How to determine Good Sleep?

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
Billymadison420
Posts: 129
Joined: Mon Jul 11, 2022 9:02 pm

Re: How to determine Good Sleep?

Post by Billymadison420 » Fri Aug 05, 2022 5:56 am

lynninnj wrote:
Thu Aug 04, 2022 6:27 pm
Billymadison420 wrote:
Thu Aug 04, 2022 2:58 pm
lynninnj wrote:
Thu Aug 04, 2022 12:40 pm
Billymadison420 wrote:
Thu Aug 04, 2022 11:52 am
OK I reluctantly admit I feel pretty good today.
PMA!

Embrace feeling pretty good!

Make sure you take care of the skin on your face so you don’t have problems like you did before.

Having discomfort when you’re trying to fall asleep whether it’s your face or a twisted ankle or a back pain-none of it is good for falling to sleep.

Good luck and keep it up!

Thank you! I am very pleased about today. I will keep that area clean! And yes, you are right, its very hard to sleep with pain. Hope you are doing well. How is your therapy going?
I like this chipper Billy.
😀

I am doing well thank you. I just got a mask that I think it’s going to be the perfect fit for me and I can’t wait to go to sleep. Lol
That is awesome! I hope it works well. Last night was my first night with the Resmed F 24 facemask. I think it went pretty good for the first night. I like that if I need to mouth breathe, lol, that I can and it won't cost too much dryness. At least I have options now :-) hope the new mask is awesome!

Billymadison420
Posts: 129
Joined: Mon Jul 11, 2022 9:02 pm

Re: How to determine Good Sleep?

Post by Billymadison420 » Wed Aug 10, 2022 11:38 am

Hey folks!

I am finally going to get the PSG and MSLT in a few weeks. I will sort that part out of my sleeping issues. Separately.

I switched to the F 20 facemask and I find that it's a bunch better for me in terms of comfort when I sleep. It's easy for me to go to sleep in it. But I noticed that my AHI is a little bit higher. Whereas it was under two consistently it is now between two and three consistently. Any thoughts?

https://sleephq.com/public/e345187b-8bb ... 17cb3f2a4b

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Rubicon
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Re: How to determine Good Sleep?

Post by Rubicon » Wed Aug 10, 2022 3:45 pm

IMO the AHI is totally irrelevant as most > all of those events are SWJ-related.

There are some areas of good sleep but overall continuity should remain graded as "Train Wreck". Objectively, this will be supported on NPSG as spontaneous arousals, awakenings, Stage1%, WASO and eyeballing the histogram.

Billymadison420
Posts: 129
Joined: Mon Jul 11, 2022 9:02 pm

Re: How to determine Good Sleep?

Post by Billymadison420 » Wed Aug 10, 2022 3:51 pm

Rubicon wrote:
Wed Aug 10, 2022 3:45 pm
IMO the AHI is totally irrelevant as most > all of those events are SWJ-related.

There are some areas of good sleep but overall continuity should remain graded as "Train Wreck". Objectively, this will be supported on NPSG as spontaneous arousals, awakenings, Stage1%, WASO and eyeballing the histogram.
Good to know, thank you so much. Doctors are closing in on idiopathic hypersomnia. One more test to confirm, and then I can get the proper medication to get the proper stages of sleep.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3746724/


Once they get my hypersomnia under control things should get much better.

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Rubicon
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Re: How to determine Good Sleep?

Post by Rubicon » Wed Aug 10, 2022 4:28 pm

Billymadison420 wrote:
Wed Aug 10, 2022 3:51 pm
Doctors are closing in on idiopathic hypersomnia. One more test to confirm, and then I can get the proper medication to get the proper stages of sleep.
I be like "HTF did they come up with that?"

If you have TWA then pretty much by definition you can't have idiopathic hypersomnia.

That said, see what the data reveals.

Billymadison420
Posts: 129
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Re: How to determine Good Sleep?

Post by Billymadison420 » Wed Aug 10, 2022 4:36 pm

TWA?

2 previous EEGS, one done before apnea treatment, and one after. And my symptoms.

I’ve already been diagnosed with Hypersomnia by both doctors. The question before was the apnea the cause. It isn’t

I was told I have 3 times the amount of REM sessions a night as I should be having.


Symptoms:

- endless REM sleep. never refreshing.
- REM sleep during nap
- half awake state where I feel half conscious but frozen
- dreams while I am half sleep. I am consciously aware of what’s happening in the room, but I am simultaneously dreaming.
- waking up from a dream and not knowing if it was real
- when I was a kid I heard voices in that state
-hypnagogic hallucinating
- when I was younger I would act out REM dreams. Punching the air, grabbing a loved one next to me while dreaming.
- I always remember my dreams
- weak knees buckling at times (not necessarily connected to extreme emotion)
- constant need for naps that are unrefreshing
- falling asleep during movies/tv shows that are monotonous
- sleep attacks behind wheel
- always sleeping in cars/busses
- continuing with an activity without having any recollection of it afterwards (driving)
- head nodding/sleep attacks
- able to fall asleep in any position anywhere. plane. bus. car.

