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Re: Recurrent Corneal Erosion due to Mask Leaks

Posted: Wed Apr 13, 2016 4:16 pm
by BlackSpinner
Stu california wrote:They had to put plugs in both my tear ducts I have stopped using the CPAP altogether as my sight is now more important than CPAP. Thanks for the suggestions I have now tried every masks on the market and the provider doesn't have a solution.
Not a lot of good to have sight if you have a stroke or heart attack. Putting your eyes ahead of your organs and brains!
If you have the plugs you can use your cpap machine again and keep the rest of your body healthy.

Re: Recurrent Corneal Erosion due to Mask Leaks

Posted: Wed Apr 13, 2016 6:12 pm
by chunkyfrog
SewTired wrote: . . . Total Face mask first. Can't be used by those with high eye pressure as it will raise the pressure. . . .
I would question that statement before ruling that mask out. Check with an ophthalmologist.
Not an optometrist.

Re: Recurrent Corneal Erosion due to Mask Leaks

Posted: Wed Apr 13, 2016 6:37 pm
by Janknitz
BlackSpinner wrote:
Stu california wrote:They had to put plugs in both my tear ducts I have stopped using the CPAP altogether as my sight is now more important than CPAP. Thanks for the suggestions I have now tried every masks on the market and the provider doesn't have a solution.
Not a lot of good to have sight if you have a stroke or heart attack. Putting your eyes ahead of your organs and brains!
If you have the plugs you can use your cpap machine again and keep the rest of your body healthy.
I think that's a judgment call each of us must make for ourselves.

Re: Recurrent Corneal Erosion due to Mask Leaks

Posted: Wed Apr 13, 2016 7:19 pm
by Goofproof
I sleep with my eyes closed, if I didn't I'd be using a sleep mask. Jim

Re: Recurrent Corneal Erosion due to Mask Leaks

Posted: Wed Apr 13, 2016 7:52 pm
by Lucyhere
Janknitz wrote:
BlackSpinner wrote:
Stu california wrote:They had to put plugs in both my tear ducts I have stopped using the CPAP altogether as my sight is now more important than CPAP. Thanks for the suggestions I have now tried every masks on the market and the provider doesn't have a solution.
Not a lot of good to have sight if you have a stroke or heart attack. Putting your eyes ahead of your organs and brains!
If you have the plugs you can use your cpap machine again and keep the rest of your body healthy.
I think that's a judgment call each of us must make for ourselves.

+1

Re: Recurrent Corneal Erosion due to Mask Leaks

Posted: Wed Apr 13, 2016 9:20 pm
by Gasper62
Stu california wrote:They had to put plugs in both my tear ducts I have stopped using the CPAP altogether as my sight is now more important than CPAP. Thanks for the suggestions I have now tried every masks on the market and the provider doesn't have a solution.
I thought you were given a viable solution, buy and wear some eye shields ? Or, try the total face mask. You might also give a Gecko silicone nose pad a try. They can work wonders for some leaks in the area where the seal at the nose is less than great.

These swim goggles are a cheap enough way to find out if shielding your eyes is gonna' work for you. They're the ones that I used until I finally found the right mask and got my leaks eliminated. ~ http://smile.amazon.com/Pack-Friendly-G ... detailpage

Re: Recurrent Corneal Erosion due to Mask Leaks

Posted: Wed Apr 13, 2016 9:34 pm
by BlackSpinner
Janknitz wrote:
BlackSpinner wrote:
Stu california wrote:They had to put plugs in both my tear ducts I have stopped using the CPAP altogether as my sight is now more important than CPAP. Thanks for the suggestions I have now tried every masks on the market and the provider doesn't have a solution.
Not a lot of good to have sight if you have a stroke or heart attack. Putting your eyes ahead of your organs and brains!
If you have the plugs you can use your cpap machine again and keep the rest of your body healthy.
I think that's a judgment call each of us must make for ourselves.
But their eyes won't help them in a coffin!

