Updates (part 1: Sleep stuff)

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
User avatar
robysue1
Posts: 130
Joined: Sun Sep 18, 2022 3:39 pm
Location: Buffalo, NY

Updates (part 1: Sleep stuff)

Post by robysue1 » Sun Sep 18, 2022 10:01 pm

So here is the first update on robysue. This is the sleep stuff, and it also addresses the things that I was once upon a time (in)famous for.

Overall sleep stuff:

Most mornings I wake up feeling decent enough and without a headache. And the hand & foot pain that I had before starting PAPing almost 12 years ago is still absent.

I still have delayed sleep phase problems, but because of my job as a college professor, the fix for this is to just sleep when the body wants to sleep, which often (but not always) means going to be around 2:30 and getting up around 8:30. And on some nights I actually get sleepy as early as midnight or even 11:30 and on those nights I can go to bed and get to sleep in a reasonable amount of time.

The insomnia is mostly under control these days and without any sleep medication. By "mostly" under control, I mean that the nights where I am aware I'm not sleeping for long chunks after I go to bed correspond pretty closely to known stressers in my life. (The main one is my cousin who is currently living with us, but that's another whole different story.) But there are nights, usually when I'm under stress induced by the cousin, where I lie awake not sleeping for longer than I should, and yes, on those nights the BiPAP still manages to bother me.

The AHI is usually between 1 and 3. Sometimes it's higher for no good reason. Sometimes it's lower, but I can't really tell much difference in how I feel on an odd night with a "great" AHI of 1. 0 or lower and a "mediocre" one of 3.5 or higher.

I don't look at my data much anymore. Although I did look at it tonight before posting this, and I'm surprised that there is more taking my mask off stuff than I expected. (As a newbie, taking my mask off was not one of my many, many problems, possibly because I was getting so little sleep and I was literally afraid to take it off while I was actually awake and suffering from what seemed (to me) to be the world's worst case of aerophagia. Now I do know on some of the nights, the long times without a mask probably correspond to periods where I woke up hot and could not get back to sleep and the air blowing into my stomach was bothering me and I didn't want to get out of bed. But on some nights, I'm genuinely surprised by the times that the mask is/is not on.

Aerophagia had not been a problem for several years. But it's come back this summer. Not all every night, but enough of the time where it bugs me to lie in bed (NOT looking at the clock) knowing I'm not sleeping because my stomach is getting rock hard.

I'm still using the same old settings on my System One BiPAP: Min EPAP 4cm, Max IPAP 9cm, Variable PS range is 3-5cm. Yes, the 95% IPAP is almost always 9cm. The median IPAP is almost always less than 7.5. The 95% EPAP is seldom much above 4cm. Every time I changed these settings, it led to pretty bad aerophagia. So I've learned not to chase an AHI < 1.0 all the time.

I'm still alternating between the P10 and the Swift FX masks. While I like the weight of the P10 and the "no jet stream" exhaust flow, I have problems with the mesh getting clogged with water from the humidifier. And that will wake me up. My nose still wants lots of humidity, so the machine is currently set in "Classic 5" which seems to translate to "try to drown me" and my nose is happy enough. If I turn the humidifier down or switch to "Smart" mode (or whatever it's called), the nose can tolerate it for a week or so and then starts screaming about being dried out. The P10 headgear, minimal as it is, also gets tied up pretty bad in my curly hair and slips around more than I would like while at the same time the pillows themselves are not as comfy as the FX's are. The FX jet stream exhaust flow never gets blocked by humidity building up in it and through the years, I've learned ways to accommodate that jet stream exhaust flow. With ancient Pad-a-cheek covers for the silicon headgear, I like the way the headgear fits better when it's cold enough to wear fleece on my head. (Winters in Buffalo are nice for the FX.)

I am having real problems with migraines these days. And some of that is, alas, sleep related. So part of why I'm back is that I need to go through another round of climbing back on the horse and working hard to fix the sleep problems that are starting to emerge before they have a chance to become big, monster sleep problems that will require huge amounts of work to fix.

And a final couple of bits of info: I'm now officially without a sleep doctor since the one who was so helpful in finally getting me over the nasty set of problems I encountered starting up retired. And I'm also now officially without a DME since the one who sold me both my BiPAPs (and my husband's APAP) went out of business a couple of years ago. I did sign up for the recalls with the PR website back when the recall was first announced, but the last time I tried to check on an update, the site was complaining that we didn't have a DME and until we have a DME, it's not clear we'll even get on the recall list. So that's another thing to be done.

I'll write another update on what I've actually been doing with myself probably tomorrow.

It's good to be back. :)

_________________
Machine: DreamStation BiPAP® Auto Machine
Mask: Swift™ FX Nasal Pillow CPAP Mask with Headgear
Humidifier: DreamStation Heated Humidifier
Additional Comments: Also use a P10 mask
First joined as robysue on September 18, 2010. Forgot my password and the email account I used to sign up was on a machine that has long since died and gone to computer heaven.

