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Posted: Tue Feb 06, 2007 8:26 pm
by Guest
looking at a dozen long term EncorePro reports saved to PDF, I spend anywhere from 16 seconds to 1 min in Apnea per night most below 20 seconds, leak avg. is nearly double.
There is something major wrong with your treatment. You should ask your doctor for a referral to visit the Stanford University Sleep Center, clearly your disorder and treatment are over your doctors head. A good doctor would have no problems admitting that and giving you the referral.
You should not be spending 30 minutes per night average in Apnea.
Posted: Tue Feb 06, 2007 8:31 pm
by Slinky
Then how come yer functioning so much better than I am, James??? At least you can still do your math!! You must be one tough cookie. Sure hope you get some answers and some RELIEF soon!!
Posted: Tue Feb 06, 2007 9:19 pm
by jskinner
NightHawkeye wrote:
James, have you noticed any pattern to when your long apneas occur?
The only pattern I see is when I have really bad nasal congestion when using a nasal mask or anytime I use the Oracle mask.
Posted: Tue Feb 06, 2007 9:24 pm
by jskinner
CollegeGirl wrote:I'm sure you've also tried showing them "before" and "after" charts, no?
Yep. They look at the charts and say well yes it does seem to be getting worse. However they don't seem to understand how bad the numbers are or the physical ramifications of it.
Honestly I don't think most doctors have a clue how much apneas affect a person or even how dangerous they potentially can be.
Posted: Tue Feb 06, 2007 9:35 pm
by jskinner
Slinky wrote:Jim, your previous picture was so attractive w/such a pleasant smile. If this recent picture is since this nose problem, then for God's sake your doctors should be able to SEE what it is doing to you!!! Your eyes look like two pee holes in the snow.
My family and friends have been really worried about how I look lately. I think maybe its time to change GPs.
Slinky wrote:Can't an ENT (Ear, Nose, Throat) doctor do ANYTHING for you?
I'm seeing a second opinion ENT on Thursday afternoon so I hope he has some ideas.
Slinky wrote:Have you gotten the results back?
Nope. I plan to hound them again tomorrow.
Slinky wrote:Did they do a sensitivity too?
Unknown.
Thanks for you support, its appreciated.
Posted: Tue Feb 06, 2007 10:56 pm
by Guest
your latest pic is an example of what I call the walking dead.
And I would almost be willing to bet you probably feel as bad as you look.
I know you are good with reports and everything, but for a minute, you need to be open to the idea that those apnea you are seeing on those reports can easily be central apnea.
That would explain the way you look (dark circles around eyes) and the way you feel as well as the data seen on your last posted reports.
If not, I'd be seeing a Cardiologist to rule out CHF. At a minimum, that quack doctor you have should get you an overnight recording pulse oximeter.
Both types of apnea will show up on the pulse oximeter.
Posted: Wed Feb 07, 2007 6:24 am
by oldgearhead
I doubt if its any comfort, but the NP I report to, at the sleep lab,
agrees with an earlier post. "Time in apnea is the poor man's SAO2
meter". Note: I have bouts with CHF and a few other heart-related aliments.
Get the oxi as sopon as possible.
Posted: Wed Feb 07, 2007 6:27 am
by Slinky
Amen, on the overnight oximetry!!! It boggles my mind none of your doctor's have thought to order one yet. If I remember correctly you have asked and none have responded by ordering one?
hmmmm...
Posted: Tue Feb 13, 2007 8:25 am
by BelvedereAndTonic
Hi all, I'm a newbie here, thanks to all of you for your collective wisdom, it's been helpful beyond belief! I'm 3 weeks into my new life as a hoser, and loving it - what an improvement to the quality of my life!
Anyway, I felt compelled to write for two reasons: 1) James' Analyzer software is the bomb, and I've been meaning to say 'thank you' and 'get better'. 2) Because I thought this was a really interesting thread, and I'm still early on in trying to make heads or tails of all the data getting spit at me.
My average time in apnea per night (over the course of 3 weeks) is 7.4 minutes, which is the 2nd highest (next to James) that i've read on this thread so far... I'm just wondering what to make of that... Granted, I'm still very new to this way of life, and my AHI is still a relatively high 6.6 (mostly due to leak issues that i think i've finally sorted out)... The good news is that's down from the initial 9.6 or so during my first week or so, and it seems to continue to trend downward.
But back to the topic at hand, I was just wondering if anybody else had any conclusions or suggestions...
And since I'm here, I have another question - which is pretty broad - How can I best apply the info i'm extracting from Analyzer to help me get better sleep and lower AHI's? I've gotten a good feel for the general definitions of all the terms found in the various reports that Analyzer generates, but I'm not entirely sure what to do about improving them... Any help or direction to other threads would be greatly appreciated! Thanks all!
and - Thanks again for your software james, and get better man!
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