Re: Recurrent Corneal Erosion due to Mask Leaks

Posted: Wed Apr 13, 2016 9:49 pm
by Goofproof
BlackSpinner wrote:
Janknitz wrote:
BlackSpinner wrote:
Stu california wrote:They had to put plugs in both my tear ducts I have stopped using the CPAP altogether as my sight is now more important than CPAP. Thanks for the suggestions I have now tried every masks on the market and the provider doesn't have a solution.
Not a lot of good to have sight if you have a stroke or heart attack. Putting your eyes ahead of your organs and brains!
If you have the plugs you can use your cpap machine again and keep the rest of your body healthy.
I think that's a judgment call each of us must make for ourselves.
But their eyes won't help them in a coffin!
I'd bet they will dry out!

Re: Recurrent Corneal Erosion due to Mask Leaks

Posted: Thu Apr 14, 2016 3:26 am
by 49er
Janknitz wrote:
BlackSpinner wrote:
Stu california wrote:They had to put plugs in both my tear ducts I have stopped using the CPAP altogether as my sight is now more important than CPAP. Thanks for the suggestions I have now tried every masks on the market and the provider doesn't have a solution.
Not a lot of good to have sight if you have a stroke or heart attack. Putting your eyes ahead of your organs and brains!
If you have the plugs you can use your cpap machine again and keep the rest of your body healthy.
I think that's a judgment call each of us must make for ourselves.
Totally agree.

And this isn't an either or situation. Stu California, please follow the excellent suggestions by various members regarding the eye shield and masks. And make sure you are getting accurate information as to what mask can be used in your situation and not just accept a statement at face value.

If you still find after your research that pap therapy is not going to work, look into alternative methods for sleep apnea such as a dental device or surgical options like the Inspire Procedure that GB mentioned. Leaving your apnea untreated is not a good option.

Best of luck.

49er

Re: Recurrent Corneal Erosion due to Mask Leaks

Posted: Thu Apr 14, 2016 9:07 am
by Cannuck 1
It sounds like a external leak because of leaking has caused the damage.
Have you tried to think outside the box and tried eye night covers that people use while trying to sleep during the day.
I have used in the past for naps and living up north we get a lot of light in the summer months.(should act like a diffuser or deflector. )
Your pressures must be very high to give these undesirable results.

Re: Recurrent Corneal Erosion due to Mask Leaks

Posted: Thu Apr 14, 2016 2:58 pm
by herefishy
It sounds kind of silly, but could you get the swimmers silicon putty and use it to make a dam inside your mask?

Re: Recurrent Corneal Erosion due to Mask Leaks

Posted: Thu Apr 14, 2016 5:53 pm
by mjs499
my problem is one eyelid that sags in the night- I tried taping eyelid shut [ there is special tape that does not hurt to remove]
when I got tired of tape I bought silicon goggles from "the dry eye store" . I also use the vaseline type eyedrops at night

that seems to have stopped the redness and soreness in the eye. the goggles are probably in way of your mask though.
works fine for me with the old twilight [ fits like baseball cap and comes down in front] or the new nasal pillow airfit

my eye doctor thought cpap blowing on eye but I think it is simply eyelid sagging and opening. I already have
pretty bad dry eye and have to use drops in the day

good luck with your situation! dry eye shop-- jsut google it has lots ideas-- very helpful people there

Re: Recurrent Corneal Erosion due to Mask Leaks

Posted: Thu Apr 14, 2016 7:55 pm
by chunkyfrog
Great catch, mjs499.
http://dryeyes-store.com/

Re: Recurrent Corneal Erosion due to Mask Leaks

Posted: Thu Apr 14, 2016 10:55 pm
by archangle
Stu california wrote:They had to put plugs in both my tear ducts I have stopped using the CPAP altogether as my sight is now more important than CPAP. Thanks for the suggestions I have now tried every masks on the market and the provider doesn't have a solution.
An Oracle oral mask will absolutely fix any problems with air leaks through the nasolacrimal ducts if you learn to use it without the nose plugs. There will be no air pressure in your nose.

Unfortunately, many doctors and DME's are too stupid to understand this.

Re: Recurrent Corneal Erosion due to Mask Leaks

Posted: Sun Sep 11, 2016 10:59 am
by avi123
Stu california wrote:
They had to put plugs in both my tear ducts I have stopped using the CPAP altogether as my sight is now more important than CPAP. Thanks for the suggestions I have now tried every masks on the market and the provider doesn't have a solution.

My ophthalmologist told me to put a drop of REFRESH (Optive, Advanced) in each eye. This medication is over the counter.