CPAP use with Sarcoidosis

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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knothead
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CPAP use with Sarcoidosis

Post by knothead » Thu Jan 30, 2014 11:34 am

Anybody out there in CPAP land that suffers from Sarcoidosis.

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VikingGnome
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Re: CPAP use with Sarcoidosis

Post by VikingGnome » Thu Jan 30, 2014 12:17 pm

I assume you are asking about Sarcoidosis of the lung. I have cutaneous or scar sarcoidosis but it has not spread any where but scar sites. So if you're talking about lung sarcoidosis, I really can't address that.

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chunkyfrog
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Re: CPAP use with Sarcoidosis

Post by chunkyfrog » Thu Jan 30, 2014 2:29 pm

Bumping this up so more will see it.
(wish I could help more)

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rob15594
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Re: CPAP use with Sarcoidosis

Post by rob15594 » Thu Apr 24, 2014 8:20 pm

I have pulmonary sarcoidosis . Just started cpap last week. So far so good, I have more energy. I'm on my last week of a prednisone taper, so I'm hoping things will keep getting better.

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knothead
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Re: CPAP use with Sarcoidosis

Post by knothead » Fri Apr 25, 2014 6:44 am

rob15594 wrote:I have pulmonary sarcoidosis . Just started cpap last week. So far so good, I have more energy. I'm on my last week of a prednisone taper, so I'm hoping things will keep getting better.
Wishing you all the luck getting off steroids. I have been on them for almost 3 years. Each time I start tapering off the sarc flairs up. Good luck with CPAP treatment, it has really improved my sleep.

_________________
Machine: ResMed AirSense™ 10 AutoSet™ CPAP Machine with HumidAir™ Heated Humidifier
Mask: Mirage Quattro™ Full Face CPAP Mask with Headgear
Additional Comments: BP down & in control, Resmed S9 Autoset for backup & travel.