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Re: UARS - Upper airway resistance Syndrom

Posted: Mon Jun 11, 2018 6:48 am
by Pugsy
Fragmented sleep for any reason will totally trash the chances of feeling the powers of restorative sleep work their magic.
Sleep disordered breathing is but one of a very long list of culprits for causing fragmented sleep.
Sometimes figuring out the cause and fixing it is relatively easy but more often it's not so easy but people sure expect it to be easy.
Can't say as I blame them either. It's no different than my wanting that one pain pill I take to totally remove all my pain and it doesn't work out that way no matter how much I might want it to. :lol:

My OSA therapy...I never had the miracle burst of energy that some people are lucky to experience but then I have other issues going on that also mess with the restorative powers of sleep. I removed one culprit from the fragmented sleep list but there are others there still messing with me.
I did have the nocturia and killer headaches go away pretty much immediately once I figured out optimal pressures and that alone is worth the minor annoyance of having to wear the mask but I am still waiting for the miracle of cpap making me into a morning person...that would be a true miracle because never ever in my life have I ever been a morning person. :lol:

Re: UARS - Upper airway resistance Syndrom

Posted: Mon Jun 11, 2018 6:52 am
by jnk...
UARS is often a label thrown at someone who has sleep-breathing issues that don't meet the standard diagnostic criteria of classic OSA. UARS isn't so much a mysterious, elusive, often-missed answer to anything in and of itself. It is a term of convenience for acknowledging people outside of the presently accepted definition of another more-accepted diagnosis.

So, like many other named syndromes, the label encompasses many people with varied issues. It is not a diagnosis that points to one solution. PAP therapy can help some with the UARS lablel. But not all.

If someone has breathing problems during the day, surgery has to be at least considered, since PAP isn't designed for daytime use while awake, after all.

Drs K and P are willing to try tools outside of what is in the standard toolbox of your average OSA-treating doc. That is one of the true values of such docs. And that is why some people with less-defined problems have done well to seek them out or to seek out doctors like them who haven't been boxed in by the cookie-cutter, one-size-fits-all, middle-of-the-bell-curve-only insurance-based system that leaves so many problematic sleep-breathers on their own wide awake in the dark and staring at their ceilings.

Re: UARS - Upper airway resistance Syndrom

Posted: Mon Jun 11, 2018 6:55 am
by canyouhearmeaya
Pugsy wrote:
Mon Jun 11, 2018 6:48 am
Fragmented sleep for any reason will totally trash the chances of feeling the powers of restorative sleep work their magic.
Sleep disordered breathing is but one of a very long list of culprits for causing fragmented sleep.
Sometimes figuring out the cause and fixing it is relatively easy but more often it's not so easy but people sure expect it to be easy.
Can't say as I blame them either. It's no different than my wanting that one pain pill I take to totally remove all my pain and it doesn't work out that way no matter how much I might want it to. :lol:

My OSA therapy...I never had the miracle burst of energy that some people are lucky to experience but then I have other issues going on that also mess with the restorative powers of sleep. I removed one culprit from the fragmented sleep list but there are others there still messing with me.
I did have the nocturia and killer headaches go away pretty much immediately once I figured out optimal pressures and that alone is worth the minor annoyance of having to wear the mask but I am still waiting for the miracle of cpap making me into a morning person...that would be a true miracle because never ever in my life have I ever been a morning person. :lol:
Oh yeah, totally! If you a sleep study shows fragmented sleep, but with no considerable AHI or RDI, then realistically it's not breathing related. If you've got a high AHI/RDI, then logically that's going to cause fragmented sleep, and so you naturally should take steps to try remedy that. So in my case I'm saying: the graph shows fragmented sleep, and an RDI of 15 shows breathing issues, my RDI is higher during REM, and that's common due to the airways being more likely to collapse during REM. Therefor, it's most likely that the *primary* cause of my fragmented sleep, is breathing / RERA. So now, how do I fix that.

But equally, I'm sure someone could have a sleep architecture like mine, with no notable AHI/RDI, therefor attempting CPAP or other breathing related treatment, is going to be futile.

LOL, well at the moment I feel like I'm not much of a morning, day, afternoon or evening person.... so i'd be happy to just not be a morning person for now!! :lol: :lol:

Re: UARS - Upper airway resistance Syndrom

Posted: Mon Jun 11, 2018 10:31 am
by Sleep_deprived
@Pugsy
@canyouhearmeaya

Thank you so much for your explanation. It sounds reasonable and makes more sense to me now. Unfortunately, I could not be a morning person too in my entire life due to this problem. It could sound odd, but this had consequences on my private life and on my career. Furthermore, my memory is now facing the consequences of sleep deprivation: I used to have a great memory but now I easily forget things.... Not to mention the accelerated ageing process and the bags under the eyes, which are being constantly addressed by my "gentle" colleagues. Anyway, thank you for your wise words. I will have the sleep study and see what comes out.

Regards

Re: UARS - Upper airway resistance Syndrom

Posted: Mon Jun 11, 2018 11:21 am
by canyouhearmeaya
Sleep_deprived wrote:
Mon Jun 11, 2018 10:31 am
@Pugsy
@canyouhearmeaya

Thank you so much for your explanation. It sounds reasonable and makes more sense to me now. Unfortunately, I could not be a morning person too in my entire life due to this problem. It could sound odd, but this had consequences on my private life and on my career. Furthermore, my memory is now facing the consequences of sleep deprivation: I used to have a great memory but now I easily forget things.... Not to mention the accelerated ageing process and the bags under the eyes, which are being constantly addressed by my "gentle" colleagues. Anyway, thank you for your wise words. I will have the sleep study and see what comes out.

Regards
I can totally empathize, I'm in a similar situation. My quality of life has just got worse. It just kind of feels like living life on quick sand, whilst everyone else is walking on concrete. You don't have the energy to do things you want to do, your brain feels slow, your clarity of thought isn't right, and just generally it feels like you've had a good amount of lifeforce sucked out of you. But, I guess that makes sense, when night in night out, your body isn't getting the proper chance to regenerate.

I'm hoping I'll be able to make some progress very soon to try and resolve this, and I wish you the best of luck in your own journey. Keep us posted!