CPAPtalk.com

EMPTY NOSE SYNDROME
look it up.

PhuqueU2 wrote:WOW! Paranoid much???

Not much. Maybe a little. But people who create alternate identities to do their dirty work for them may contribute to that little bit of suspicion.

OMG...33 posts already today and he's not done yet. He answers everyone. Pretty good for someone that just started with CPAP 6 months ago...NOT

LSAT wrote:OMG...33 posts already today and he's not done yet. He answers everyone. Pretty good for someone that just started with CPAP 6 months ago...NOT

Mommy keeps feeding him. Jim

LSAT wrote:OMG...33 posts already today and he's not done yet. He answers everyone. Pretty good for someone that just started with CPAP 6 months ago...NOT

kteague wrote:

PhuqueU2 wrote:WOW! Paranoid much???

Not much. Maybe a little. But people who create alternate identities to do their dirty work for them may contribute to that little bit of suspicion.

He's been here before...(sound out his name). He's one of those trolls that are afraid to let anyone know his real identity. This is his Altar Ego

Lennyz wrote:sorry for like a rude/ignorant question, please be kind

what I mean is, is everyone not fit to be cured by surgery?

BTW I am new to CPAP and I feel like I can't live with it forever.

Again sorry for stupid/offensive question

Surgery is a solution for very few.
I pursued it simply for the benefit of reducing my xPAP treatment pressure. The evaluation concluded that there was no confidence that surgery would help; "could result in needing an increased pressure".

Lennyz wrote:sorry for like a rude/ignorant question, please be kind

what I mean is, is everyone not fit to be cured by surgery?

BTW I am new to CPAP and I feel like I can't live with it forever.

Again sorry for stupid/offensive question

The currently available surgery has a poor success rate, high cost, lots of pain and other problems, and a high rate of complications. IMHO, it's only a small step above quackery.

I DO have high hopes for some sort of surgical solution long term. I just don't think the current surgical procedures are good enough to consider for most people.

Regrettably, I had the surgery. As mentioned, the pain was unreal and didn't subside for several weeks. One real issue I noticed is that before the surgery, I was able to use nasal pillows, but now am limited to full face masks as air just goes in through my nose and gets expelled straight out of my mouth.

Btoeps74 wrote:Regrettably, I had the surgery. As mentioned, the pain was unreal and didn't subside for several weeks. One real issue I noticed is that before the surgery, I was able to use nasal pillows, but now am limited to full face masks as air just goes in through my nose and gets expelled straight out of my mouth.

That is just horrible. So it didn't help your apnea at all?

AMK wrote:

Btoeps74 wrote:Regrettably, I had the surgery. As mentioned, the pain was unreal and didn't subside for several weeks. One real issue I noticed is that before the surgery, I was able to use nasal pillows, but now am limited to full face masks as air just goes in through my nose and gets expelled straight out of my mouth.

That is just horrible. So it didn't help your apnea at all?

No unfortunately it didn't. I think at first maybe a little but not long. Luckily I don't experience some of the other things I've heard about like liquids coming out of my nose and such.

Re: Why do some people still use CPAP?

Here are my top ten reasons:

10. It is still considered by experts as the gold standard for effective long-term treatment of OSA.
9. Slightly pressurized air is about as harmless as any medical approach to anything.
8. It is noninvasive.
7. It is reversible.
6. It is adjustable.
5. The results can be accurately measured over time.
4. It is cheaper over the long-term compared to most other approaches.
3. It gives me something to talk about at cpaptalk.com.
2. It makes me feel like a record-setting test jet pilot every night.
1. Being alive (AND feeling alive) is a lot better than being dead (or feeling dead)--so I LOVE it!

jnk... wrote: 3. It gives me something to talk about at cpaptalk.com.
2. It makes me feel like a record-setting test jet pilot every night.

I had the surgery. There are drawbacks to the surgery itself. First, you can lose the ability to drink carbonated beverages. I've stood up with a mouth full of a drink... you know, last sip before you leave a restaurant, and had it come right out my nose. Funny, but a bit embarrassing. I did not have the carbonated beverage issue, but my surgeon did warn me of it. The surgery is HORRIBLY painful to recover from. For YEARS, I'd get a raw spot at the back of my palette. Now, when I get a head cold, I feel like crap, but sound completely normal. It doesn't help when trying to get sympathy, and since I'm a man, a cold is something that seems to require ICU (women just suck it up, men act like babies when they're sick).

I can't wear a nasal-only mask because my uvula is gone and the cpap pressure makes the air shoot out of my mouth as soon as I relax. Since I'm still wearing a cpap mask, I guess that tells you how the surgery went.

As for the cpap machine, make sure you have something that offers less resistance when exhaling. Respironics calls it "c-flex", but others have their own version. The one that I got through insurance was just a single, steady pressure and very hard to use -- so I didn't.

My understanding is that most who get a palate surgery still eventually need to be on PAP down the road for good sleep. And I have also heard from some pros that using an auto effectively may become problematic for some who have had that kind of surgery, since the change in their anatomy may prevent some auto algorithms from detecting the changes in breathing quickly enough to prevent sleep-disturbing airway narrowing and closures deeper inside the airway. I have no firsthand knowledge of either of those points, though.