiencing a marked improvement for a year or so, with increased congestion as time went on). Overall, I would say for both my wife and myself, no problems, no regrets.

Well James, I hope this long post is of some use to you. I wish you well. If you have any questions, feel free to post them or PM me.

Sincerely,

Mike