i need some immediate help please just some guidance

[sammy1954]

I am unable to see a sleep dr ,had one a year and a hlf ago and now wait list is 3 yrs where i live.

I am on airsense 10 cp pap continuous air of 16 pressure.

My problem is hyoventolention syndrome and pickwilian syndrome and mild lung problems.


ok so no dr and i am fed up please do not tell me to see a sleep dr cause give tried.

here it is ...weigh 300lbs,,,,belly fat most ,,,,wake up hyperventilating every day ,,5 hr sleep study 3 yrs old and said 16 lbs needed .

dr then just left me. no help with clinician using a full face mask .
have gained 10 lbs in last 6 months ,take meds contraindicated for sa ..but cannot change that now.


so I am about to change my air pressure to auto ,on my own .i tried for a month to get help and cannot so here goes.

my question is at 16 continuous ,rather than go to 18 continuous what about auto to 20 ? bu the low pressure is set at 4 I am going to raise it to 5 .

if it doesn't work i can go back
I am compliant but uncomfortable and that hyperventilating on awakening is a problem.I cannot tolerate the 16 pressure anymore and i am OBSTRUCTED WHEN I AM AWAKE ACTUALLY SO I HAVE A REAL PROBLEM.

I have an adjustable bed can see with head raised ----doesn't help.

is raising the lower pressure to 5 reasonable i have a ramp of 45 mins...full face is pasquale mask ? and heated hose.

so I am going to do this because no one else will and try for myself.

3 yrs to wait for bipap or another sleep study I need help now.

I am disgusted at lack of help with this and I've decided to take control ,please don't write and say i need a clinician cause they don't help ,wont help.
i was on auto before and changed because my pressure is so high .so I have two options here ,raise the pressure to 18 or go to auto pap ,just confused about the lower pressure 4? 5 ? 6 ? and my airsense does not accurately tell me because my days and nights are mixed up like a shift worker.


let me tell you I am struggling .I was struggling with he hyperventilation every am for 6 hrs in the beginning ,,nothing is helping.

yes weight loss would help ,but i can't lose it overnight.

i am struggling to sleep at 16 ,continupus ,pleas if you have opinions i welcome them .
thank you
s

[Wulfman...]

I am unable to see a sleep dr ,had one a year and a hlf ago and now wait list is 3 yrs where i live.

I am on airsense 10 cp pap continuous air of 16 pressure.

My problem is hyoventolention syndrome and pickwilian syndrome and mild lung problems.


ok so no dr and i am fed up please do not tell me to see a sleep dr cause give tried.

here it is ...weigh 300lbs,,,,belly fat most ,,,,wake up hyperventilating every day ,,5 hr sleep study 3 yrs old and said 16 lbs needed .

dr then just left me. no help with clinician using a full face mask .
have gained 10 lbs in last 6 months ,take meds contraindicated for sa ..but cannot change that now.


so I am about to change my air pressure to auto ,on my own .i tried for a month to get help and cannot so here goes.

my question is at 16 continuous ,rather than go to 18 continuous what about auto to 20 ? bu the low pressure is set at 4 I am going to raise it to 5 .

if it doesn't work i can go back
I am compliant but uncomfortable and that hyperventilating on awakening is a problem.I cannot tolerate the 16 pressure anymore and i am OBSTRUCTED WHEN I AM AWAKE ACTUALLY SO I HAVE A REAL PROBLEM.

I have an adjustable bed can see with head raised ----doesn't help.

is raising the lower pressure to 5 reasonable i have a ramp of 45 mins...full face is pasquale mask ? and heated hose.

so I am going to do this because no one else will and try for myself.

3 yrs to wait for bipap or another sleep study I need help now.

