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Posted: Wed Oct 04, 2006 10:16 pm
by DMEdaddy
Wulfman, I am not going to go to other forums as this is the best and I am no trouble maker. I will find the law and post same. If I am wrong I will admit it and try to clarify what can be done under the law. If I am right, I know you will admit it also. In any case, I am sure you will agree, cpaptalk gets better. Expect an answer Thursday night.

Posted: Wed Oct 04, 2006 10:18 pm
by Snoredog
you should really not go from 8cm to 11cm. Your pressure requirements should not fluctuate that much in such a short period of time. IF you make a change only go in 1cm increments and you should base the change on how you feel the next day.

some doctors will intentionally set you up with a lower pressure starting out than you need to see how you respond to therapy (lower pressure makes it easier). Sometimes that backfires and your struggle with the lower pressure with awakenings. If you have a copy of your last sleep study, look in it to find the pressure found during the titration. But if you are awakening gasphing for air, it can be an indicator you are either mouth breathing or need a pressure increase. Again, I would only increase it by 1cm per night.


Posted: Wed Oct 04, 2006 10:21 pm
by rested gal
There was a rather interesting discussion that came up once when someone tried to say it was illegal for a person to change the pressure on his/her own machine. The state law they pointed to did not say that:

Jun 20, 2005 subject: cpap pressure setting

Posted: Wed Oct 04, 2006 10:25 pm
by Snoredog
DMEdaddy wrote:Wulfman, I am not going to go to other forums as this is the best and I am no trouble maker. I will find the law and post same. If I am wrong I will admit it and try to clarify what can be done under the law. If I am right, I know you will admit it also. In any case, I am sure you will agree, cpaptalk gets better. Expect an answer Thursday night.
No one really cares about your lawyer legalese here, personally I think you can stick it where the sun don't shine, so don't bother boring us with it.

Posted: Wed Oct 04, 2006 10:35 pm
by Wulfman
Snoredog wrote:you should really not go from 8cm to 11cm. Your pressure requirements should not fluctuate that much in such a short period of time. IF you make a change only go in 1cm increments and you should base the change on how you feel the next day.

some doctors will intentionally set you up with a lower pressure starting out than you need to see how you respond to therapy (lower pressure makes it easier). Sometimes that backfires and your struggle with the lower pressure with awakenings. If you have a copy of your last sleep study, look in it to find the pressure found during the titration. But if you are awakening gasphing for air, it can be an indicator you are either mouth breathing or need a pressure increase. Again, I would only increase it by 1cm per night.
Snoredog,

I don't mean to argue with you (as I value your opinions), but he's already using a FP 431 mask which is a full face mask.
The other point is about the pressure changes..... If he were using an Auto, his pressure could vary that much or more in a very short amount of time and multiple times during the night.....just chasing snores. But, other than that, I agree about the pressure changes being gradual. Makes for less disturbed sleeping for one thing.

Den


Posted: Wed Oct 04, 2006 10:46 pm
by seenas
--------------------------------------------------------------------------------

DMEdaddy wrote:
Most of us know that Cpap pressures are to be changed only after a physician orders the change. This is the law in most if not all states. Surely, we must not write posts that encourage others to break laws.

Many of us are using downloaded data and solid clinical understanding to set pressures. Perhaps the law should be modified. Bottom line is the law does exist and posting activities in violation of law is not consistent with the high standards of this patient community.


Hi,
As a fairly new person I am very concerned about your response here. This is a forum, people seeking others with similar disabilities for help and support. Each person who responds is relaying their opinion. We all have the right to relay our opinion. It is one of our basic rights under the law of "freedom of speech". It was by reading the varied responses from different people here I was able to make an informed decision in regard to my own therapy.
The one response that I have found consistent was that everyone has wanted to help. It is my opinion that this community has very high standards and I question why you would even write your statement unless your motives are questionable.
Seena
If a person decides to change a pressure, etc. it is their decision and they are responsible for their own actions.


Posted: Wed Oct 04, 2006 10:57 pm
by DMEdaddy
Hello Rested Gal, Thanks for showing the way to the old thread. It was very interesting but not definitive except probably in Indiana. I will try to get some more hard fact on this important topic in the morning.

Time to strap on and pressure up!

