Newbie would like to hear success stories, please.

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
1speechpick
Posts: 125
Joined: Wed Jun 09, 2021 12:16 pm

Re: Newbie would like to hear success stories, please.

Post by 1speechpick » Fri Jul 02, 2021 3:55 pm

My story isn't one of success yet, but more one of perseverance, which will ultimately bring me to success someday (soon, I hope). I love reading these stories because they tell the real truth of what untreated sleep apnea does to our body and brain.

I experienced several months of generalized functional decline. In 5 months I went from being a productive medical employee to being so weak I was in a wheelchair. I was in and out of the hospital and had several medical tests but no one could find anything wrong. After lots of research on my own, I began to suspect OSA could be a possibility. To expedite my own medical care, I ordered an At-Home Sleep Test through the internet. That's when I found out I had severe OSA. Oddly, most of my apnea events were during REM sleep. I had 69 apnea events per hour during REM sleep. I had a Nadir of 63%, and my oxygen levels were below 88% for 110 minutes during the study. Being honest, I thought I was dying of some undiagnosed disease. I felt that bad.

I started with doctor #1 who had me rent a BIPAP to trial (without success). I then went through a titration study and was unable to be successfully titrated on CPAP, BIPAP, or BIPAP ST. I was then supposed to go for an ASV titration. However, I decided to get a second opinion. This doctor requested I retrial my Airsense 10 (For Her) on a lower pressure using nasal pillow mask. This brought some success in reducing the AHI, and I had further reduction of the AHI with the help of members on this board. I started with the Resmed P10 mask and ended up with terrible nose sores. I switched to the Nuance nasal gel mask. Things initially felt better but then I ended up with a soft tissue nose infection from all of the mask irritation. I can't believe how incredibly raw and sore my whole nose is (inside and out)! So, oral and topical antibiotics it is. I'm not quite sure why my nose is so sensitive to the nasal pillow, but it isn't an option for me unfortunately. Currently I'm using a nasal hub mask (resmed Airfit N20) in order to let the soft tissue heal. I'm not thrilled with this mask but it's necessary for now. I'm still trying to find the best pressure to control the apneas while using the N20.

After things settle, I'm going to try the Bleep Dreamport. I will also need to find a full face mask as an option (I have allergies and intermittent nasal congestion). I'm managing to sleep around 4 hours a night. Not great, but making slow progress. I think once my nose has healed and I find a comfortable mask, the sleep will improve. Even with where I am, my strength has improved enough for me to easily get around the house without any assistance (which is a huge improvement). I'm thankful for the diagnosis, and look forward to getting to a better place with all of this.
ResMed AirSense 10 For Her with humidifier and heated hose
Resmed Airfit N20


"The best view comes after the hardest climb"

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EJW372
Posts: 63
Joined: Wed Mar 03, 2021 9:37 pm
Location: Pennsylvania

Re: Newbie would like to hear success stories, please.

Post by EJW372 » Tue Jul 06, 2021 7:18 pm

If you’re having so many issues with nasal irritation, why not try out a full face mask that goes over your nose like a ResMed F20??
ResMed AirSense 10 Autoset
ResMed AirFit F30 full face mask

1speechpick
Posts: 125
Joined: Wed Jun 09, 2021 12:16 pm

Re: Newbie would like to hear success stories, please.

Post by 1speechpick » Sat Jul 10, 2021 11:32 am

EJW372 wrote:
Tue Jul 06, 2021 7:18 pm
If you’re having so many issues with nasal irritation, why not try out a full face mask that goes over your nose like a ResMed F20??
I'm trialing a full face mask now, but it is driving up my AHI significantly so I'm trying to problem solving why that is happening.
ResMed AirSense 10 For Her with humidifier and heated hose
Resmed Airfit N20


"The best view comes after the hardest climb"

rapsleafs
Posts: 1
Joined: Tue Jul 13, 2021 9:47 am

Re: Newbie would like to hear success stories, please.

Post by rapsleafs » Tue Jul 13, 2021 9:57 am

This thread made me feel like registering.

Just wanted to say if you're using some sudden burst of energy as your success metric, you will falsely accuse your cpap of not working.

Keep in mind energy is sought by all, not just people with sleep apnea. Perfectly healthy people are saying "I'm tired". Energy has a lot of factors. Eating right and taking care of your physical and mental health plays a huge role in energy.

Look elsewhere: Regular heart beat, can you walk up the stairs without getting light headed and heart pounding, are your muscles and joints healing after exercise, do you finally get better / stronger when you workout or are you stuck in the same place, do you feel peaceful instead of irritated, can you learn something new or review things you already know without your head feeling fuzzy, can you make a mental map of the road in your head if someone asks you for directions (i.e can you think visually / geometrically), can you follow the plot of a movie

etc. etc. you see where I am going with this.

