Update on the Kiddo

[SleepyonMagnoliaSt]

It's been 5 months since we started CPAP for Daughter. She's still averaging 10 hours a night and loves her machine! The sleep clinic keeps telling me they wish she could be their Poster Child!

Here's a recent pic of kid



She loves her machine and loves sleeping with it!

Recently something happened that made me very very glad that we didn't get her tonsils and adenoids out (remember they weren't swollen at ALL)

Eldest Daughter and I were diagnosed with a genetic connective tissue disorder. This makes it very very hard to heal from surgeries and there's a 50% chance that littler kid has it too.

I need to get the card out of her cpap machine though and check her data with sleepyhead LOL

[kteague]

Thanks for updating us on your adorable daughter's fabulous adjustment to using CPAP. She certainly could be a poster child, and an example for adults too.

[SleepyonMagnoliaSt]

Thanks for updating us on your adorable daughter's fabulous adjustment to using CPAP. She certainly could be a poster child, and an example for adults too.

She loves it. The only time she doesn't like it is when I won't let her camp out in the front room because I don't want to haul her machine back and forth.

But as soon as the mask is on her face it's like he brain goes 'CLICK! Bedtime!'

She goes to bed at 8 pm and gets up about 6:30 AM

[RogerSC]

Wow, what a great adjustment, you guys must really be helping to support that wonderful attitude.

You all keep it up, so happy to see such positivity about something that could be taken the other way pretty easily.

[mgaggie]

She loves it. The only time she doesn't like it is when I won't let her camp out in the front room because I don't want to haul her machine back and forth.

But as soon as the mask is on her face it's like he brain goes 'CLICK! Bedtime!'

She goes to bed at 8 pm and gets up about 6:30 AM

Moving the machine is ok when the humidifier is empty.

Your daughter is looking so healthy, and I am glad she has taken to cpap so well.

[kaiasgram]

Hi Sleepy, it's good to hear from you again. Kudos to your little kiddo and to you as well. She looks great -- I should look so content sleeping with my machine .

[Stormynights]

How is Mom doing?

[hueyville]

Feeling grumpy and having a very bad day but the thread and the pic put a smile on my face 1st time today. Thanx 4 that. Now that I have been diagnosed and treated for almost three years now, with the last 1/2 year involving a lot of research I am sure have had apnea since childhood. Complained of problems breathing and sleeping since before kindergarten. Had tonsils and adnoids removed along with ear surgery at age 3 1/2 followed by 13 more ear surgeries before college then just adapted to the xeafness and pain as in the long run it was less bothersome than the continued proceedures.

Daggum good on you for trying a non invasive approach 1st. Even if the surgical removal is required later it is no lose putting it off and chance of big potential gain. Another reason is give her more time for brain development before being exposed to anesthesia. I have some issues following me for life from 3 surgeries before age 5 and even more before age 10. Darn good parenting and decision making. I am a bit jaded these days with the opinion most people with kids are not smart enough to have procreated and should have been required to be tested and licensed before spawning. Does me good to see people not do the 1st thing the 1st doctor suggested involving a childs health. My parents tried but were unable to realize my piediatrician was not top notch. Big practice and lots of patients does not always mean top quality on docs.

[SleepyonMagnoliaSt]

Hi Sleepy, it's good to hear from you again. Kudos to your little kiddo and to you as well. She looks great -- I should look so content sleeping with my machine .

It's good to be back! I didn't mean to go MIA for so long but our year turned INSANE.

At the end of July? Eldest DD broke her leg which go us questioning genetics, which got us into lots of doctors appointments. And it's just been weird

[icipher]

what a little sweetheart. that's great you were able to help recognize a problem and help her.

What were her original symptoms that triggered you to have her checked out? I am guessing she has OSA?