I am disgusted at lack of help with this and I've decided to take control ,please don't write and say i need a clinician cause they don't help ,wont help.
i was on auto before and changed because my pressure is so high .so I have two options here ,raise the pressure to 18 or go to auto pap ,just confused about the lower pressure 4? 5 ? 6 ? and my airsense does not accurately tell me because my days and nights are mixed up like a shift worker.


let me tell you I am struggling .I was struggling with he hyperventilation every am for 6 hrs in the beginning ,,nothing is helping.

yes weight loss would help ,but i can't lose it overnight.

i am struggling to sleep at 16 ,continupus ,pleas if you have opinions i welcome them .
thank you
s

Sounds like your machine is pretty much set "wide-open" pressure wise.
That can be very NON-therapeutic and non-productive.
If you're not already, I'd strongly suggest using some software like Sleepyhead.......it's free.

But, yes, it's highly advised to set the minimum pressure upwards to where the machine doesn't have to spend much time adjusting to breathing events.

You might also benefit by turning off (or shorten) the Ramp feature or time.


Den

.

[sammy1954]

thank you ok so I will adjust the lower pressure up to 7 maybe? and i oddest have sleepy head but can download it i presume?

why would i benefit form ramp time being shortened or not set? May I ask
not sur ehow to get sleepyhead as the airiness 10 has its own method of tracking ?

I have a card but use a mac computer nowhere for the card to go?
ty in advance

[MarylandCPAPer]

Welcome to the forum! There are lots of experienced people here who are likely to be able to help you. Could you give us some more information, such as the EXACT model of the machine you are using> The Airsense 10 line includes A10 Autoset. A10 Autoset for Her, A10 Elite, and A10 CPAP. The name of the machine should be on it somewhere. I have the A10 Autoset for Her and the model name is on the bottom right. If you fill in your equipment information (machine, mask and humidifier) in TEXT in your profile (under User Control Panel), experienced users here will surely be able to give you some specific ideas that may help. Also, out of curiosity, what country do you live in?

Don't be discouraged. Adjustments are often needed to get used to CPAP treatment and the machines have many settings that can be used to improve treatment and comfort.

[Wulfman...]

thank you ok so I will adjust the lower pressure up to 7 maybe? and i oddest have sleepy head but can download it i presume?

why would i benefit form ramp time being shortened or not set? May I ask
not sur ehow to get sleepyhead as the airiness 10 has its own method of tracking ?

I have a card but use a mac computer nowhere for the card to go?
ty in advance

For one thing, that's a long time to be on a pressure that's less than therapeutic/effective.
Personally, I don't think I could breathe very well at a pressure much less than about 10 cm.

I don't use Sleepyhead, but I THINK there may be a version for the Mac.
You'd need an SD card reader which are pretty cheap.


Den

.

[sammy1954]

Den

I don't know what 10cm means? we go by pounds of pressure 16 pounds what is 10 cm?

confused.Ty for the card reader thing but confused on that too as my mac has no place for that to go ..I have cd writer..?

can't get it right now anyway.

yes long time for suffering with hypoventilation i asked the dr 3 yrs ago he said it was my weight.nothing he could do .

balony.asked for bipap ,you don't need biped he said wth does he know?

anyway I have changed it my body will tell me whats going on can you imagine 16 pounds of air nightly? omg dry mouth no teeth ,,messed up

.anyway If you can explain 10cm?
ty for your help

[sammy1954]

discouraged ? you say I am disgusted ,my apnea is so bad i cannot lay down without the machine some days i can't breathe at all .

as i said i am obstructed while awake. and i am angry at waiting and waiting.

I have my doubts auto will work at all but i have to try .

atleast i will get 20 pounds of pressure during an apnea or whatever i need ....i hope 6 is high enough for the low pressure I have googled what i can and found very little ,I am most pissed about losing the teeth ,dry mouth at 16 pounds is reasonable and my mask fit ? wellI am dealing with that ,I have new masks and spent a lot of money and darn but i would buy a bipap if i thought it would help.
ok Im going to to try 5 min ramp -6 for low and 20 for high ,also when i did have the 5 hr study i stopped breathing 24 times in an hour so i had 24 apneas in one hr ,i doubt the machine on auto can handle that .but gotta try like i said.
ty

[palerider]

Den

I don't know what 10cm means? we go by pounds of pressure 16 pounds what is 10 cm?

