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Re: I give up!!

Posted: Fri Apr 10, 2015 3:20 pm
by Wulfman...
robysue wrote:
Wulfman... wrote:What I really HATE is to see people suffering with their therapy and sleep quality and seeing people continue to keep recommending ranges of pressure when it's obvious that with their low AHI, the "quality" of their sleep IS the problem.
A big +1.

That said: In terms of chefmate's original posting, we don't have much to go on---except that chefmate was fed up to the point of serously considering quitting APAP altogether.

And (for now) chefmate has a plan to continue trying to make PAP therapy work, which is GOOD.

The fact that chefmate's plan involves switching from APAP to CPAP should not be an issue, and quite honestly, I don't see why folks are reacting so strongly to the fact that Den and I supported chefmate's plan.

Nor do I see why folks are "picking" on Den for his continual reminders that SOME folks do indeed sleep better when on fixed CPAP than on APAP. Most of us don't. I get that. But some people do. And if you're still feeling awful in spite of low AHI's and using the machine every night, it's not such a bad idea to try fixed pressure for a few days to see if you happen to be one of the people who sleep better using CPAP.
As Frank and Ed (Bartles & Jaymes) used to say in their TV commercials......."Thank you for your support".
(Well, actually Ed didn't say anything.)

But, I did post this link at the bottom of page 2 in this thread.......which shows some of his reports with lots of pressure variations caused by flow limitations......and a fairly low AHI.

viewtopic.php?f=1&t=104893&p=990474#p990474


Den

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Re: I give up!!

Posted: Fri Apr 10, 2015 3:48 pm
by ChicagoGranny
krikit wrote:...well you have my sympathy "I give up"....the welcome letter for this website says it's for all things C-Pap so all comments re this miserable device should be welcome. I was just "diagnosed" with moderate sleep apnea and am being pushed by my doctor to hurry up and get fitted. The second night of the study, II was unable to sleep at all with that mask. I couldn't stand to put my dentures in for a week afterwords because my mouth was so sore ~ not to mention being exhausted for two days after that horrible sleepless night. I have no sleep apnea symptoms and think this whole thing is a bunch of crap. My Medicare was charged a total of $4500 for this and they hardly paid anything so I have no idea how I'm gonna pay the balance. I'm in my late 60's and wanted to be able to stop working in December, but now with this hanging over my head I'm probably going to have to keep my cleaning jobs going. It seems to me that if the "getting used to it" process takes up to 6 months, more damage could be done to a persons health by the lack of sleep caused by this machine.
Somebody help this person with the Medicare issue. As in, you are not going to have to pay the balance of the amount billed to Medicare.

I'm suspicious that this is chefmate. He sneaked in a post (viewtopic.php?f=1&t=48377&st=0&sk=t&sd=a) as "Kerriirrek" and now this one comes out of nowhere as "krikit". Does chefmate have a fondness for names with two Ks in them? Is he playing games with us?

Re: I give up!!

Posted: Fri Apr 10, 2015 4:41 pm
by palerider
robysue wrote:Nor do I see why folks are "picking" on Den
I pick on Den because he's a tough old wolf that gives as good as he gets, and doesn't get his delicate feelings hurt... (at least so he assures me in private)

while I poke at him, I do have a lot of respect for his knowledge, and helpfulness around here. this place would be poorer without him.

Re: I give up!!

Posted: Fri Apr 10, 2015 5:27 pm
by Wulfman...
palerider wrote:
robysue wrote:Nor do I see why folks are "picking" on Den
I pick on Den because he's a tough old wolf that gives as good as he gets, and doesn't get his delicate feelings hurt... (at least so he assures me in private)

while I poke at him, I do have a lot of respect for his knowledge, and helpfulness around here. this place would be poorer without him.
I still think your avatar used to be this picture (or some variation of it).


Image


Den

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Re: I give up!!

Posted: Fri Apr 10, 2015 5:47 pm
by zoocrewphoto
Wulfman... wrote: What I really HATE is to see people suffering with their therapy and sleep quality and seeing people continue to keep recommending ranges of pressure when it's obvious that with their low AHI, the "quality" of their sleep IS the problem.

.

I agree. I love my apap, but we are all different. I can sleep through the pressure changes. I can look at data and see that it reach 15, 16, or 17 a few times, and I slept right through it. At the same time, I can watch my mom sleep through huge leak (major hissing), and I wouldn't last 30 seconds with that much hissing. My leak line is almost a flat line at zero because anything else wakes me up.

Clearly, things that bother me don't bother everybody. And things that don't bother me DO bother some people. So, it helps to give each person ALL the options so that they can find out what works best for them. If somebody has good numbers, but still doesn't feel good, it is probably a sleep quality issue or a non-sleep issue. And that can be really hard to figure out. We need to offer as many ideas as possible. You never know which one is going to be the awesome solution that somebody needs. For me, the really awesome solution was the smaller size headgear that I got 6 weeks into treatment. The first DME lied and said it didn't exist, so I switched DMEs, got the new headgear,and my sleep improved instantly.

Re: I give up!!

Posted: Fri Apr 10, 2015 6:11 pm
by palerider
Wulfman... wrote:I still think your avatar used to be this picture (or some variation of it).


Image
I'm about 99% sure it wasn't....

though that is a good one, and it wouldn't confuse pesser as much... I'd have to photoshop a halo on clint *lol*

Re: I give up!!

Posted: Fri Apr 10, 2015 7:01 pm
by coolbranch

Re: I give up!!

Posted: Fri Apr 10, 2015 7:05 pm
by palerider
coolbranch wrote:Relevant?
Maybe not.

https://www.youtube.com/watch?v=VKNSmw8jdBY
I'll never tell.

Re: I give up!!

Posted: Fri Apr 10, 2015 7:16 pm
by coolbranch
palerider
I'll never tell.
It's all good. Gotta go. Animal House is on. Gotta reminisce my childhood.