Correct number of my posts is 7250 as robysue + whatever I have as robysue1

User avatar
Rubicon
Posts: 377
Joined: Sun Feb 20, 2022 6:59 am

Re: Updates (part 1: Sleep stuff)

Post by Rubicon » Mon Sep 19, 2022 4:28 am

robysue1 wrote:
Sun Sep 18, 2022 10:01 pm
I still have delayed sleep phase problems, but because of my job as a college professor, the fix for this is to just sleep when the body wants to sleep...
We should add our sleep together and reallocate it into equal halves. My ASPS is even more ridiculous, and the worst day of the year ("Fall Back") is rearing it's head on the horizon. That said, I've retired, and since I love the early AM I just freewheel. I am where I am when I am.

When the need arises, there's always biphasic sleep in a pinch.

The basic rule of sleep disorders-- A problem is a problem only if it's a problem.
You have to know what's broken before you can try to fix it...

User avatar
robysue1
Posts: 130
Joined: Sun Sep 18, 2022 3:39 pm
Location: Buffalo, NY

Re: Updates (part 1: Sleep stuff)

Post by robysue1 » Mon Sep 19, 2022 6:38 am

When the need arises, there's always biphasic sleep in a pinch.
That's my husband. And it's been his sleep pattern for close to 10 years now.

But it works for him, so neither he nor I care to try to "fix" it. :)

_________________
Machine: DreamStation BiPAP® Auto Machine
Mask: Swift™ FX Nasal Pillow CPAP Mask with Headgear
Humidifier: DreamStation Heated Humidifier
Additional Comments: Also use a P10 mask
First joined as robysue on September 18, 2010. Forgot my password and the email account I used to sign up was on a machine that has long since died and gone to computer heaven.

Correct number of my posts is 7250 as robysue + whatever I have as robysue1

User avatar
zonker
Posts: 9549
Joined: Fri Jun 19, 2015 4:36 pm

Re: Updates (part 1: Sleep stuff)

Post by zonker » Mon Sep 19, 2022 3:47 pm

robysue1 wrote:
Sun Sep 18, 2022 10:01 pm


I'm still alternating between the P10 and the Swift FX masks. While I like the weight of the P10 and the "no jet stream" exhaust flow, I have problems with the mesh getting clogged with water from the humidifier. And that will wake me up.
have you tried the barrell cozy from pad-a-cheek for the P10? it worked a treat for stopping rainout for me. that and the short hose cover.

only drawback for me is the the barrell cozy alters the shape of the pillows JUST enough that in can be troublesome to get them on "just right". or so it is for me.
"the world is full of good people. if you can't find one, be one."-sleepgeek(avatar)

"I'd rather laugh with the sinners than cry with the saints
The sinners are much more fun
You know that only the good die young"-billy joel

User avatar
robysue1
Posts: 130
Joined: Sun Sep 18, 2022 3:39 pm
Location: Buffalo, NY

Re: Updates (part 1: Sleep stuff)

Post by robysue1 » Mon Sep 19, 2022 6:18 pm

zonker wrote:
Mon Sep 19, 2022 3:47 pm
have you tried the barrell cozy from pad-a-cheek for the P10? it worked a treat for stopping rainout for me. that and the short hose cover.

only drawback for me is the the barrell cozy alters the shape of the pillows JUST enough that in can be troublesome to get them on "just right". or so it is for me.
I've tried the Pad-a-Cheek barrel cozy for the P10. It does help (a bit) keep the silicone from touching my upper lip, but it doesn't really stop the mesh from getting clogged with the water vapor for me.

I love the Pad-a-Cheek barel cozies for the Swift FX pillows.

I have a love/hate relationship with both masks. And which I prefer really depends on the ambient weather and what I'm willing to put up with.

For the Swift FX:
Likes include
1) The headgear can be worn excessively loose.

2)The pillows are soft and squishy.

3) I almost never have any excess leaks.

4) The Pad-a-cheek headgear cover so the headgear does not get trapped in my curls.

Dislikes include
1) The jet stream exhaust vent that blows on my arms.

2) The heavier-than-it-should-be short hose.


For the P10:
Likes include:
1) The lightweight headgear that has no silicone touching my face.

2) The lightweight short hose.

3) The diffused exhaust venting as long as the mesh is not too clogged up.

Dislikes include:
1) The pillows sit on a hard platform and so the whole affect is that the pillows are not as soft and squishy as the FX's are.

2) The headgear slips around on my head and simultaneously gets caught in my curls. And this can cause the pillows to unseat. So I have more problems with leaks with the P10 than with the FX

3) The mesh can take a long time to dry after washing the short hose.

