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Re: Where is Robysue?

Posted: Wed Jun 24, 2015 2:25 pm
by Cardsfan
It will train your brain that yes I can sleep with all these wires attached to me. And help you relax.
Or begin by wearing it sitting up watching TV or using your computer. And work your way up to using it in bed.

Re: Where is Robysue?

Posted: Wed Jun 24, 2015 3:12 pm
by postitnote
Enchanter, get the machine set-up and ready in case you do have sleep apnea. You know it will take weeks for you to get a machine via insurance the way your doctor handles things

Also you can get a feel whether you like the hybrid mask or not. You might prefer a one piece full face one or maybe pillows and a chin strap. Play with it! Wear it and watch TV or read or play video games. It won't hurt to use it and it could actually give you a jump on your therapy.

Even if you get a cpap machine through your insurance save this one for a back-up. You're young and will eventually need another new one a long time from now.

Please try hard to do this! I think you will be happy you did.

Re: Where is Robysue?

Posted: Wed Jun 24, 2015 3:58 pm
by Enchanter
postitnote wrote:Enchanter, get the machine set-up and ready in case you do have sleep apnea. You know it will take weeks for you to get a machine via insurance the way your doctor handles things

Also you can get a feel whether you like the hybrid mask or not. You might prefer a one piece full face one or maybe pillows and a chin strap. Play with it! Wear it and watch TV or read or play video games. It won't hurt to use it and it could actually give you a jump on your therapy.

Even if you get a cpap machine through your insurance save this one for a back-up. You're young and will eventually need another new one a long time from now.

Please try hard to do this! I think you will be happy you did.

Well if I don't have sleep apnea, will it be bad to get too much oxygen? They say I don't say thanks enough, but I want to say again that I cannot thank you enough. I'm going to be looking at the machine and instructions extensively. Do you think I have sleep apnea?

Re: Where is Robysue?

Posted: Wed Jun 24, 2015 4:05 pm
by postitnote
Enchanter wrote:
postitnote wrote:Enchanter, get the machine set-up and ready in case you do have sleep apnea. You know it will take weeks for you to get a machine via insurance the way your doctor handles things

Also you can get a feel whether you like the hybrid mask or not. You might prefer a one piece full face one or maybe pillows and a chin strap. Play with it! Wear it and watch TV or read or play video games. It won't hurt to use it and it could actually give you a jump on your therapy.

Even if you get a cpap machine through your insurance save this one for a back-up. You're young and will eventually need another new one a long time from now.

Please try hard to do this! I think you will be happy you did.

Well if I don't have sleep apnea, will it be bad to get too much oxygen? They say I don't say thanks enough, but I want to say again that I cannot thank you enough. I'm going to be looking at the machine and instructions extensively. Do you think I have sleep apnea?
I'm not a doctor nor well versed in sleep apnea but I think you probably do because you have said what the doctor has told you.

You can't get too much oxygen from the machine because it''s simply air. Consider the difference between driving a car with the windows open verses driving with the top down. All the same air

Re: Where is Robysue?

Posted: Wed Jun 24, 2015 6:47 pm
by Enchanter
postitnote wrote:
Enchanter wrote:
postitnote wrote:Enchanter, get the machine set-up and ready in case you do have sleep apnea. You know it will take weeks for you to get a machine via insurance the way your doctor handles things

Also you can get a feel whether you like the hybrid mask or not. You might prefer a one piece full face one or maybe pillows and a chin strap. Play with it! Wear it and watch TV or read or play video games. It won't hurt to use it and it could actually give you a jump on your therapy.

Even if you get a cpap machine through your insurance save this one for a back-up. You're young and will eventually need another new one a long time from now.

Please try hard to do this! I think you will be happy you did.

Well if I don't have sleep apnea, will it be bad to get too much oxygen? They say I don't say thanks enough, but I want to say again that I cannot thank you enough. I'm going to be looking at the machine and instructions extensively. Do you think I have sleep apnea?
I'm not a doctor nor well versed in sleep apnea but I think you probably do because you have said what the doctor has told you.

You can't get too much oxygen from the machine because it''s simply air. Consider the difference between driving a car with the windows open verses driving with the top down. All the same air

Is it possible to NOT have sleep apnea officially and still benefit from the machine?

Re: Where is Robysue?

Posted: Wed Jun 24, 2015 7:06 pm
by library lady
Enchanter wrote:

I wonder if she gets my Private messages in her email? I am concerned for her too. Does anyone know how to get a hold of her?
Maybe she's away on vacation and isn't logging in... some people don't have smart phones so if she doesn't have access to a computer she may not respond to those PMs until she's home again... have some patience; we all have lives away from our computers.

When I vacation in the Boundary Waters I leave my phone alone. When I vacation at most other places I normally log in only occasionally and then only to my email.

Re: Where is Robysue?

