zorki1c wrote: ↑Wed Jul 25, 2018 3:32 pm
...The guy at DME pointed out that both machines send info to both the DME and the clinician so if we mess around with the settings they will know...
Today marks the end of my 2nd full week on APAP. I don't think I've used the same settings more than two nights in a row. I've gone from FFM to Pillows and monkeyed with min & max pressures, Ramp, EPR, Humidity & Temp. Might be more, but that's what comes to mind for now. One night, I was not able to use my machine at all (so, no 4hr min that night)...
I haven't heard a peep from anyone. If they do chime in, I believe it would be for nothing more than checking how it's going, if i need anything and cheering me on. Heck, my very first follow-up appt isn't until some time in October.
I just don't think they are all that overly concerned for several reasons:
- I'm not their first XPAP patient
- I haven't contacted them for anything other than to get a copy of the Rx.
- They likely have some other "squeaky-wheel" patients wanting their attention that keep them busy.
But, in spite of knob-fiddling, if they did contact me they would learn that I've got my pressures pretty much dialed in, I've successfully transitioned to a nasal pillow mask and the only thing I'm trying to tweak now is the humidity level. They would also hear that I'm fairly confident I'm on the right track as compared to before APAP, because I'm able to sleep for longer periods, I can remember my dreams again (and they are recurring), I wake up later in the mornings, I feel like I have more energy and my event count has gone from near 40 per hr to mid to low single digits. I may have been "dial-winging", but they shouldn't complain too much about my results.
On the other hand, had I experimented without learning anything from it and made matters worse, I would probably welcome any advice they may have. I don't see them taking the machine back unless I don't use it at all. It's in their best interests to keep that machine in a billable status with me, rather than sitting on a shelf in inventory.
I don't think you have anything to worry about.
Good Luck with it!
-JD