Resmed remote data monitoring

Pugsy · Post by **Pugsy** » Thu Dec 02, 2021 9:57 am

Conrad wrote: ↑
Thu Dec 02, 2021 9:03 am
It's interesting to me that some folks here worry about their doc, or DME, or whoever accessing their machine's data yet they think nothing of posting their OSCAR data up here for the entire world to see...

There's not usually any personal information anywhere on these reports from OSCAR.
Even if we see a name....lots of people can have the same name.
I use Pugsy in OSCAR...when I share my report does anyone here (except those who personally know who Pugsy is) have any way in hell to figure out who I am or where I am at???

If I see a report from John Smith...which John Smith????

Pugsy · Post by **Pugsy** » Thu Dec 02, 2021 10:01 am

Sometimes it's the actual transmission of the data that people have a problem with. Not so much that their doc or DME can get the data.
The physical transmission over the cellular network that they don't want happening next to their head.
Those people tend to need tin foil hats IMHO but that's how they feel...so that's how they feel. Not my problem.

The problem with worrying about the physical transmission so much....it doesn't happen all night.
The data doesn't get transmitted until some point in time AFTER the machine is turned off. Nothing gets transmitted while the machine is in use.
That worry is a moot point.

chunkyfrog · Post by **chunkyfrog** » Thu Dec 02, 2021 10:24 am

My phone is being charged at night, even closer to my melon than my Airsense 10.
I need it within reach in case I get an actual call--from real people. (Yeah, right . . . )
I have TRIED to turn off Galaxy Store--but it seems to be impossible;
(without deleting it--BIG can o' worms)
So, I know there is crap happening, but I don't let it bother me.

dataq1 · Post by **dataq1** » Thu Dec 02, 2021 10:58 am

Conrad wrote: ↑
Thu Dec 02, 2021 9:03 am
It's interesting to me ...access

The difference is that a user here takes affirmative action to post, that is the user decides to share.
What others are expressing is sharing their medical information without their permission or consent.
That consent may or may not have been given when they signed for their equipment from their DME.

In any event that is not the focus of this question.

The focus of this question is how extensive (granular) is the data that is transmitted by modem

chunkyfrog · Post by **chunkyfrog** » Thu Dec 02, 2021 12:12 pm

I can ask my sleep doc how much detail they get . . .
They like me--or at least that's the impression I get.

Janknitz · Post by **Janknitz** » Thu Dec 02, 2021 3:39 pm

What are you talking about? Do you understand the process involved in acquiring a machine? A prescription, in my name, has to be generated and supplied to the company that sells the equipment, unless buying a used machine. Guess who generates said prescription and suppled it to the company that I purschased the machine from? Right, my sleep doc's office.

Do YOU understand that's not the only way to acquire a machine and sometimes doing that way is very expensive? Many people have found that when they buy out of pocket at a DME they get a raw deal, because they pay way more than they could have if they used another option. Some DME's get away with charging their "fantasy price" which can be double what you pay online because they seem to be the only option to an overwhelmed newly-diagnosed person, though they are not.

Your statement "I recently purchased a new ResMed machine on my own dime' could have meant that you used other means as many of us here do:
1. Purchase online from our hosts at cpap.com or another online provider. Prescription required, but nothing is reported at all to your doctor.
2. Purchased used, as you state. Prescription generally not required, no report to your doctor.
3. Borrowed or gifted from a friend or family member.

Just because a doctor referred you to a particular DME doesn't mean you had to use that DME, either. And AFAIK, DME's don't send the doctor a letter saying "so and so purchased XYZ machine from us, what data would you like?". In some states, it's legal for a doctor to own an interest in the medical supply company he or she refers to.

I was pointing out that very few doctors even pay attention to the data, other than to document compliance for insurance reimbursement. You don't need to report compliance for an out of pocket purchase.

Since you have no compliance requirements, there's no guarantee that your doctor's office will have bothered to get any data from the DME on your behalf. "All the info we need" could mean they are getting full efficacy data to really delve into optimizing your therapy or it could mean they are getting no info at all because they don't care. Hopefully you have a great doc who does pay attention to the data and adjusts your therapy accordingly, but in many (most!) cases the doctors don't even bother.

Ask your doctor to show you the data he/she has next time. It will either be a really good discussion with an involved doctor, or you will learn just how much "all the info we need" means to that practice.

dataq1 · Post by **dataq1** » Thu Dec 02, 2021 3:50 pm

chunkyfrog wrote: ↑
Thu Dec 02, 2021 12:12 pm
I can ask my sleep doc how much detail they get . . .

Actually I had occasion to ask at my wife's pulmonologist's office today. What they told me was that they get their information directly from the DME and that information only includes data that can be described by a single numeric. Aside from the compliance data and overall statistics, they can get (if they ask) the percentage of a particular night is in (say) Cheyne-stokes or Periodic breathing. In other words, It sounds as if they can obtain data that is summarized on the left hand panel of an OSCAR report.

