CPAP Community - View topic - 12 years on cpap and it's time to move on.

by **corky** on Mon Feb 20, 2012 9:47 am

On 02/17/2012 I went under the knife for my sleep disorder.. trying http://www.inspiresleep.com. it has been 6 months of waiting and test after test after test but got the green light to have the implant put in. I'm a little sore but I know things can only get better. 12 years on cpap has come to a end ( I hope). Fingers crossed!

by **Mary Z** on Mon Feb 20, 2012 9:51 am

Corky, best of luck to you. Please keep us posted on the success, the whole process, of getting the implant calibrated. This is a topic of great interest and so far you are the only one I have read on the forum who got the implant.
Thanks for posting.

_________________

Mask: Wisp Nasal CPAP Mask with Headgear - Fit Pack
Humidifier: PR System One Heated Humidifier
Additional Comments: PR System One Remstar BiPap Auto AS Advanced.

by **nanwilson** on Mon Feb 20, 2012 10:03 am

Looks to me like Corky is associated with inspiresleep and trying to sell the proceedure. He has only registered today and posting about another way to tackle sleep apnea. If it looks like a duck and quacks like a duck....its a duck. :lol:

_________________

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by **Mary Z** on Mon Feb 20, 2012 10:06 am

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Mask: Wisp Nasal CPAP Mask with Headgear - Fit Pack
Humidifier: PR System One Heated Humidifier
Additional Comments: PR System One Remstar BiPap Auto AS Advanced.

by **tetragon** on Mon Feb 20, 2012 10:08 am

nanwilson wrote:If it looks like a duck and quacks like a duck....its a duck.

Or it's a well-made, duck-like automaton. But I prefer the live ducks. They get tastier and tastier as Dead Duck Day approaches.

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Machine: PR System One REMStar 60 Series Auto CPAP Machine
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Humidifier: PR System One 60 Series Heated Tube Humidifier with Heated Tube
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by **Uncle_Bob** on Mon Feb 20, 2012 10:20 am

I would like to know what is meant by "test after test after test" before they would consider an implant device.

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Machine: PR System One REMStar 60 Series Auto + Heated Tube Humidifier Core
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Additional Comments: 5cm-7cm APAP

by **corky** on Mon Feb 20, 2012 11:25 am

I'm not a salesman. I'm just a reg. Joe that has been flighting sleep for the passed 20 years and I'm only 40. I had this done in Charleston sc and I was told that was #5 on the list of 10 that will get it. I will let everyone know how this works out. Device will not be turned on for a month.. the dr's want to make sure I've healed well. 3 cuts about 3" long my right side seem to be healing well. But no I'm not a salesman.

by **corky** on Mon Feb 20, 2012 11:38 am

How I found out.. http://www.theSTARtrial.com. hope this helps. Or search m.u.s.c inspire sleep. Good luck y'all.

by **chunkyfrog** on Mon Feb 20, 2012 2:06 pm

Odd; I always thought test subjects were required to sign a non-disclosure agreement.
I was in a study; and they would give neither me or my doc any info.
I had to look it up years later online to see the results.

_________________

Machine: S9 AutoSet™ CPAP Machine
Mask: Wisp Nasal CPAP Mask with Headgear - Fit Pack
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: Auto 9-13, Expi 2. See below for a link to find Medicare suppliers in your area.

by **LSAT** on Mon Feb 20, 2012 2:39 pm

corky wrote:I'm not a salesman. I'm just a reg. Joe that has been flighting sleep for the passed 20 years and I'm only 40. I had this done in Charleston sc and I was told that was #5 on the list of 10 that will get it. I will let everyone know how this works out. Device will not be turned on for a month.. the dr's want to make sure I've healed well. 3 cuts about 3" long my right side seem to be healing well. But no I'm not a salesman.

Where did you have it done in Charleston?

_________________

Machine: S9 AutoSet™ CPAP Machine
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by **msradar65** on Mon Feb 20, 2012 2:47 pm

Who was the doc. I am seeing my Pulmonary doctor tomorrow. I want to ask him about it. I'm in Charleston.

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by **Goofproof** on Mon Feb 20, 2012 10:49 pm

12 years and still in DeNile, that's got to be a record for backstroking. Jim

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by **idamtnboy** on Mon Feb 20, 2012 11:41 pm

chunkyfrog wrote:Odd; I always thought test subjects were required to sign a non-disclosure agreement.
I was in a study; and they would give neither me or my doc any info.
I had to look it up years later online to see the results.

I was in a clinical trial for Actos diabetes med about 11 years ago. I don't recall any non-disclosure form at all. In fact I didn't know anything to disclose other than it was Actos or the med name pioglitazone. But it was a double blind study so neither my doc nor I knew if I was on the med or a placebo. Shortly after the study was concluded all participants were invited to a presentation where the results were discussed and we were told if we were on the med or the placebo.

Prior to that I was in a diet study. I got randomly selected to be in the control group so all I got were regular physicals including blood tests and some carotid artery cat scans. I received no diet advice whatever. In that test they withheld info about the lab results until the end. That's when I found out I crossed the threshold for diabetes diagnosis right at the end of the study.

So in both cases I was given information during the study to the extent it would not compromise the study. But I was given a full report when the study ended.

_________________

Machine: S9 AutoSet™ CPAP Machine
Mask: Swift™ LT Nasal Pillow CPAP Mask with Headgear
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: Hose management - rubber band tied to casement window crank handle! Hey, it works! S/W is 3.13, not 3.7

by **Starlette** on Tue Feb 21, 2012 12:39 am

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by **debtheveg** on Tue Feb 21, 2012 7:30 am

Hi there Corky. Just want to wish you all the best with the device. I posted on here a few days ago asking if anyone has had any experience with this as I am at the very beginning of being considered for the Apnex stimulator. I think the whole of idea of it is very amazing and I'm hopeful of being able to take part in the trials.

I find it confusing and very odd how many people on this forum (not all) appear extremely negative about the idea of alternatives to CPAP. For those who are doing well with it, fine, but it would be nice if they were encouraging and supportive to those who wish to try new ideas or be involved in the development of better treatments.

Good luck to you and the others participating in the trials .....

12 years on cpap and it's time to move on.

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