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don't know why it's still messed up when I put in the "l"
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Sleepysuz wrote:Krevilin Thank you! didn't realize I copied the wrong code sorry for the confusion
Trying once more

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put the l *before* the period.

I moved the l before the period in one of yours here:

Am a bit dyslexic Thanks for your patience!

Sleepysuz wrote:Am a bit dyslexic Thanks for your patience!

I can't figure out how to get all the instructions in a post, because it won't show the codes you need, instead, it acts on them, so I did it all up, and made a screenshot of my posting, and posted that...

let me know if this makes it all clear

That's what I needed. Nothing like a sample!

Sleepysuz wrote:That's what I needed. Nothing like a sample!

now you can go back and edit your previous posts (if you want) so they look MARVELOUS! *grin*

From what I see, Auto mode won't address those clusters. They appear to be "frank" (virtually no preceding VS or FL events) and the lack of those events (typically) won't cause the APAP to increase pressures......and, it appears that 10 cm. or higher will give you aerophagia.

I (also) would suggest trying 9.5 and see how that works for a few nights.

You MAY be a candidate for a Bi-PAP machine. I have no idea what the pressures might be, but you'd probably have to have another sleep study to determine them.

The curious part is the "clusters". What's causing them? Even if they're occurring during REM or a deep sleep stage, each one of those apnea markers represents a 10 second (or more) period of not breathing. That could be some serious oxygen desaturation by the time they stop. And, they're being flagged as Obstructive as opposed to Central.

Maybe another sleep study could determine when and why they're occurring.
And, maybe an overnight "pulse-ox" trial could tell how much desaturation is occurring.


Den

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Nothing is ever simple. Just recovered from a stress fracture in my arch. The Otho said he'd never seen one like that.
Had another medical issue. Dr said he'd only seen it twice in athletic 15 year olds. (I was 51 at the time). LOL.
Will try it for the next 3 nite sat 9.5-15 and go back to the doc if that doesn't nip it in the bud.

On the plus side I am feeling like a new person compared to before cpap. Fell asleep eating dinner one night. Had a headache more than not. I must have really been a mess then! The shame of it is I had a sleep study 12 years ago. The place was so cold I didn't get to sleep until 5am as my hands were aching. They said they didn't have more blankets. Didn't get any results from that. I complained but they wouldn't cover another one. Wonder what the toll has been on my body?
Got a new doctor recently who wanted to pursue it - thankfully!

Actually a re titration in lab sleep study with a bipap probably wouldn't be needed unless something weird pops up.
It's not all that difficult to find a suitable bilevel pressure unless there are some complicating factors. Worth trying for sure at home first.
A new sleep study can always be plan B. An in lab sleep study with bilevel might find the pressure needed to deal with the clusters but the aerophagia issue will need to be resolved with trial and error and they can't tell that in the sleep lab. They would just use whatever pressure it takes and aerophagia will or will not happen. Sort of like the idea to use 15...You may need 15 for those clusters but the belly pain will also stop the clusters because it will wake you up long before the clusters happen.

Having the max at 15 is unlikely to help. Just because it can go there doesn't mean it will go there and for if some reason it doesn't want to go above 12 it won't go there no matter what the maximum is.

By George I'm starting to understand this stuff with all this help. 9.5-12 tonite it is

Sleepysuz wrote:Nothing is ever simple. Just recovered from a stress fracture in my arch. The Otho said he'd never seen one like that.
Had another medical issue. Dr said he'd only seen it twice in athletic 15 year olds. (I was 51 at the time). LOL.
Will try it for the next 3 nite sat 9.5-15 and go back to the doc if that doesn't nip it in the bud.

On the plus side I am feeling like a new person compared to before cpap. Fell asleep eating dinner one night. Had a headache more than not. I must have really been a mess then! The shame of it is I had a sleep study 12 years ago. The place was so cold I didn't get to sleep until 5am as my hands were aching. They said they didn't have more blankets. Didn't get any results from that. I complained but they wouldn't cover another one. Wonder what the toll has been on my body?
Got a new doctor recently who wanted to pursue it - thankfully!

I meant straight 9.5......not a range of pressures.

Edit: Because......without the preceding events, the APAP won't respond (properly), so all the higher pressure settings are going to do is fill your belly with air......needlessly.


Den

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Pugsy wrote:Actually a re titration in lab sleep study with a bipap probably wouldn't be needed unless something weird pops up.
It's not all that difficult to find a suitable bilevel pressure unless there are some complicating factors. Worth trying for sure at home first.
A new sleep study can always be plan B. An in lab sleep study with bilevel might find the pressure needed to deal with the clusters but the aerophagia issue will need to be resolved with trial and error and they can't tell that in the sleep lab. They would just use whatever pressure it takes and aerophagia will or will not happen. Sort of like the idea to use 15...You may need 15 for those clusters but the belly pain will also stop the clusters because it will wake you up long before the clusters happen.

Having the max at 15 is unlikely to help. Just because it can go there doesn't mean it will go there and for if some reason it doesn't want to go above 12 it won't go there no matter what the maximum is.

I disagree. A sleep study (all wired up) will tell them what sleep stage she's in if/when the clusters appear and what her oxygen levels go to......and maybe some other stuff.


Den

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Wulfman... wrote:I disagree. A sleep study (all wired up) will tell them what sleep stage she's in if/when the clusters appear and what her oxygen levels go to......and maybe some other stuff.

Wasn't that all done with the first titration?
Would be interesting to see what either of the original sleep studies said though. Especially any mention as to position or sleep stage change in apnea events.
If whatever is causing the clusters doesn't present itself in the sleep lab...well it will end up like my titration sleep study...big frigging waste of time and money.

I did say "Plan B"

Just out of curiosity I pulled out the sleep study from July 30th. The REM periods correspond with the clusters. They are at similar intervals as all my recent Sleepyhead charts I was supine a lot but on my right side for the last cluster which was very long
Early in the study was one other big cluster before the first REM where O2 went down to 88.9 right after it but avg desat is 3.4%

Pugsy wrote:

Wulfman... wrote:I disagree. A sleep study (all wired up) will tell them what sleep stage she's in if/when the clusters appear and what her oxygen levels go to......and maybe some other stuff.

Wasn't that all done with the first titration?
Would be interesting to see what either of the original sleep studies said though. Especially any mention as to position or sleep stage change in apnea events.
If whatever is causing the clusters doesn't present itself in the sleep lab...well it will end up like my titration sleep study...big frigging waste of time and money.

I did say "Plan B"

How the H-E-double-hockey-sticks should I know?
Does "Sleepysuz" have a copy of her initial sleep study? Was any of that noted on it?

If not, I'd suggest getting a copy of the sleep study and finding out.......along with quizzing the doctor about it and if it WAS noted, and now why it only seems to being addressed with......"now let's set the machine at 15 cm. and see if we can REALLY blow her up"?

Sorry if I'm sounding a little grumpy, but some of this (regarding the sleep doctors) really pisses me off!


Den

Edit: Noting I read her last post regarding the sleep study.
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