If you want that youthful burst of energy, cpap is not some magic machine. You will need to be better in all aspects of health.

Tony415
Posts: 8
Joined: Thu Jul 29, 2021 2:28 pm

Re: Newbie would like to hear success stories, please.

Post by Tony415 » Thu Jul 29, 2021 8:28 pm

Hello every one.
I have been reading this forum for a while, but now I register to post something about using CPAP machine.
Back to 2007 or so, I went to a dentist and I was snoring so loud while she worked on my tooth filling. She told me I got sleep apnea. I did not know what was it. I did not even talk to my doctor. Then around 2008-2009 I got knee surgery, ACL reconstruction. then my sleep apnea getting worse. I gained more weight after 2011-2013. I got very bad GERD, acid reflux for those 2 years. My sister said I snored so loud and it sound very ugly. I could not drive my car more than 45min on street. I rear end people at the stop light couple times. I just fall into sleep at the wheel just 30 min driving. My friend told me I snored sometime I was driving, really. Sometime I drove to other lane to the opposite side of the road. I tried to sleep on a recliner to help the GERD, and I tried on diet and lose some weight but the sleep apnea was not going away. It help a little when I lose some weight. But in 2017-2018 I started to go to those buffet restaurants. I again gain weight and my problem got worst. Until late Oct 2019 I got appointment to see pulmonary doctor and got my sleep sturdy test. I told my sleep doctor what I basic told you all here. She told me I may lose my driver license if my condition not get treatment. I remember my doctor told me I got like more than 400 times I stop breathing during the night I took the sleep sturdy. two weeks later I got the dream station (the one now got recalled). The first time I used it in the afternoon I got the machine. I slept for 3-4h afternoon nap, and the first night I used it for 7-8h more. I wake up just like many people said, I was like a new person for a long time I lost in the jungle. My GERD started to heal. My dried cough is slowly heal with out any medicine. The GERD causing the air way got burn when I slept and I cough every minute. I then giving up my losartan, high blood pressure medicine. I found out this forum and I know how to set up my ACPAP machine. After a while,I felt suffocated with the use of the dream station. Possible the filter inside the DreamStation was clogged and now it got recalled. It was good, I decide to buy the ResMed Air-sense 10 and I paid for it. I like the ResMed AirSense 10 so much. I now started to lose more weight on keto diet. I still need the use the cpap machine. Six months ago, I saw one on sale and I bought one AirSense 10 extra for a spare and a car adapter converter, a whole set up for using in my toyota van any time I am going out camping or traveling. I learned a lot from this forum, I now control my cpap machine to get better sleep. Thank you CPAPTALK FORUM.

Skywlkr67
Posts: 4
Joined: Sun Aug 15, 2021 8:39 am

Re: Newbie would like to hear success stories, please.

Post by Skywlkr67 » Sun Aug 15, 2021 9:04 am

I have been on CPAP since 2014. I have never had what I would characterize as a burst of energy, but my energy is definitely much improved, my blood pressure is dropped noticeable, and I feel generally more rested.
I've heard many different stories about peoples reaction to CPAP. Some have burst of energy, some report no change, and some say they just generally feel better. Its very organic.
That is a deadly disease you have so keep with the treatment and remember that on the day you were going to die you still won't have gotten that burst of energy, you just ben living your normal life.

lnoland
Posts: 5
Joined: Tue Aug 17, 2021 3:36 pm
Location: Chicago, IL suburbs USA

Re: Newbie would like to hear success stories, please.

Post by lnoland » Thu Aug 19, 2021 3:01 pm

I first started using CPAP around 35 years ago. I was in horrible shape at the time. I was tired all the time and kept thinking I wasn't sleeping enough but I would make efforts to sleep more and feel even worse. I was aware of waking frequently, gasping for air, but thought I must have been having nightmares which were leaving me breathless. I kept falling asleep sitting at my desk at work, in front of the TV, etc. Further I was experiencing micro-sleep issues -- I would be in a conversation and realize that I was losing bits and pieces -- apparently blacking out -- but the person I was speaking with didn't appear aware of it. Finally, there were a couple incidents of falling asleep while driving which scared me to death and made me afraid to drive -- I started staying home all the time when possible and when I had to drive I would do things like opening the windows in the middle of winter, or blasting the stereo and forcing myself to sing along -- anything which might keep me awake until I got to my destination.