Posted: Wed Oct 04, 2006 10:58 pm
by Snoredog
Wulfman wrote:
Snoredog wrote:you should really not go from 8cm to 11cm. Your pressure requirements should not fluctuate that much in such a short period of time. IF you make a change only go in 1cm increments and you should base the change on how you feel the next day.

some doctors will intentionally set you up with a lower pressure starting out than you need to see how you respond to therapy (lower pressure makes it easier). Sometimes that backfires and your struggle with the lower pressure with awakenings. If you have a copy of your last sleep study, look in it to find the pressure found during the titration. But if you are awakening gasphing for air, it can be an indicator you are either mouth breathing or need a pressure increase. Again, I would only increase it by 1cm per night.
Snoredog,

I don't mean to argue with you (as I value your opinions), but he's already using a FP 431 mask which is a full face mask.
The other point is about the pressure changes..... If he were using an Auto, his pressure could vary that much or more in a very short amount of time and multiple times during the night.....just chasing snores. But, other than that, I agree about the pressure changes being gradual. Makes for less disturbed sleeping for one thing.

Den

Posted: Wed Oct 04, 2006 11:27 pm
by krousseau
From thehe new sleep doc I'm seeing-if I lower the pressure and still see goal AHI (<5) it is fine with him. If I have to start increasing the pressure to get to goal he wants to know about it. Very positive about self-managment.


Posted: Thu Oct 05, 2006 12:22 am
by ozij
DEMdaddy,
I cared very much about your polite and decent answer to Den.
O.

Posted: Thu Oct 05, 2006 7:17 am
by oldgearhead
Most of us know that Cpap pressures are to be changed only after a physician orders the change. This is the law in most if not all states. Surely, we must not write posts that encourage others to break laws
This is a joke, right? I think you are just trying to get a rise out somebody.

The insulin comparison is right on. I guess since I use an APAP, I'm "breaking the law" every night, because it ranges from 8 - 9.4 and my sleep doctor scribed 8.
But then maybe I'm "not breaking the law", because
my former sleep doctor scribed 10. Is the APAP smarter than the doctors?

Any "law" that you may find will be very vague and un-enforceable.

btw - I see our Washington fathers are passing another law to save us from
ourselves (Internet gamming). However, in the typical, two-faced, approach,
the State and Regional lotteries and scratch-offs are multiplying....

It really upsets me to see the same poor people, week in and week out,
holding up the line at the local Village Pantry buying lottery tickets they can't afford, and I am being forced to quit playing ten cent Hold-Um..


Posted: Thu Oct 05, 2006 8:15 am
by whatrdreamsmadeof
WHAT TAKE THE WORD OF THE DR. WHAT'S UP WITH THAT....I WAS TITRATED AT 9 PRESSURE WHERE ACCORDING TO MY POLY CAUSED ME TO HAVE 11 CENTRALS NO WONDER I'VE BEEN STRUGGLING FOR 8 MONTHS........WHEN I QUESTIONED THE DR. ABOUT THIS HE SAID AND I QUOTE "WELL YOU'RE NOT PRESENTING WITH ANY OTHER SYMPTOMS" EXCUSE ME I'M SORRY I COULDN'T MAKE YOUR DAY WITH A STROKE OR TWO..............AFTER HELP FROM SOURCES UNKNOWN, I WOULDN'T WANT TO IMPLICATE AND LAW BREAKERS.........I AM FINALLY GETTING SOME RELIEF AT 6 PRESSURE.............. GOD BLESS OSMOSIS.........

Posted: Thu Oct 05, 2006 4:41 pm
by Guest
DMEdaddy wrote:Most of us know that Cpap pressures are to be changed only after a physician orders the change. This is the law in most if not all states. Surely, we must not write posts that encourage others to break laws.
Thanks for the laugh DMEdaddy!

BTW my APAP is breaking the law every night....


Posted: Thu Oct 05, 2006 7:11 pm
by Wulfman
DMEdaddy wrote:Wulfman, I am not going to go to other forums as this is the best and I am no trouble maker. I will find the law and post same. If I am wrong I will admit it and try to clarify what can be done under the law. If I am right, I know you will admit it also. In any case, I am sure you will agree, cpaptalk gets better. Expect an answer Thursday night.
In the words of "The Duke"......."We're burnin' daylight."

Den

Posted: Thu Oct 05, 2006 7:20 pm
by Wulfman
Darn! He didn't say WHICH Thursday......

I won't wait up.

Den