Pretty sure I have UARS

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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SeanyB011
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Pretty sure I have UARS

Post by SeanyB011 » Thu Aug 18, 2022 2:13 pm

AHI has always been very low on CPAP therapy roughly 2 From a whopping 22.5 when I did my sleep study in the lab.

Ever since i've downloaded OSCAR i've not been seeing the flat flow limit i'd like but instead all these arousals.

Looking back on my sleep study my arousal index was 25. Starting to think all these arousals might be my issue.

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ChicagoGranny
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Re: Pretty sure I have UARS

Post by ChicagoGranny » Thu Aug 18, 2022 3:18 pm

The flow limitation curve on this chart shows minor FL. It's not something I would personally be concerned about.

Forgetting the data for a moment, what daytime symptoms cause you to be concerned about UARS? Not how you feel upon awakening, but how do you evaluate your vigor for the whole day?

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SeanyB011
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Re: Pretty sure I have UARS

Post by SeanyB011 » Thu Aug 18, 2022 3:38 pm

ChicagoGranny wrote:
Thu Aug 18, 2022 3:18 pm

Forgetting the data for a moment, what daytime symptoms cause you to be concerned about UARS? Not how you feel upon awakening, but how do you evaluate your vigor for the whole day?
Just fatigued all day really. I'm a very curious human being that's eager to learn so can't help but look at my data each morning and want to investigate. There's a good article about UARS for anyone seeing this thread.

https://www.singularsleep.com/blogs/new ... e-syndrome

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Re: Pretty sure I have UARS

Post by latskogkatt » Thu Aug 18, 2022 4:16 pm

The article you linked is an interesting read. Judging from what it says, if you have UARS, you're already on the right track for helping it by using CPAP.

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ChicagoGranny
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Re: Pretty sure I have UARS

Post by ChicagoGranny » Thu Aug 18, 2022 4:18 pm

SeanyB011 wrote:
Thu Aug 18, 2022 3:38 pm
I'm a very curious human being that's eager to learn so can't help but look at my data each morning and want to investigate.
That's OK. I looked at my data in OSCAR (or its predecessors) nearly every day when I first started out. My CPAP therapy has been stable for years now, but I look at the report on the machine display each day before I make the bed.

Since you are eager to learn, I bet you have studied sleep hygiene. How do you rate your sleep hygiene?

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SeanyB011
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Re: Pretty sure I have UARS

Post by SeanyB011 » Thu Aug 18, 2022 10:14 pm

ChicagoGranny wrote:
Thu Aug 18, 2022 4:18 pm
SeanyB011 wrote:
Thu Aug 18, 2022 3:38 pm
I'm a very curious human being that's eager to learn so can't help but look at my data each morning and want to investigate.
That's OK. I looked at my data in OSCAR (or its predecessors) nearly every day when I first started out. My CPAP therapy has been stable for years now, but I look at the report on the machine display each day before I make the bed.

Since you are eager to learn, I bet you have studied sleep hygiene. How do you rate your sleep hygiene?
I'd consider my sleep hygiene to be pretty good. I exercise almost daily, eat plenty of veggies and fruit during the day. Avoid caffeine and alcohol in the afternoons. Pretty consistent with my bed times too.

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SeanyB011
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Re: Pretty sure I have UARS

Post by SeanyB011 » Fri Aug 19, 2022 2:33 am

Anyone out there with UARS experience and is using to CPAP to treat it let me know your experience. I'll be very grateful.

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Re: Pretty sure I have UARS

Post by Thumper1947 » Fri Aug 19, 2022 2:30 pm

Do you have either a deviated septum or nasal congestion.I have both and I've found a pretty effective way of dealing with them . If it's not either one of those two, I wouldn't be the guy to give you advice.
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ChicagoGranny
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Re: Pretty sure I have UARS

Post by ChicagoGranny » Fri Aug 19, 2022 2:57 pm

SeanyB011 wrote:
Fri Aug 19, 2022 2:33 am
Anyone out there with UARS experience and is using to CPAP to treat it let me know your experience. I'll be very grateful.
Thumper makes a good point. Every single person who is diagnosed with sleep-disordered breathing should have a consultation with an ENT. The ENT will examine the septum, turbinates, vocal cords, soft palate, hard palate, and tongue. She will make an evaluation about how the airway may be affecting the patient's sleep-disordered breathing and CPAP use. If appropriate, she will make recommendations to improve the situation. My ENT did some things that made it much easier to use CPAP and made my CPAP therapy more effective.