16 pounds would explode your chest like a red gory balloon all over the room, ceiling, walls, everything.

viewtopic/t47232/Why-is-pressure-measured-in-cmH2O.html

[MarylandCPAPer]

I have the same machine as you do. I cannot imagine 16 pounds of pressure!! 16 cm is much less, and still a very noticeable amount of pressure when getting started.

SD card readers are available for less than $10 in the US. They would plug into your computer and allow you to use software on your computer to monitor your sleep and CPAP results, which helps a lot in fine-tuning your treatment. Sleepyhead can be used on a Mac computer. Rescan software (Rescan 5.4.1. is the current version in Windows. I would think it is available for the Mac, also. It, too, requires an SD card reader but Rescan is very simple to install on your computer and give you similar data to Sleepyhead. Sleepyhead give you more data and provides it in a format that is more flexible and easy to read.

If you have signed up for "My Air" and don't have your A10 set for Airplane mode, you can get a very simplistic snapshot of your daily sleep data online. It is virtually useless, in my opinion, but it is better than no feedback at all, and it does not require an SD card if your A10 is set up to send data automatically via its built in modem.

[palerider]

I have the same machine as you do. I cannot imagine 16 pounds of pressure!! 16 cm is much less,

it's all of 0.2275734933488 psi.

[Julie]

The pressure is expressed as cm of water, but I don't think the semantics matter much as they seem to be similar - I wouldn't worry about it for now. What I know is that until your ramp reaches your prescribed pressure, you're not getting fully treated for 45 mins, which is probably really stressing you out, so I'd absolutely shorten the time by a lot, if not completely (if you can stand the air pressure coming through from the start). A lot, if not most of us stopped using ramping right at the beginning of starting C (or A)pap and aren't sorry at all.

One thing your doctor needs to understand is that it's now believed that apnea causes weight gain, not the other way around!

I would caution you however, to be very careful about the amount of pressure (16+) you have in mind because you don't want to run into a problem with centrals (or clear airway events - another name for centrals), but if you can reset your machine to use Apap with a low pressure of e.g. 10 for a while and see how it goes, you might feel better. I also think you can use SleepyHead as there's a Mac version and you shouldn't need anything built into the mac except a USB port - but please read the directions - see the first "Announcement' near the top of the main pg for more info. I have a Mac, but don't use software - my machine has a different way of reporting things.

[sammy1954]

ok its cm then and no not in airplane mode ,sorry those card readers are not available where i live.going to have to wing it ...since no one will help here ,my body will tell me .my fist inclination would be to go to 18 continuous air but i like the idea of some comfort and maybe the machine can do it i don't know but i will because if i get an apnea will rip off the mask .
agreed that my air is useless. i have sd card tried to get a clinician to read it 4 times ,they didn't know how or their computer wouldn't work so I am on my own any more advice would be helpful .thank you so much

[MarylandCPAPer]

The clinician's manual for the A10 is at https://sleep.tnet.com/home/files/resme ... -guide.pdf

[sammy1954]

Thanks Julie

okay so stay at continuous try 10 cm and dump the ramp I can do that ....but I DO NOT HAVE A SLEEP DR anymore and its a wait of 3 yrs so I am on my own I think I can dump the ramp try 10 but i don't think that will handle the apneas do you ?


whats wrong with auto?
is it not a good idea?

[Wulfman...]

ok its cm then and no not in airplane mode ,sorry those card readers are not available where i live.going to have to wing it ...since no one will help here ,my body will tell me .my fist inclination would be to go to 18 continuous air but i like the idea of some comfort and maybe the machine can do it i don't know but i will because if i get an apnea will rip off the mask .
agreed that my air is useless. i have sd card tried to get a clinician to read it 4 times ,they didn't know how or their computer wouldn't work so I am on my own any more advice would be helpful .thank you so much

Where on "earth" do you live?
The card readers (USB type plugin) are available in many stores and can be ordered off of Internet sites.


Den

.