_________________
Machine: DreamStation BiPAP® Auto Machine
Mask: Swift™ FX Nasal Pillow CPAP Mask with Headgear
Humidifier: DreamStation Heated Humidifier
Additional Comments: Also use a P10 mask
First joined as robysue on September 18, 2010. Forgot my password and the email account I used to sign up was on a machine that has long since died and gone to computer heaven.

Correct number of my posts is 7250 as robysue + whatever I have as robysue1

User avatar
zonker
Posts: 9549
Joined: Fri Jun 19, 2015 4:36 pm

Re: Updates (part 1: Sleep stuff)

Post by zonker » Mon Sep 19, 2022 6:58 pm

robysue1 wrote:
Mon Sep 19, 2022 6:18 pm



2) The headgear slips around on my head and simultaneously gets caught in my curls. And this can cause the pillows to unseat. So I have more problems with leaks with the P10 than with the FX

3) The mesh can take a long time to dry after washing the short hose.
someone here(grumpyhere, i think) recommended veterinary tape. wrap it around the head straps to help keep them from sliding about.

and i find that using a waterpik (chunkyfrog recommended) on the mesh then drying it with a cloth really cleans it up. careful with that waterpik, though. best to use it in the shower as it has a tendency to go everywhere!
"the world is full of good people. if you can't find one, be one."-sleepgeek(avatar)

"I'd rather laugh with the sinners than cry with the saints
The sinners are much more fun
You know that only the good die young"-billy joel

User avatar
robysue1
Posts: 130
Joined: Sun Sep 18, 2022 3:39 pm
Location: Buffalo, NY

Re: Updates (part 1: Sleep stuff)

Post by robysue1 » Mon Sep 19, 2022 7:06 pm

zonker wrote:
Mon Sep 19, 2022 6:58 pm
and i find that using a waterpik (chunkyfrog recommended) on the mesh then drying it with a cloth really cleans it up. careful with that waterpik, though. best to use it in the shower as it has a tendency to go everywhere!
I don't own a waterpik and I don't particularly want to buy one.

The P10 is my usual summer time mask because the headgear is so much lighter and i don't need to wrap it in a fleece cover from Pad-a-cheek.

The FX is my usual fall, winter, and spring mask when the fleece cover is a welcome addition to a cool bedroom with lots of blankets on my bed.

_________________
Machine: DreamStation BiPAP® Auto Machine
Mask: Swift™ FX Nasal Pillow CPAP Mask with Headgear
Humidifier: DreamStation Heated Humidifier
Additional Comments: Also use a P10 mask
First joined as robysue on September 18, 2010. Forgot my password and the email account I used to sign up was on a machine that has long since died and gone to computer heaven.

Correct number of my posts is 7250 as robysue + whatever I have as robysue1

GrumpyHere
Posts: 469
Joined: Sat Feb 13, 2021 2:40 am

Re: Updates (part 1: Sleep stuff)

Post by GrumpyHere » Tue Sep 20, 2022 1:17 am

zonker wrote:
Mon Sep 19, 2022 6:58 pm
someone here(grumpyhere, i think) recommended veterinary tape. wrap it around the head straps to help keep them from sliding about.
Err my suggestion (that works for sure) with the vet tape was to reduce the strap loosening with the new P10 buckle.

viewtopic.php?t=182441#p1388866

The other suggestion to try wrapping the tape around the strap was based this dreamwear thread (but not sure whether it will work out for the P10.)

viewtopic.php?t=175036

Both suggestion were attempts to introduce more friction into the systems but in different ways.

If you do try it, please share the results as to its efficacy either way.

Good luck.
ResMed S9 VPAP Adapt, p10 / nuance pro mask

User avatar
zonker
Posts: 9549
Joined: Fri Jun 19, 2015 4:36 pm

Re: Updates (part 1: Sleep stuff)

Post by zonker » Tue Sep 20, 2022 10:44 am

GrumpyHere wrote:
Tue Sep 20, 2022 1:17 am
zonker wrote:
Mon Sep 19, 2022 6:58 pm
someone here(grumpyhere, i think) recommended veterinary tape. wrap it around the head straps to help keep them from sliding about.
Err my suggestion (that works for sure) with the vet tape was to reduce the strap loosening with the new P10 buckle.

viewtopic.php?t=182441#p1388866

The other suggestion to try wrapping the tape around the strap was based this dreamwear thread (but not sure whether it will work out for the P10.)

viewtopic.php?t=175036

Both suggestion were attempts to introduce more friction into the systems but in different ways.

If you do try it, please share the results as to its efficacy either way.

Good luck.
that's what i get for working from memory. always a hazard for me! :lol:

wrapping the vet tape does help on the p10 to keep it from sliding. however, i didn't find it useful in keeping the new strap with buckle from loosening.

in fact, i've pretty much given up on the buckle strap altogether.
"the world is full of good people. if you can't find one, be one."-sleepgeek(avatar)

"I'd rather laugh with the sinners than cry with the saints
The sinners are much more fun
You know that only the good die young"-billy joel