[SleepyonMagnoliaSt]

Feeling grumpy and having a very bad day but the thread and the pic put a smile on my face 1st time today. Thanx 4 that. Now that I have been diagnosed and treated for almost three years now, with the last 1/2 year involving a lot of research I am sure have had apnea since childhood. Complained of problems breathing and sleeping since before kindergarten. Had tonsils and adnoids removed along with ear surgery at age 3 1/2 followed by 13 more ear surgeries before college then just adapted to the xeafness and pain as in the long run it was less bothersome than the continued proceedures.

Daggum good on you for trying a non invasive approach 1st. Even if the surgical removal is required later it is no lose putting it off and chance of big potential gain. Another reason is give her more time for brain development before being exposed to anesthesia. I have some issues following me for life from 3 surgeries before age 5 and even more before age 10. Darn good parenting and decision making. I am a bit jaded these days with the opinion most people with kids are not smart enough to have procreated and should have been required to be tested and licensed before spawning. Does me good to see people not do the 1st thing the 1st doctor suggested involving a childs health. My parents tried but were unable to realize my piediatrician was not top notch. Big practice and lots of patients does not always mean top quality on docs.

I'm glad it made you smile!!

I'm definitely not liking how they cut first for sleep apnea in children. Especially children like my DD who have NEVER had infected tonsils, no ear infections and nothing swollen at all. Everyone told me 'Oh it's easier! and it will fix her!' But I know people who lost children due to 'routine tonsillectomy' and I just wasn't willing to risk it especially since she is so complient for CPAP

[SleepyonMagnoliaSt]

what a little sweetheart. that's great you were able to help recognize a problem and help her.

What were her original symptoms that triggered you to have her checked out? I am guessing she has OSA?

She had Sleep Apnea as a baby and seemingly grew out of it at 13 months old. However at 7 she wasn't sleeping through the night, waking up 4-6 times a night. She was wetting the bed. Would make this awful wheezing/choking/gasping noise. Lots of weird sounds. Her chest would move weird while she slept. And in April of this year she started getting SEVERE migraines and that's what prompted the Sleep Study after MRI showed nothing.

[icipher]

what a little sweetheart. that's great you were able to help recognize a problem and help her.

What were her original symptoms that triggered you to have her checked out? I am guessing she has OSA?

She had Sleep Apnea as a baby and seemingly grew out of it at 13 months old. However at 7 she wasn't sleeping through the night, waking up 4-6 times a night. She was wetting the bed. Would make this awful wheezing/choking/gasping noise. Lots of weird sounds. Her chest would move weird while she slept. And in April of this year she started getting SEVERE migraines and that's what prompted the Sleep Study after MRI showed nothing.

Do you mind me asking how you determined she had apnea as a baby? what cues you picked up on?

My son is 15 months old and still wakes up during the night crying. The paranoid part inside me is scared(probably needlessly) that he might have a sleep related disorder(apnea.)

[SleepyonMagnoliaSt]

Do you mind me asking how you determined she had apnea as a baby? what cues you picked up on?

My son is 15 months old and still wakes up during the night crying. The paranoid part inside me is scared(probably needlessly) that he might have a sleep related disorder(apnea.)

She was very sickly as a baby. Severe reflux. Lots of vomiting 24/7. She'd throw up like 23 times in 10 minutes. At 4 months old she was sitting in her swing made this horrible 'death choke' and turned blue. I grabbed her from her swing, beat her on her back and called 911.

At the ER they discovered she had pneumonia and episodes where she stopped breathing as well as her reflux. We were sent to the pulmonologist (the same one she sees now) who is also the head of the Sleep Center at Riley Children's Hospital. She was diagnosed with Asthma and sent for a sleep study where she had an AHI of 55. She was on a monitor until she was 13 months old. She also had GERD and we had to switch to a super expensive formula because of allergies.

[jdr999]

It's been 5 months since we started CPAP for Daughter. She's still averaging 10 hours a night and loves her machine! The sleep clinic keeps telling me they wish she could be their Poster Child!

Awesome! I'm glad she's taken to it so well! Keep up the great job