Owned 4 Remeds and a weird thing has happened with each. Hard to discribe in title. Pls let me know if this happens 2 U

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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palerider
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Re: Owned 4 Remeds and a weird thing has happened with each. Hard to discribe in title. Pls let me know if this happens

Post by palerider » Tue Mar 28, 2023 11:34 pm

sreiter wrote:
Tue Mar 28, 2023 6:54 pm
palerider wrote:
Tue Mar 28, 2023 6:15 pm
sreiter wrote:
Tue Mar 28, 2023 6:12 pm
My DR changed my machine to APAP at my request. I'll see if that does anything.
With what settings?
max pressure - 12
min pressure - 8
:facepalm:

you've been at a fixed pressure of 12, going to a min pressure of 8 is going to be.... interesting.

:shaking head:

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Re: Owned 4 Remeds and a weird thing has happened with each. Hard to discribe in title. Pls let me know if this happens

Post by sreiter » Wed Mar 29, 2023 3:10 pm

palerider wrote:
Tue Mar 28, 2023 11:34 pm
sreiter wrote:
Tue Mar 28, 2023 6:54 pm
palerider wrote:
Tue Mar 28, 2023 6:15 pm
sreiter wrote:
Tue Mar 28, 2023 6:12 pm
My DR changed my machine to APAP at my request. I'll see if that does anything.
With what settings?
max pressure - 12
min pressure - 8
:facepalm:

you've been at a fixed pressure of 12, going to a min pressure of 8 is going to be.... interesting.

:shaking head:
um, no. I previously posted it was fixed at 8 when the machine was set to cpap. I JUST saw my Doc last Thursday and he changed it to the settings i just posted sometime between then and now.

Why would you think it I've been at a fix pressure of 12, or for that matter, in APAP mode, I'd ever even hit 12? Doesnt auto give you what you need within whatever max min range you have?

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Pugsy
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Re: Owned 4 Remeds and a weird thing has happened with each. Hard to discribe in title. Pls let me know if this happens

Post by Pugsy » Wed Mar 29, 2023 3:16 pm

sreiter wrote:
Wed Mar 29, 2023 3:10 pm
Doesnt auto give you what you need within whatever max min range you have?
Not always or actually...rarely.
If it did all people would need is minimum of 4 and max of 20 and no one would have problems or complaints or need anything in the way of follow up.
It would take an "ideal world" for it to be that simple and rarely is anyone ever in an ideal world.

The minimum pressure is the most critical pressure setting anyway. Sometimes it needs some help to optimize treatment.

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Re: Owned 4 Remeds and a weird thing has happened with each. Hard to discribe in title. Pls let me know if this happens

Post by sreiter » Wed Mar 29, 2023 7:22 pm

Pugsy wrote:
Wed Mar 29, 2023 3:16 pm
sreiter wrote:
Wed Mar 29, 2023 3:10 pm
Doesnt auto give you what you need within whatever max min range you have?
Not always or actually...rarely.
If it did all people would need is minimum of 4 and max of 20 and no one would have problems or complaints or need anything in the way of follow up.
It would take an "ideal world" for it to be that simple and rarely is anyone ever in an ideal world.

The minimum pressure is the most critical pressure setting anyway. Sometimes it needs some help to optimize treatment.
WOW. Interesting. I guess a was sold a bill of goods. So, does being on auto mean its worse than straight cpap with a fixed setting? ugh. Wish I would have started this thread years ago. So much to learn. Maybe one day I'll actually get benefit from the machine. Been using a machine 20+ years and never felt any benefit. I only stay on it because I need to stay in compliance for a script of modafinal. it would be nice if I didnt need drug to stay awake/alert etc.

thank you for your response

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Pugsy
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Re: Owned 4 Remeds and a weird thing has happened with each. Hard to discribe in title. Pls let me know if this happens

Post by Pugsy » Wed Mar 29, 2023 7:34 pm

sreiter wrote:
Wed Mar 29, 2023 7:22 pm
So, does being on auto mean its worse than straight cpap with a fixed setting?
No, not worse ....as long as the minimum is optimally set...and sometimes auto works better for some people.
Like me...I am a prime example of why auto mode works best for me.
Let me explain...my OSA is 5 times worse in REM sleep (documented in the in lab sleep study that I had) where my diagnostic AHI was around 14 in non REM and 54 in REM. I also happen to need 6 to 8 cm more pressure when in REM.
For me to use fixed cpap mode I would have to use 6 to 8 cm MORE pressure ALL NIGHT LONG so that my REM events are prevented. It's much easier to use around 8 or 9 cm for the bulk of the night when I am not in REM and let the machine go up to 15 or so than it would be for me to use 15 cm all night long.

Same thing can happen for people who happen to have their OSA worsen dramatically when they are on their backs vs on their sides. I know one person who needs 19 cm when on their back and only 9 cm when on their side.

So for some people auto mode is a better choice...other people may not have a big difference in pressure needs so going to a fixed pressure isn't going to be a problem and some people just feel like they sleep better and feel better with fixed pressures.