I didn't know what was happening and didn't have a lot of resources to help -- the internet was still in its infancy and the web was pretty much just an experiment at the time. My savior was a PSA about sleep apnea. Even though I had heard of sleep apnea before, it never occurred to me that it was happening to me, but the PSA listed the symptoms and I ticked off every one of them. (How lucky was I? I think that was the only PSA for sleep apnea I've ever seen!) I made an appointment with my doctor, and he scheduled a sleep study. The sleep study doctor said he wondered that I was able to stay awake at all after seeing my results. The night at the lab doing the CPAP titration study was the first good night's sleep I'd had in what felt like forever -- I knew right then that CPAP was right for me.

That's not to say that it was an unqualified success. First, the CPAP machine the insurance company foisted on me had to be the worst CPAP machine ever made. It sounded like a vacuum cleaner running near my head -- I feared that I was going to lose my hearing. There was no humidifier, I had a nose mask and my mouth kept falling open during the night -- I would wake up with this horrible dry mouth from the CPAP pressure venting through my mouth. Again, without the internet and not having anyone with experience to talk to about it, I had no idea that these problems were solvable. I was doing so much better, however, that I just considered them the price I had to pay.

I was very overweight and some years later I chose to do the Atkins diet and lost 120 pounds. I had been clinically depressed for a number of years and at one point wound up committed to a mental ward against my will. I didn't have my CPAP machine with me and that scared me (it hadn't occurred to me that the hospital might provide one or even that I could somehow get mine). As it turned out, I didn't seem to need the CPAP anymore. I slept just fine in the hospital without it -- apparently, losing the weight resolved my issues. So, for a number of years I stopped using the CPAP. Unfortunately, a few years later I would give up the diet and the weight started slowly returning. Eventually, so did the sleep apnea.

For my second round, I was much better informed. I had the internet to help me do research and I knew what I needed to do, the equipment which interested me, etc., and this time I wasn't going to let the insurance company dictate my treatment -- I was going to pay for everything myself.

I had the sleep study done but I didn't care for the doctor who did it. He tried to dictate the machine and equipment and was even going to sell it to me through his own store. I insisted that he give me a prescription and I would have it filled myself where I chose. I bought the same mask they'd used in the titration study (I really liked it), a full-face mask from Phillips Respironics, and the machine I had researched, a Phillips Respironics, System One with humidifier. It was so much better than my previous machine -- I felt I'd finally arrived.

Despite the humidifier and the full-face mask, I continued to have dry-mouth problems but not like before and even with the discomfort issues of wearing a mask, etc., I love what CPAP has done for my life. Recently, my machine was recalled so I bought an Airsense 10 with humidifier and a new mask, the Amara View mask, just to try something new and to get the mask off the bridge of my nose. The new machine is excellent. The jury is still out on the mask -- I love being able to see, read, etc. with the mask on, but even the large size seems too small and occasionally causes issues. But these are annoyances, not problems. Perhaps someday they will find a solution that liberates us from our hoses, but CPAP is working for me -- the only time I'm tired is when I don't get enough sleep -- but that's something mostly under my control.

SKOAL99
Posts: 1
Joined: Wed Sep 01, 2021 5:23 pm

Re: Newbie would like to hear success stories, please.

Post by SKOAL99 » Wed Sep 01, 2021 5:34 pm

Hi Everyone, Glad I found this forum. I guess the internet really does have everything.

In the last 2 years I had felt so tired everyday, that I thought towards the end here in August that I thought I was going to die in my sleep. Only 40. I had a great career but people would describe me as falling asleep in meetings, etc. Finally, I had a sleep study done that I gave myself for my birthday present.

After one nights sleep with a CPAP, I can't believe this is how normal people feel every day after waking up. I actually had dreams. I enjoyed my time awake before work for once. I didn't need 500 mg of caffeine. I'm not sure what kids feel like when they go to disney world, but it must be this. This will be a turning point in my life and I am so happy to have finally had a good nights sleep in at least 10 years or maybe since I was a child. This is the most amazing I've felt in so long I feel like it's a dream.

Yes, my mask didn't fit quite as well as I hoped so I switched it out to something larger tonight, and yes, I'm going to ask to increase initial ramp pressure already. Don't have an issue with the mask or the noise at all. Doesn't even bother me as opposed to feeling like I was dying every night ...I think API was like 98 or something...

Because of this therapy I know I will once again continue my journey to greatness. I can't believe I put it off for 10 years of suffering.

Today was literally the best I've felt in those 10 years and it felt like I took a 2 week vacation to Hawaii and just got back wanting to work. This changed my life in one day.

Can't wait to sleep tonight.