CPAPtalk.com

Posted: **Fri Apr 01, 2016 10:22 am**

We are driving to the only Children's Hospital in the state for all of her care. I got her a total face mask 2 nights ago, and she seems to be doing awesome.

Posted: **Fri Apr 01, 2016 10:29 am**

mjmia3 wrote:I got her a total face mask 2 nights ago, and she seems to be doing awesome.

That is great to hear!

Soon, you should think about this -->

ChicagoGranny wrote:
MamaOf4 wrote: She has a bulky back of the tongue, so they don't expect to have her off CPAP.

mjmia3 wrote:She will be 5 in 2 weeks
I encourage you to have your daughter evaluated now by an orthodontist who has as a specialty treating sleep apnea with orthodontics. If you live in an urban area, such an orthodontist should not be too hard to find.

There is a lot that can be done with jaw and palate expanders. Just one extra millimeter of clearance can sometimes cure a patient of sleep apnea for life. The orthodontist will determine if treatment is appropriate and will recommend the best age to start treatment. If not 100% confident in the proposal, a second opinion would be a good thing to pursue.

Posted: **Sat Apr 02, 2016 6:21 am**

Looking at one of the videos, I noticed that your daughter is on a Trilogy 100 ventilator machine and not on a regular CPAP.
It would be helpful if you filled out the equipment profile and noted that in the equipment section additional comments.

I'm glad you found a mask that is working.

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