What they can't get is the flowrate-time curves (so they cannot see any distortion of the inspiration-expiration curves know as flow limitations to Resmed), or pressure-time curves, or leak-time curves. Neither are they able to place events in relation to one another on a time scale. (IMO, that relationship in time is critical to interpreting the validity of some events)

OTHO, apparently Physicians who want to purchase the manufacturer's SD reading software, presumably can see much the same thing we (the great unwashed) are able to see in OSCAR.

So, apparently It depends what your individual doctor is willing to invest to obtain the most complete "picture" of your ongoing therapy.

dataq1 · Post by **dataq1** » Thu Dec 02, 2021 9:32 pm

Janknitz wrote: ↑
Thu Dec 02, 2021 3:39 pm
I was pointing out that very few doctors even pay attention to the data, other than to document compliance for insurance reimbursement.

It is obvious that the DME needs compliance documented to obtain insurance payments (to be deducted from your DME account) for equipment and supplies.
But are you suggesting that doctors need to document compliance to obtain insurance payments for your patient office visits?
Just curious.

Conrad · Post by **Conrad** » Fri Dec 03, 2021 8:28 am

Janknitz wrote: ↑
Thu Dec 02, 2021 3:39 pm

What are you talking about? Do you understand the process involved in acquiring a machine? A prescription, in my name, has to be generated and supplied to the company that sells the equipment, unless buying a used machine. Guess who generates said prescription and suppled it to the company that I purschased the machine from? Right, my sleep doc's office.
Do YOU understand that's not the only way to acquire a machine and sometimes doing that way is very expensive? Many people have found that when they buy out of pocket at a DME they get a raw deal, because they pay way more than they could have if they used another option. Some DME's get away with charging their "fantasy price" which can be double what you pay online because they seem to be the only option to an overwhelmed newly-diagnosed person, though they are not.

Your statement "I recently purchased a new ResMed machine on my own dime' could have meant that you used other means as many of us here do:
1. Purchase online from our hosts at cpap.com or another online provider. Prescription required, but nothing is reported at all to your doctor.
2. Purchased used, as you state. Prescription generally not required, no report to your doctor.
3. Borrowed or gifted from a friend or family member.

Just because a doctor referred you to a particular DME doesn't mean you had to use that DME, either. And AFAIK, DME's don't send the doctor a letter saying "so and so purchased XYZ machine from us, what data would you like?". In some states, it's legal for a doctor to own an interest in the medical supply company he or she refers to.

I was pointing out that very few doctors even pay attention to the data, other than to document compliance for insurance reimbursement. You don't need to report compliance for an out of pocket purchase.

Since you have no compliance requirements, there's no guarantee that your doctor's office will have bothered to get any data from the DME on your behalf. "All the info we need" could mean they are getting full efficacy data to really delve into optimizing your therapy or it could mean they are getting no info at all because they don't care. Hopefully you have a great doc who does pay attention to the data and adjusts your therapy accordingly, but in many (most!) cases the doctors don't even bother.

Ask your doctor to show you the data he/she has next time. It will either be a really good discussion with an involved doctor, or you will learn just how much "all the info we need" means to that practice.

FYI, I'm not a newbie to the world of CPAP. I've been using a machine since 2012 (with my health insurance covering most of the costs) and I'm currently on my third machine. I purchased my current machine (ResMed AirCurve 10) "on my dime" from an online DME because of the recall on the Deamstation, and the fact that my local DME could not source a ResMed AirCurve 10. I use a BiPAP and the Dreamstation 2's that are being shipped as replacements don't work for me. I was offered one by my local DME and refused it.

"Do YOU understand that's not the only way to acquire a machine and sometimes doing that way is very expensive? Many people have found that when they buy out of pocket at a DME they get a raw deal, because they pay way more than they could have if they used another option."

Do you think that I would have bought a new machine and paid for the thing myself if I had another, less expensive, option? My Dreamstation is ~two years old and my insurance won't pay for another machine for three more years.

Your statement "I recently purchased a new ResMed machine on my own dime' could have meant that you used other means as many of us here do:
1. Purchase online from our hosts at cpap.com or another online provider. Prescription required, but nothing is reported at all to your doctor.
2. Purchased used, as you state. Prescription generally not required, no report to your doctor.
3. Borrowed or gifted from a friend or family member.

1, Where would the prescription come from if my doc isn't in the loop? How would this work with nothing reported to my doc? Why would I not want this reported to my doc?

3, When I say that I purchased a new ResMed machine 'on my dime', who in the world would possibly interpret this as, "Borrowed or gifted from a friend or family member."?

"Just because a doctor referred you to a particular DME doesn't mean you had to use that DME, either. And AFAIK, DME's don't send the doctor a letter saying "so and so purchased XYZ machine from us, what data would you like?". In some states, it's legal for a doctor to own an interest in the medical supply company he or she refers to. "

You totally lost me here. I haven't mentioned anything that you covered above. Where did I say anything about my doc having a financial interest in the DME that he referred? Where did I say that I had to use the DME that my doc referred me to?

You certainly read a lot into my statements that I didn't say.

Resmed remote data monitoring

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