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Rubicon
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Re: How to determine Good Sleep?

Post by Rubicon » Wed Aug 10, 2022 4:48 pm

Well if you're narcoleptic it's not "idiopathic".

Billymadison420
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Re: How to determine Good Sleep?

Post by Billymadison420 » Wed Aug 10, 2022 4:51 pm

Rubicon wrote:
Wed Aug 10, 2022 4:48 pm
Well if you're narcoleptic it's not "idiopathic".
That’s absolutely true. Rhe only testing difference between Narcolepsy and ideopathic Hypersomnia, is either less than five minutes or less than eight minutes sleep latency on an MSLT. Both narcolepsy and idiopathic hypersomnia are a collection of symptoms caused by too much REM dream state, or sleep state.

I’m sure you know that. It is generally speaking underdiagnosed and I have a family history of it, or at least family members that have the same symptoms. Especially the hypnagogic hallucinations.

I personally believe I’ve had it since I was 18. I think in the last few years it’s gotten worse. So I’m very excited to hopefully be near treatment. Most narcoleptics and people with idiopathic hypersomnia have a mean 13 years before they get treatment or a diagnosis.

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Rubicon
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Re: How to determine Good Sleep?

Post by Rubicon » Wed Aug 10, 2022 6:15 pm

Billymadison420 wrote:
Wed Aug 10, 2022 4:51 pm
Both narcolepsy and idiopathic hypersomnia are a collection of symptoms caused by too much REM dream state, or sleep state.
Negative on that. See ICSD:
Idiopathic hypersomnia is differentiated in part by the absence of REM-related features, such as cataplexy, sleep paralysis, hypnagogic hallucinations, and two or more REM periods on an MSLT.

Billymadison420
Posts: 129
Joined: Mon Jul 11, 2022 9:02 pm

Re: How to determine Good Sleep?

Post by Billymadison420 » Wed Aug 10, 2022 7:31 pm

Rubicon wrote:
Wed Aug 10, 2022 6:15 pm
Billymadison420 wrote:
Wed Aug 10, 2022 4:51 pm
Both narcolepsy and idiopathic hypersomnia are a collection of symptoms caused by too much REM dream state, or sleep state.
Negative on that. See ICSD:
Idiopathic hypersomnia is differentiated in part by the absence of REM-related features, such as cataplexy, sleep paralysis, hypnagogic hallucinations, and two or more REM periods on an MSLT.

Well it’s one or the other

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Rubicon
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Re: How to determine Good Sleep?

Post by Rubicon » Thu Aug 11, 2022 4:38 am

One more question before we put on The Happenings:
Billymadison420 wrote:
Wed Aug 10, 2022 4:36 pm
- REM sleep during nap
How did you determine this?

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Re: How to determine Good Sleep?

Post by Rubicon » Thu Aug 11, 2022 5:11 am

OK maybe 2 (or so) questions:
Billymadison420 wrote:
Fri Jul 15, 2022 11:09 am
Yesterday's doctor's appointment was extremely illuminating. I have lived the last year thinking I have narcolepsy. And while it's possible I do, the doctor's exact words were: "I am not going to even entertain a diagnosis of narcolepsy until you have done CPAP treatment for months". Additionally see said that the REM periods could be caused by Sleep Apnea and that there was zero evidence to support the diagnosis.
Billymadison420 wrote:
Wed Aug 10, 2022 4:36 pm
I was told I have 3 times the amount of REM sessions a night as I should be having.


Symptoms:

- endless REM sleep. never refreshing.
- REM sleep during nap
- half awake state where I feel half conscious but frozen
- dreams while I am half sleep. I am consciously aware of what’s happening in the room, but I am simultaneously dreaming.
- waking up from a dream and not knowing if it was real
- when I was a kid I heard voices in that state
-hypnagogic hallucinating
- when I was younger I would act out REM dreams. Punching the air, grabbing a loved one next to me while dreaming.
- I always remember my dreams
- weak knees buckling at times (not necessarily connected to extreme emotion)
- constant need for naps that are unrefreshing
- falling asleep during movies/tv shows that are monotonous
- sleep attacks behind wheel
- always sleeping in cars/busses
- continuing with an activity without having any recollection of it afterwards (driving)
- head nodding/sleep attacks
- able to fall asleep in any position anywhere. plane. bus. car.
If you told her those symptoms how could she possibly say there is zero evidence? You've got 5 out 5 criteria (OK, the REM naps thing, but we'll get to that).

You certainly don't have to wait months, but we're past that.

Ask her how sleep apnea generates more REM.