CPAP for over a month. No improvement - seeking advice

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
User avatar
jdip
Posts: 15
Joined: Tue Oct 21, 2014 1:30 pm

CPAP for over a month. No improvement - seeking advice

Post by jdip » Sat Jun 27, 2015 8:57 pm

I did an at-home test and an at-home titration with an auto machine from the sleep clinic. Both gave my AHI as very low to non-existent. The doctor (pulmonologist) said maybe I have UARS and that I should do a CPAP trial to see if it would help my fatigue. With the help and advice from some wonderful people here at cpaptalk, I was able to choose a machine and get supplies to start my trial. I've been totally compliant with the machine for over a month now, but unfortunately the fatigue remains unchanged. I sleep for 10-11 hours a night almost every night and still feel so tired all of the time. I've been looking over my data in SleepyHead and my AHI has always been under 2.0. I still do have a bunch of events every night though (Clear Airways, Hypopneas and Obstructives. I get Cheynes Stokes respiration flags sometimes as well). From what I understand, a low AHI does not rule out UARS. I also recently saw an ENT recently and he confirmed that I have a deviated septum. I do not know if that plays a role in any of this.

I'm seeing my pulmonologist again next week and am not sure where to go from here. I still strongly feel that my fatigue is sleep-related since I've always needed so much sleep and can never get enough of it. I also tend to wake up briefly at intervals a lot during the night. Do I push for an in-lab PSG to look for some other kind of sleeping disorders (I previously only did an at-home one with no EEG component)? Do I try get tested for UARS? From what I've read, the only way to definitively test for that is with a pressure probe down esophagus. I believe the sleep clinic I went to before doesn't test for UARS at all. Any ideas or advice would be really appreciated. I just want to be able to live a normal life, which I haven't been able to do for years because of this persisting fatigue.

I've posted some screenshots of my flow rate waveform FWIW. As you can see, there's only a handful of flags every night, but they are there nonetheless.

Image

Image

Image

Image

User avatar
avi123
Posts: 4509
Joined: Tue Dec 21, 2010 5:39 pm
Location: NC

Re: CPAP for over a month. No improvement - seeking advice

Post by avi123 » Sat Jun 27, 2015 10:23 pm

Does your pulmonologist hold an MD in Sleep Medicine? If no then you're wasting time. On what basis do you think that you suffer from UAR? Check this report about UARs.

http://69.36.35.38/accp/pccsu/upper-air ... e?page=0,3

_________________
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments:  S9 Autoset machine; Ruby chinstrap under the mask straps; ResScan 5.6
see my recent set-up and Statistics:
http://i.imgur.com/TewT8G9.png
see my recent ResScan treatment results:
http://i.imgur.com/3oia0EY.png
http://i.imgur.com/QEjvlVY.png

User avatar
palerider
Posts: 32299
Joined: Wed Dec 16, 2009 5:43 pm
Location: Dallas(ish).

Re: CPAP for over a month. No improvement - seeking advice

Post by palerider » Sat Jun 27, 2015 10:37 pm

avi123 wrote:Does your pulmonologist hold an MD in Sleep Medicine? If no then you're wasting time. On what basis do you think that you suffer from UAR? Check this report about UARs.
jdip, best to ignore avi... he tries, but ... best to ignore.

_________________
Mask: Bleep DreamPort CPAP Mask Solution
Additional Comments: S9 VPAP Auto
Get OSCAR

Accounts to put on the foe list: dataq1, clownbell, gearchange, lynninnj, mper!?, DreamDiver, Geer1, almostadoctor, sleepgeek, ajack, stom, mogy, D.H., They often post misleading, timewasting stuff.