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SeanyB011
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Re: Pretty sure I have UARS

Post by SeanyB011 » Fri Aug 19, 2022 3:49 pm

Thumper1947 wrote:
Fri Aug 19, 2022 2:30 pm
Do you have either a deviated septum or nasal congestion.I have both and I've found a pretty effective way of dealing with them . If it's not either one of those two, I wouldn't be the guy to give you advice.
Thumper
I have both of these issues my friend. Only reason i'm wearing one of those bloody full face masks otherwise i'd be using the nasal ones.

So jealous of all you people that can breathe normally through your nose. Genuinely thinking of getting the surgery that cleans up that nasal passageway to help my breathing.

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SeanyB011
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Re: Pretty sure I have UARS

Post by SeanyB011 » Fri Aug 19, 2022 3:57 pm

ChicagoGranny wrote:
Fri Aug 19, 2022 2:57 pm
SeanyB011 wrote:
Fri Aug 19, 2022 2:33 am
Anyone out there with UARS experience and is using to CPAP to treat it let me know your experience. I'll be very grateful.
Thumper makes a good point. Every single person who is diagnosed with sleep-disordered breathing should have a consultation with an ENT. The ENT will examine the septum, turbinates, vocal cords, soft palate, hard palate, and tongue. She will make an evaluation about how the airway may be affecting the patient's sleep-disordered breathing and CPAP use. If appropriate, she will make recommendations to improve the situation. My ENT did some things that made it much easier to use CPAP and made my CPAP therapy more effective.
This is a great call. I think my problem was my GP recommended me to a sleep study clinic straight up and didn't consider getting my airways checked out.

I'll speak to my GP Monday about doing this I reckon

What things did your ENT find to help with your CPAP therapy?

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ChicagoGranny
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Re: Pretty sure I have UARS

Post by ChicagoGranny » Fri Aug 19, 2022 5:38 pm

SeanyB011 wrote:
Fri Aug 19, 2022 3:57 pm
What things did your ENT find to help with your CPAP therapy?
For me, it was allergy testing that made me aware of some things to avoid. I also use Nasacort from time to time.

When I recommend a visit to an ENT, I am always thinking about Gramps. He had a badly deviated septum (S-shaped) and enlarged turbinates. Surgery corrected this. He will tell anyone who will listen that it was the best thing he ever did for himself. After the surgery, he felt like his nose was a wide tunnel. It made CPAP use much easier and also improved his daytime breathing. And ... the surgery and recovery were surprisingly easy.

Thumper1947
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Re: Pretty sure I have UARS

Post by Thumper1947 » Sat Aug 20, 2022 6:01 am

Seany,
I concur on seeing an ENT. I've been on CPAP for7 years and it took me about six years to figure out that my whole problem was UARs. I had two broken noses from my sports days and one operation for a deviated septum while I was in the military. In addition I do not have a big nose. Combine all that with a mild to moderate allergy problem, and it doesn't take much to block my air ducts, especially on the right side. I have virtually no obstructive and almost no central apneas. Years ago my sleep doctor recommended trying a netti pot. I didn't like the sound of it and when I saw what it was I like it even liked it less, so I never tried it. Eventually, I saw a video of a thing called Nasopure. It's not as gross looking as a netti pot and costs about $15. At nighttime, just before going to bed,I use it 3-4 times to get my sinuses cleaned out. I have found combining that with a product called Xlear, a spray that I use after the first shot of Nasopure, works amazingly to totally clear out your sinuses. I take about 15 minutes to do this, and most times I can breathe completely free. I haven't had an AHI above .5 for the past six months, but more importantly, I sleep a whole lot better with clear sinuses. Both products can be used as often as you like with no addiction or rebound effect. This works for me. Here's links to the products on Amazon. Good luck.

Nasopure:
https://www.amazon.com/Nasopure-Buffere ... 85&sr=8-11

Xlear:
https://www.amazon.com/s?k=xlear+nasal+ ... -doa-p_4_5

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SeanyB011
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Re: Pretty sure I have UARS

Post by SeanyB011 » Wed Aug 24, 2022 4:55 pm

Thanks for the perspective. Seeing my sleep specialist next week and going to ask him to refer me to an ENT and to review my sleep data.

Also,

Thought I'd put this up for educational purposes, just scrolling through my sleep data from last night and have stumbled across my first Central Apnea since doing CPAP therapy (About 2.5 months now).

I get probably 10 or 15 central apneas in isolation during the night but not this many together!

https://imgur.com/gallery/7mV7skL

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