Posted: Wed Jun 24, 2015 7:17 pm
by Pugsy
Enchanter wrote: Is it possible to NOT have sleep apnea officially and still benefit from the machine?
Yes. Sleep apnea is one type of sleep disorder but not the only type.
Right now UARS comes to my mind as something cpap is known to help but it doesn't meet official sleep apnea diagnosis criteria.
Upper Airway Resistance Syndrome
That's all that comes to my mind at the moment.
It can be a difficult diagnosis to make though because there aren't easily seen clear cut markers for it. A lot of time it is a diagnosis that is offered because the other usual stuff has been ruled out.
To know for sure with a measurement tool the Pes tool needs to be used.
DON'T go asking me if I think you have UARS...I don't have a clue at this time because we have zero data to form any conclusions from.

Given your history of problems sleeping...I don't think you want to go down the Pes route should it ever come to that. I know I sure wouldn't.
I would simply try the machine first and everything else I could think of.

Robysue has a family situation that sometimes takes a lot of her time...so if she isn't here it's because she only has so much energy to expend and her family comes first and she already gave you a LOT of her energy. I suspect that she simply isn't up to a time consuming interaction with someone right now.
Regarding her telling you that you must have OSA or the tech wouldn't have put a mask on you that first in lab sleep study. That's not exactly what she said because she and I both told you the same thing which is......
in most cases when the mask is introduced during a diagnostic sleep study then we assume that the tech has documented whatever criteria that lab uses to verify the need for the mask/cpap. The criteria can vary among labs. These techs do this enough they know what they are seeing or not seeing....or at least they should.
Without having a copy of that study to see what happened....we are just speculating but in most instances the addition of the mask means you got the OSA diagnosis. So Robysue and I both told you this...that in most situations that's what it means but we told you that it might have been for some other reason. I can't imagine a tech putting a mask on someone without good reason. Given the zero information that we have about any of your studies all we can do is tell you what happens most of the time. Are you an exception? Beats me but we have no way to know.

You are going to have to get the written results of the sleep tests and share with us for anyone here to have a chance of having any sort of rational idea about what is going on with you...and even then I don't know that it will be clear cut but right now asking us if we think you have so and so is pretty useless waste of time to keep coming up with stuff that it is simply impossible for any of us to be able to give you a definitive answer.

And in advance please don't start asking me a bunch of "what if" questions in Robysue's place. I don't have her patience for one thing and pretty much anything I would have told you has already been said by at least a dozen other people so no sense in my repeating it.
And finally I have family coming for an extended visit tomorrow and I won't be spending much time here on the forum for quite a while so I am not taking on any personal consults at this time because I can't devote the time needed to do a good job.

You need to sit down and have a face to face discussion with your DOCTOR...he is the one who ultimately calls the shots. That's the only way to get real definitive answers to your questions.

Re: Where is Robysue?

Posted: Wed Jun 24, 2015 7:57 pm
by Papit
Cardsfan wrote:when you go to take the test, you will be used to sleeping with a mask on if you start now.
Sounds like a winner! Even if you're reluctant to sleep with it right now, you could wear the mask while reading or watching TV. And get fully comfortable with it before the test.

After a couple days, you'll probably find yourself ready to watch TV with the mask AND the machine on at low pressure. But I'm not familiar with your machine. Others here can help with the pressure setting. You can turn it off in a second if you should want to because you're awake.

You don't necessarily have to sleep with it before the test. But don't you want to get started with the mask???

Re: Where is Robysue?

Posted: Thu Jun 25, 2015 1:32 am
by Enchanter
Papit wrote:
Cardsfan wrote:when you go to take the test, you will be used to sleeping with a mask on if you start now.
Sounds like a winner! Even if you're reluctant to sleep with it right now, you could wear the mask while reading or watching TV. And get fully comfortable with it before the test.

After a couple days, you'll probably find yourself ready to watch TV with the mask AND the machine on at low pressure. But I'm not familiar with your machine. Others here can help with the pressure setting. You can turn it off in a second if you should want to because you're awake.

You don't necessarily have to sleep with it before the test. But don't you want to get started with the mask???

Yea, I do. It's just that my mind is so out of sorts. Hard for me to do anything or concentrate, sometimes. I think I'm gonna study it more tomorrow.

Re: Where is Robysue?

Posted: Thu Jun 25, 2015 4:07 am
by Julie
Oh dear... just hold your nose, close your eyes and jump!

Re: Where is Robysue?

Posted: Thu Jun 25, 2015 4:19 am
by 49er
Julie wrote:Oh dear... just hold your nose, close your eyes and jump!
Agree with Julie Enchanter. As an FYI, speaking from personal experience, , be careful about over-thinking things. Sometimes, you need to just do it.

Re: Where is Robysue?

Posted: Thu Jun 25, 2015 4:21 am
by Enchanter
49er wrote:
Julie wrote:Oh dear... just hold your nose, close your eyes and jump!
Agree with Julie Enchanter. As an FYI, speaking from personal experience, , be careful about over-thinking things. Sometimes, you need to just do it.

I'll do it

Re: Where is Robysue?

Posted: Thu Jun 25, 2015 4:30 am
by 49er
Enchanter wrote:
49er wrote:
Julie wrote:Oh dear... just hold your nose, close your eyes and jump!
Agree with Julie Enchanter. As an FYI, speaking from personal experience, , be careful about over-thinking things. Sometimes, you need to just do it.

I'll do it
Great to hear. Please let us know what happens.

49er