CPAPtalk.com

Here is a scary thought. For the price of some masks at the DME you could take a cruise. I dont think a cpap is a very expensive medical equipment if you buy from the right place. Some of you could take a very nice cruise for what you paid the DMEs.

Cruise sounds good to me . When do we leave?

Cheers

Why all the complaining ?

Some seem to want to ask questions with no intent to try to improve their compliance. Its just a gateway to introduce their laundry list of "other" medical problems. But I can't because I have _____________ and__________and __________. They need to be in a hospital. Or at least see a shrink to help them deal with their problems . Keep telling yourself that you can't and you never will.

I laugh when those whom have had their rented cpap for a week and can't seem to keep it on for longer than an hour give advice . The very same as above. They are the ones whom should start their thread wiith "I'm no expert" Not Rested Gal. Who is as close to being an expert as most of us will ever know.

Come on. If Surly Abonds can do it in India so can you. Ask the question, read the answer and follow the suggestion. Who knows , it might work. I've never seen any posts that suggested anything dangerous. If you are a diabetic or heart patient or have wooden teeth then you should already know what you can't eat or drink . Most of the suggestions are practicle for most people.

Sorry this turned into a rant. Notice I didn't touch those that complained about their DMEs price gouging. They will come around once they learn the economics of the game.

Yes , Its me

Many happy landings

Fly Guy

Nah, I prefer to think that I do most of my complaining because I'm a pathetic misfit who has glommed onto the participants of this list as a substitute for the friends he doesn't have.

Plus, I'm not smart enough to figure anything out for myself, so I need help.

Plus, I smell bad. Which isn't, strictly speaking, germane to the topic at hand, but while I'm airing out my shortcomings.


Seriously, I think there's room here for people to vent a little bit, and I think this board is better when everyone shares their experience, from the "I've been on this two days now, but here's what seems to be working for me so far" to the "I remember when I got my first CPAP back during the Roosevelt Administration, it was just an old Hoover vacuum cleaner with the hose plugged into the exhaust port".

Besides, sometimes it's fun to just discuss these things with people who share our experiences. I don't think someone who starts on CPAP tonight has any less valid complaints than mine after 2 weeks on mine, and I don't think mine are any less valid than someone who's been on it 2 months, or 2 years, or is in their second reincarnation of needing CPAP.

Liam, who will probably feel different when he's been on his for 2 months or 2 years.

Thats right, We all have our stories to tell . It helps others as well. However, sometimes it does get a bit old when nothing you can say , no suggestion , is accepted without ' "but I have X SYNDROME.

Now can we get back to the free exchange of information without the Butts . LOL....Take the advise and do with it whatever you want but don't complain about it. They answered in all sincerity so just say thank you . It probably works for some. Probably not all. So what.

Give FG a break as well. He is a bit more to the point than many. I suppose thats a good thing in an aeroplane.

Cheers,

Chris

chrisp wrote:Thats right, We all have our stories to tell . It helps others as well. However, sometimes it does get a bit old when nothing you can say , no suggestion , is accepted without ' "but I have X SYNDROME.

True, but not everyone is as good at constructing an essay as others. Me, when I want to ask a question, I try to give all of the relevant information in with the question, but sometimes you miss something.

"Hey, I need help, my mask is wearing a bright red mark on the bridge of my nose! What do I do?"

"Try nasal pillows."

"Oh, I forgot to mention, I was born without nostrils, so I need a full face mask."


One would think you'd include that tidbit in the first e-mail, but if you still need help and the answer given doesn't help your particular circumstance, I think it's worth sending a clarification or two.

Keep in mind, we get the best results out of our doctor when we do the same thing. Life is a matter of give and take. I can see where it would (will) become frustrating reading this board and seeing the same questions over and over, and after a while thinking "Will they NEVER learn to give all the information at the start?", but one of the common complaints I hear from new and old users alike is the lack of good information from the sleep doctors and the equipment providers.

We're it, folks. We're the place where newbies go to get information, and then turn around and pass it to ANOTHER group of newbies.

Sure, if someone wants the world handed to them on a silver platter, they're never going to be satisfied with the results. But you know what: That's not our problem, that's theirs. They will never be happy, and meanwhile we won't have blown off a legitimate question from a newbie who didn't realize that there WAS a difference between their full face mask and a nasal mask, and so never bothered to mention that they used one.

Ah well, the world wouldn't be the world we know if there weren't people asking (seemingly) dumb questions and others growing weary and complaining about them.

And me, sitting on the side, speaking my words into the emptiness.

Liam, wise beyond his years or foolish blow hard? Let's just humor him and let him think it's the wise one.

People complain because its more interesting then saying I got my CPAP and it worked ... and besides its human nature

From my personal point veiw I admitt I find some of the complaints annoying at times. I would love to have the 10-15 apneas per hour some are diagnosed with instead of the 30+ central apnea I continue to have even with the best equipment and proper titration but atleast I never had a snoring problem. Each of us has a different perspective based on our personal experiences- what may seem like a trivial complaint to you may be a major issue in determaning if someone will be sucessful with xPAP. I know my point of veiw is very different since 99% of the posters have OSA- I don't let it stop me from participating and trying to help others when I can though I leave strictly OSA post for others to help with. We have to appreciate the unique story each of us has...if we were all the same we would all have the same machine and the same boring mask...and what fun would that be? Look at the diversity in the group- we have people from all over the world with different socio-ecomonic backgrounds, political beliefs, etc who would have never 'met' if it wasn't for the common diagnosis of apnea and trying to find the best way possible to treat it.

I think its great to see new hoseheads helping others early on- it shows they are commited to the xPAP game plan and those of us who have been hoseheads for any length of time tend to forget about some of the adjustment problems we went through. Information we consider standard knowledge isn't for a newbie and we all know our doctors and DME's don't give us enough information when we get our DX and xPAP. xPAP technology is rapidly changing- I've only been a hosehead for a litle over a year and the wonderful recomendations I was given for masks when I started would almost be laughable compared to whats available now.

I am so glad we have have places like this were we can share information, vent our frustrations and laugh at our hosehead stories (I'm still laughing about the cat toy one...with my cat it a velcro fettish that has thankfully gone for the most part)