Me....I don't want to use 15 cm all night just to take care of the 20% of the night I might be in REM and need more pressure.
I prefer auto adjusting mode and let the machine sort it out. I sleep through the changes anyway.

So auto mode isn't a bad thing at all. Sometimes it's the best thing for some people.

_________________
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palerider
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Re: Owned 4 Remeds and a weird thing has happened with each. Hard to discribe in title. Pls let me know if this happens

Post by palerider » Wed Mar 29, 2023 11:36 pm

sreiter wrote:
Wed Mar 29, 2023 3:10 pm
palerider wrote:
Tue Mar 28, 2023 11:34 pm
sreiter wrote:
Tue Mar 28, 2023 6:54 pm
palerider wrote:
Tue Mar 28, 2023 6:15 pm
sreiter wrote:
Tue Mar 28, 2023 6:12 pm
My DR changed my machine to APAP at my request. I'll see if that does anything.
With what settings?
max pressure - 12
min pressure - 8
:facepalm:

you've been at a fixed pressure of 12, going to a min pressure of 8 is going to be.... interesting.

:shaking head:
um, no. I previously posted it was fixed at 8 when the machine was set to cpap. I JUST saw my Doc last Thursday and he changed it to the settings i just posted sometime between then and now.

Why would you think it I've been at a fix pressure of 12, or for that matter, in APAP mode, I'd ever even hit 12? Doesnt auto give you what you need within whatever max min range you have?
The last pic you posted, mask pressure: 11.9.
Image

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Accounts to put on the foe list: dataq1, clownbell, gearchange, lynninnj, mper!?, DreamDiver, Geer1, almostadoctor, sleepgeek, ajack, stom, mogy, D.H., They often post misleading, timewasting stuff.

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Dog Slobber
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Re: Owned 4 Remeds and a weird thing has happened with each. Hard to discribe in title. Pls let me know if this happens

Post by Dog Slobber » Thu Mar 30, 2023 4:53 pm

sreiter wrote:
Wed Mar 29, 2023 7:22 pm
Maybe one day I'll actually get benefit from the machine. Been using a machine 20+ years and never felt any benefit. I only stay on it because I need to stay in compliance for a script of modafinal.
Statements like this really need to be challenged.

Yes, it appears like your therapy could be optimized. And maybe it *feels* like you're not getting any benefits, or feeling refreshed.

But this idea that is *very prevalent* by CPAP users that if they're not sleeping great or feel benefits, CPAP therapy is not helping them, is nonsense.

Your 20+ years of CPAP therapy has in all likely stopped damaging your body that was being done and probably repaired a lot of it. There are a lot of people who weren't diagnosed with Sleep Apnea or abandoned CPAP, 20+ years ago. They're not complaining, because they're dead.

I'm not feeling any benefit from the Statins I take daily. Should I stop taking them?

sreiter
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Re: Owned 4 Remeds and a weird thing has happened with each. Hard to discribe in title. Pls let me know if this happens

Post by sreiter » Fri Mar 31, 2023 11:56 pm

Pugsy wrote:
Wed Mar 29, 2023 7:34 pm
sreiter wrote:
Wed Mar 29, 2023 7:22 pm
So, does being on auto mean its worse than straight cpap with a fixed setting?
No, not worse ....as long as the minimum is optimally set...and sometimes auto works better for some people.
Like me...I am a prime example of why auto mode works best for me.
Let me explain...my OSA is 5 times worse in REM sleep (documented in the in lab sleep study that I had) where my diagnostic AHI was around 14 in non REM and 54 in REM. I also happen to need 6 to 8 cm more pressure when in REM.
For me to use fixed cpap mode I would have to use 6 to 8 cm MORE pressure ALL NIGHT LONG so that my REM events are prevented. It's much easier to use around 8 or 9 cm for the bulk of the night when I am not in REM and let the machine go up to 15 or so than it would be for me to use 15 cm all night long.

Same thing can happen for people who happen to have their OSA worsen dramatically when they are on their backs vs on their sides. I know one person who needs 19 cm when on their back and only 9 cm when on their side.

So for some people auto mode is a better choice...other people may not have a big difference in pressure needs so going to a fixed pressure isn't going to be a problem and some people just feel like they sleep better and feel better with fixed pressures.

Me....I don't want to use 15 cm all night just to take care of the 20% of the night I might be in REM and need more pressure.
I prefer auto adjusting mode and let the machine sort it out. I sleep through the changes anyway.

So auto mode isn't a bad thing at all. Sometimes it's the best thing for some people.
Thank you for the explanation

sreiter
Posts: 61
Joined: Wed Mar 08, 2023 12:59 am

Re: Owned 4 Remeds and a weird thing has happened with each. Hard to discribe in title. Pls let me know if this happens

Post by sreiter » Sat Apr 01, 2023 12:03 am

palerider wrote:
Wed Mar 29, 2023 11:36 pm
The last pic you posted, mask pressure: 11.9.
Image
hmmmm. I guess I didnt realize he had changed the machine. Weird thing, he tried increase it in CPAP mode to 9 or 10 and i felt it was too strong. Maybe like pugs mentioned when 1st falling asleep I need less pressure, but for this time frame. I checked the whole sleep cycle. I went from High 7's to a 13 for a short time (i guess "max" really is max, or theres a bug in oscar). The majority of time was was between 8-9 on the low side and 11-12 on the high side. There was definite fluctuation in pressure throught the night

thanks for catching that
Last edited by sreiter on Sat Apr 01, 2023 12:28 am, edited 1 time in total.

