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Re: "You sleep in survival mode"
Posted: Sun Jun 21, 2015 10:59 am
by lucrezaborgia
I sleep against the wall and my husband was camping this weekend so I found a way to put the machine next to me. That helped a lot with feeling awkward about sleeping on my side or stomach as I had a lot more hose length to work with and I woke up a lot less in the the night from seal leaks, as minor as they have been.
I looked at the data from last night via Sleepyhead and it appears I had one RERA and one apnea event the whole night. I doubt I'm that awesome so I'm going to assume that this machine is a really great piece of technology.
The pressure flow is almost constantly around 10 and my RX is set for auto 5-15. Which measurement data in Sleepyhead cones close to Pes measurement data?
Re: "You sleep in survival mode"
Posted: Sun Jun 21, 2015 11:42 am
by palerider
lucrezaborgia wrote:The pressure flow is almost constantly around 10
it helps to use the proper terminology for things, there is so much involved in the whole cpap thing, so many terms, that if you mix them up, things get totally confusing.
pressure and flow are two different things. there's a pressure trace in sleepyhead, and a flow trace in sleepyhead. if you zoom in, you'll see that FLOW varies up and down with each breath. pressure varies over time, usually pretty gentle changes over the span of minutes.
Re: "You sleep in survival mode"
Posted: Sun Jun 21, 2015 12:04 pm
by Pugsy
lucrezaborgia wrote:Which measurement data in Sleepyhead cones close to Pes measurement data?
There isn't one that I can think of that even remotely comes close.
SleepyHead can only report the data that these machines gather...nothing more and nothing less. It all starts with what the machines gather and they don't do anything that could mimic Pes measurements that I am aware of. If they could I would imagine the manufacturers would have a new use for their machines they could spout off about.
RERAs (as flagged by the machines) have been hinted at maybe being related to UARS so if someone were to go out on a long skinny limb they might put together a relationship there.
Same could be said of flow limitations.
When it comes to UARS there just isn't a lot of concrete proven information out there.
Perhaps Morbius would know if there is anything seen from the data collected that would maybe remotely correlate to Pes data. It's beyond my scope of knowledge which is other than the basics as to why Pes measurements are done and what the might indicate I haven't studied up on it at all.
Re: "You sleep in survival mode"
Posted: Sun Jun 21, 2015 1:49 pm
by lucrezaborgia
It will definitely be interesting to see what the sleep doctor has to say! Everything has been discussed via phone so far. I'm not sure if I see him for my one week or if he calls me to do another follow up and remotely changes the script if need be.
For those with mental health issues: do you find the extra energy affecting your mental state?
Re: "You sleep in survival mode"
Posted: Sun Jun 21, 2015 6:29 pm
by Susie Kay
lucrezaborgia wrote:For those with mental health issues: do you find the extra energy affecting your mental state?
I am not sure I understand your question. But it would make sense that sleep apnea causes some (many?) mental illnesses. So I would expect that CPAP could improve those conditions.
At least this doctor thinks so and has written a couple of pages of articles -
http://doctorstevenpark.com/index.php?s=depression
Re: "You sleep in survival mode"
Posted: Sun Jun 21, 2015 7:59 pm
by lucrezaborgia
It's an interesting link. I can see the logic but not sure if it's a chicken or egg situation.
Re: "You sleep in survival mode"
Posted: Sun Jun 21, 2015 8:17 pm
by kteague
It is hard to know how many of our problems were present before the sleep apnea or are a consequence. Keep in mind that the meds and their doses that worked well for your sleep deprived and stress hormone laden body and brain may not be the best med or dose for the new you. Do work closely with your doctor to sort through all this. One formerly active member here said she was on bipolar meds before CPAP. After going on the machine her bipolar symptoms got really bad as her rested brain did not need the same level of meds. In fact, she said she ended up off all those meds. Some on here have reported their depression improved with adequate oxygenated sleep. I would think things might take a while to level off and make adjustments. Good luck with everything.
Re: "You sleep in survival mode"
Posted: Sun Jun 21, 2015 8:31 pm
by lucrezaborgia
kteague wrote:Keep in mind that the meds and their doses that worked well for your sleep deprived and stress hormone laden body and brain may not be the best med or dose for the new you. Do work closely with your doctor to sort through all this.
My mood stabilizer doubles as a sleep med. I also take fish oil to. Between that and the cpap I will definitely monitor my mood to see if going down a bit on the dose is a possibility as it's affecting my weight, cholesterol, and triglycerides.
Re: "You sleep in survival mode"
Posted: Sat Jun 27, 2015 2:00 pm
by lucrezaborgia
I cannot log in at all from my computer. I've tried resetting my password and all I get is "you've exceeded the maximum allowed attempts etc. Enter code" but I don't see a code?
Re: "You sleep in survival mode"
Posted: Sat Jun 27, 2015 2:02 pm
by palerider
lucrezaborgia wrote:I cannot log in at all from my computer. I've tried resetting my password and all I get is "you've exceeded the maximum allowed attempts etc. Enter code" but I don't see a code?
sometimes you have to refresh the page multiple times for it to show up. the captcha is flaky
Re: "You sleep in survival mode"
Posted: Sat Jun 27, 2015 10:47 pm
by lucrezaborgia
I had major leaks the other night but that was because I'm trying to figure out where to put my machine as I sleep against the wall and experimented with putting it under the bed and that didn't go do well. Our bed is pretty high up! My husband slept in bed with me for the first time in months. He said it sounded like sleeping next to someone listening to their headphones (probably the leakage) but wasn't bothersome. I had a one week checkup with the medical equipment lady and she liked my data. I've taken to using a CPAP very easily and sleep 8 hours or more the from the first night. I'm still tweaking the humidity and positioning of the machine.
Other than that I still feel tired and am kinda mad at my brain for not letting me sleep more than 8 hours! My body needs more and I really shouldn't be napping due to my DSPS. Or is it hangover from my seroquel that I didn't notice before because I was so fucking tired anyways? I know that it takes a while for the body to adjust. Just wish my brain would get the fucking message!
Re: "You sleep in survival mode"
Posted: Sun Jun 28, 2015 12:57 pm
by lucrezaborgia
Is there a way to get my machine to start at a higher pressure without having my doctor change it? Five is too low and I can't seem to get it to auto sense unless I'm reading on my phone which kinda messes with my sleep hygiene.
Re: "You sleep in survival mode"
Posted: Sun Jun 28, 2015 1:13 pm
by kaiasgram
lucrezaborgia wrote:Is there a way to get my machine to start at a higher pressure without having my doctor change it? Five is too low and I can't seem to get it to auto sense unless I'm reading on my phone which kinda messes with my sleep hygiene.
Quick setup guide for the AirSense 10 showing how to access the clinical menu:
http://www.apneaboard.com/resmed-airsen ... setup-info
Re: "You sleep in survival mode"
Posted: Sun Jun 28, 2015 2:41 pm
by lucrezaborgia
Sweet thanks!
Re: "You sleep in survival mode"
Posted: Sun Jun 28, 2015 7:35 pm
by lucrezaborgia
Just posting to say thanks for all the support I've been given here. I don't think I would have been able to have taken to the therapy as easily as I have without everyone's help