Issues with Compliance

[Julie]

NCSU - Please be careful about what and how much of the previous long note you take as gospel. There have been very many 'contributions' by the poster over time (if not for a short while) on the same subject, referencing some particularly odd and not well substantiated ideas (for all that he's provided a few refs here), and some outright wrong ones. It's not normally my place to do this, but as you're new here and unfamiliar with the poster, I thought I'd mention it... you seem to have enough trouble without getting caught up in some new (to you) and in some instances actually disproven theories.

[Todzo]

NCSU - Please be careful about what and how much of the previous long note you take as gospel. There have been very many 'contributions' by the poster over time (if not for a short while) on the same subject, referencing some particularly odd and not well substantiated ideas (for all that he's provided a few refs here), and some outright wrong ones. It's not normally my place to do this, but as you're new here and unfamiliar with the poster, I thought I'd mention it... you seem to have enough trouble without getting caught up in some new (to you) and in some instances actually disproven theories.

you are simply out of line

[Todzo]

julie never offers citations of evidence to support her claims that I can recall - as she shows here yet again

[Todzo]

Often I wonder how much of CPAPtalk be shills trolls sockpuppets or astroturfers.

[Julie]

I don't make 'claims' so don't feel the need to supply citations of any kind. If I make an assertion it is either from personal experience, direct knowledge of the subject from my long time hospital work or immediate personal contacts. You're right that my note was not very nice, but if I read one more story about 'loop gain' I may lose it entirely and I'm not sure it would be any more desirable to hear my guffaws than my other posts. That's all.

[palerider]

julie never offers citations of evidence to support her claims that I can recall - as she shows here yet again

one only needs cite your posting history to substantiate the baby giraffe's feelings:

[Julie]

But, hey, he's seriously cute!

[cathyf]

I'm probably in the minority, but I absolutely *detest* the term "compliance"

com·pli·ance kəmˈplīəns
noun
1. the action or fact of complying with a wish or command

it's not about benefitting me, it's not about making people better, it's not about helping anybody, it's not about improving someones life.

it's all about DOING WHAT YOU'RE TOLD TO DO.

I'm certainly not "compliant" because nobody TOLD me to use cpap, I decided to use cpap of my own free will. whether or not it would help if people started being more direct and talking about usage instead of referring to 'following orders' would help or not, I don't know.

Absolutely agree. Furthermore, compliance with a xPAP treatment plan is, by definition, impossible. As is non-compliance. Compliance and non-compliance are volitional actions, and people using xPAP are asleep. And people who are asleep are unconscious.

My instant, visceral reaction to someone using the word "compliance" to describe non-volitional behavior is "f*** you, a******."

As for a gaming application, speaking as a former videogame developer, how about this: For every hour I use the xPAP while I'm asleep, I get points. For every so many points I get, I can go to the house of some person who used the word "compliance" to refer to non-volitional actions and beat the crap out of him or her. Seems like a fun game!

[Greg Riddle]

Compliance for me has been a joke. When I first got the machine it had a cell phone attached but it didn't work do to living in bfe. Dme said they still user the sd. Well they never asked for it. The other day I got a call from dme. They said, are you using your cpap. I said yes they said thank you and ended the call.

[cathyf]

...a cell phone attached but it didn't work do to living in bfe...

Ok, what does the TLA of "bfe" mean? (From context, I'm thinking you mean what I refer to as living in Outer Forgottenia. If yes, howdy, neighbor!)

[Todzo]

To check out the PALM issues simply Google Scholar or PubMed search:

Sleep apnea pcrit

sleep apnea arousal threshold

sleep apnea loop gain

sleep apnea muscle

And note that limiting the search to “since 2010” will yield some nice results indeed.

Happy reading!

[palerider]

...a cell phone attached but it didn't work do to living in bfe...

Ok, what does the TLA of "bfe" mean? (From context, I'm thinking you mean what I refer to as living in Outer Forgottenia. If yes, howdy, neighbor!)

not surprisingly, google can help!

[Mike79]

I was diagnosed with sleep apnea nearly ten years ago. After years of being misdiagnosed as allergies and weight, the sleep study clearly pointed out my problem. The specialist who sent me for the sleep study and prescribed CPAP, was explicit about the possible consequences of untreated sleep apnea. The research I did on my own told me of the low compliance rate.

The first night I used my machine and mask, I found out how noisy the machine was. I also noticed that I seemed more aware of the ambient light in my bedroom. I also found that the presence of the mask frame so close to my face and in the middle of my field of vision was extremely annoying. I took my situation seriously and was determined to make CPAP work for me. I solved the noise problem by using foam earplugs. They didn't eliminate the noise--I didn't expect them to--but they reduced it to an acceptable level and screened out other noises live the HVAC system in my house. The mask frame and ambient light issues took longer to overcome. That involved finding a sleep mask that would block out light but allow an adequate seal between my CPAP mask and my face. The solution was a light-weight sleep mask along with sports tape. Each night, I put in my ear plugs, tape each eyelid shut, put on my sleep mask and my CPAP mask. It took a few weeks to get used to being blind and nearly deaf from the time I went to bed until I got up the next morning. It also involved learning to make my way to the bathroom and back by touch. I have been nearly 100% compliant ever since. On a typical night I fall asleep before my CPAP machine ramps up to full pressure.