sreiter
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Joined: Wed Mar 08, 2023 12:59 am

Re: Owned 4 Remeds and a weird thing has happened with each. Hard to discribe in title. Pls let me know if this happens

Post by sreiter » Sat Apr 01, 2023 12:17 am

Dog Slobber wrote:
Thu Mar 30, 2023 4:53 pm
sreiter wrote:
Wed Mar 29, 2023 7:22 pm
Maybe one day I'll actually get benefit from the machine. Been using a machine 20+ years and never felt any benefit. I only stay on it because I need to stay in compliance for a script of modafinal.
Statements like this really need to be challenged.

Yes, it appears like your therapy could be optimized. And maybe it *feels* like you're not getting any benefits, or feeling refreshed.

But this idea that is *very prevalent* by CPAP users that if they're not sleeping great or feel benefits, CPAP therapy is not helping them, is nonsense.

Your 20+ years of CPAP therapy has in all likely stopped damaging your body that was being done and probably repaired a lot of it. There are a lot of people who weren't diagnosed with Sleep Apnea or abandoned CPAP, 20+ years ago. They're not complaining, because they're dead.

I'm not feeling any benefit from the Statins I take daily. Should I stop taking them?
Your point is taken, however if you knew how bad my health is, you'd be hard pressed to say its improved my well being. I may have, but there is literally no way to know. Based on my health, I seriously dont think its done any good. Irrespective of that, the function of a cpap machine is to stop you from having micro arousal which wake you up / interfere with your sleep. If sleep, you' get rest, you're body recuperates, you feel more energetic, you feel rested, all is right with the world. How many people say that once they get therapy? The people who dont arent getting the benefit "advertised"

As far as statins go, there is literally zero PROOF they do anything. Its theorized that can help prevent heart disease because it lowers cholesterol. If you arent seeing you cholesterol lower than you're DR is a quack and you absolutely should be off.

You also are putting yourself at risk for muscle pain, digestive problems and mental fuzziness and liver damage. So if you're not feeling any benefit, I'd have a long talk with my DR. If I didnt feel any benefit, I'd tell my DR I'm discounting use

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Dog Slobber
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Re: Owned 4 Remeds and a weird thing has happened with each. Hard to discribe in title. Pls let me know if this happens

Post by Dog Slobber » Sat Apr 01, 2023 8:09 am

sreiter wrote:
Sat Apr 01, 2023 12:17 am

Your point is taken
Your response suggests anything but taking the point.

Given your CPAP is interfering with your sleep, and you believe you are not deriving any benefit, unplug it and put it in the closet.

Why are you here?

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ChicagoGranny
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Re: Owned 4 Remeds and a weird thing has happened with each. Hard to discribe in title. Pls let me know if this happens

Post by ChicagoGranny » Sat Apr 01, 2023 11:29 am

sreiter wrote:
Sat Apr 01, 2023 12:17 am
the function of a cpap machine is to stop you from having micro arousal
No. The function of CPAP is to splint the user's airway open during sleep.

sreiter
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Re: Owned 4 Remeds and a weird thing has happened with each. Hard to discribe in title. Pls let me know if this happens

Post by sreiter » Sun Apr 02, 2023 10:52 am

Dog Slobber wrote:
Sat Apr 01, 2023 8:09 am
sreiter wrote:
Sat Apr 01, 2023 12:17 am

Your point is taken
Your response suggests anything but taking the point.

Given your CPAP is interfering with your sleep, and you believe you are not deriving any benefit, unplug it and put it in the closet.

Why are you here?
1. point taken in regards to I understand the point you're trying to make, although by way or your statin analogy, I'm not sure you do.
2. Had you read the next sentence after "I dont feel any benefit", you'd know why I dont
3. If you read the OP, or even the title, you'd know why I was here.

sreiter
Posts: 61
Joined: Wed Mar 08, 2023 12:59 am

Re: Owned 4 Remeds and a weird thing has happened with each. Hard to discribe in title. Pls let me know if this happens

Post by sreiter » Sun Apr 02, 2023 11:09 am

ChicagoGranny wrote:
Sat Apr 01, 2023 11:29 am
sreiter wrote:
Sat Apr 01, 2023 12:17 am
the function of a cpap machine is to stop you from having micro arousal
No. The function of CPAP is to splint the user's airway open during sleep.
Po-tay-toe / Pa-tot-oh.

Whats happens when one has a obstructive airway? One's brain wakes up, aka disrupts ones sleep, long enough to cause the tongue and soft palate to "un-relax".

CPAPs force enough air into your airway that keep your tongue and soft palate to as you wrote "splint the airway open", which has the net effect of allowing you to have "uninterrupted sleep" or put another way stops your brain from waking up for micro amounts of time (know as micro arousal's) which cause the body to "un-relax" ones tongue and soft palate