Covert Operations (Dont Tell)
Covert Operations (Dont Tell)
Does anyone know if downloading data onto a card will be detected by my machine? Also will the data on the machine be deleted after I have downloaded onto the data card. I ask this as we are not allowed or is frowned upon by medical staff in my country and I would like to get my data without there knowledge any advise is much appreciated, thanks
"Not all mask are for hiding behind"
Re: Covert Operations (Dont Tell)
No, no and no. The machine will not tell nor will the card....nor will we There are not any cpap police in any country, you are safe. The medical profession may frown on it but there is nothing they can do to you....hmmmm many torturous things come to mind, brass knuckles, a ruffian to come take out your kneecaps.........................
_________________
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Started cpap in 2010.. still at it with great results.
Re: Covert Operations (Dont Tell)
When I complained about it, I was called into the hospital and given the 3rd degree, told they can take the machine of me and (You'l like this) Forums should be banned as they are responsable for a lot of damage to patients and could kill people with thier advise! That came from one of the top doctors in Scotland.
I got my MP onto them but he was bogged down in red tape. I backed down and now if Im looking at results on my pc the curtains are blackout curtains and I wear full camo, just incase he's got a tracking devise. Better go now your advise could kill Shhhhh thanks
I got my MP onto them but he was bogged down in red tape. I backed down and now if Im looking at results on my pc the curtains are blackout curtains and I wear full camo, just incase he's got a tracking devise. Better go now your advise could kill Shhhhh thanks
"Not all mask are for hiding behind"
Re: Covert Operations (Dont Tell)
After reading this forum I called my RT and asked for his "permission" to read my card. He seemed a little surprised that I could do it and even more when I said I had access to the software. THANKS, new friends!!! He said he had no problem at all with me looking at my own data and to email him if I have any questions. Previously he had not given me his email address. I told him that I am an old geek and it would all be fine. LOL
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Re: Covert Operations (Dont Tell)
Boy, as one who would have given up on my cpap treatment without this forum, that doctor greatly offends me.Gazhacks wrote:When I complained about it, I was called into the hospital and given the 3rd degree, told they can take the machine of me and (You'l like this) Forums should be banned as they are responsable for a lot of damage to patients and could kill people with thier advise! That came from one of the top doctors in Scotland.
I got my MP onto them but he was bogged down in red tape. I backed down and now if Im looking at results on my pc the curtains are blackout curtains and I wear full camo, just incase he's got a tracking devise. Better go now your advise could kill Shhhhh thanks
Ask him to give you an example of a forum causing alot of damage to patients. i will bet the SOB can't.
This jerk needs to understand that the days of doctors being the rulers in medical treatment of patient is over. He needs to realize this is 2012 and not 1900 and that patients are equal partners in their care. Actually, we are in charge as it is our health and body.
Ok, rant over.
49er
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Re: Covert Operations (Dont Tell)
Just shows you the craziness of the NHS sometimes.
In London I've had superb care from my consultant and sleep scientist, was referred and got an appointment in 4 weeks or so. On CPAP the week after diagnosis.
Once he realised I did look at the numbers and was taking an interest in my own therapy, and most importantly, knew what I was doing, I had an excellent discussion with him about the merits of changing pressure, effect of weight loss etc.
I suspect the OP's doctor reacted the way he did because he presumes that *no one* takes an interest or knows or can learn. Ridiculous as we all know!
In London I've had superb care from my consultant and sleep scientist, was referred and got an appointment in 4 weeks or so. On CPAP the week after diagnosis.
Once he realised I did look at the numbers and was taking an interest in my own therapy, and most importantly, knew what I was doing, I had an excellent discussion with him about the merits of changing pressure, effect of weight loss etc.
I suspect the OP's doctor reacted the way he did because he presumes that *no one* takes an interest or knows or can learn. Ridiculous as we all know!
- BlackSpinner
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Re: Covert Operations (Dont Tell)
There have been studies done on that and they are totally wrong. The problem is that doctors find it annoying to have their solutions questioned.Gazhacks wrote:When I complained about it, I was called into the hospital and given the 3rd degree, told they can take the machine of me and (You'l like this) Forums should be banned as they are responsable for a lot of damage to patients and could kill people with thier advise! That came from one of the top doctors in Scotland.
I got my MP onto them but he was bogged down in red tape. I backed down and now if Im looking at results on my pc the curtains are blackout curtains and I wear full camo, just incase he's got a tracking devise. Better go now your advise could kill Shhhhh thanks
You are far more likely to die from walking into a hospital then you are from reading forums on the internet. Very much more likely in fact.
http://www.jaoa.org/content/108/12/699.abstract
and Hospital-Acquired Infections, MRSA, Killed 48,000 Americans In One Year
http://www.medicalnewstoday.com/articles/180065.php
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71. The lame can ride on horseback, the one-handed drive cattle. The deaf, fight and be useful. To be blind is better than to be burnt on the pyre. No one gets good from a corpse. The Havamal
Re: Covert Operations (Dont Tell)
Thanks guys and gals, I have shouted this from the roof tops even gone on about its my data and I have a write, well over here to see your data you have to pay the doctors for your freedom of data act and to see your charts. I gave up, it was like banging my head against a brick wall, Im probably classed as a trouble maker. I would love to have a doc or tech that was as good as yours and it would be fantastic to sit and discuss my OSA as its all over the place, one night my AHI is up round 16 the next night its 3 ??? It would be nice to phone the clinic and ask WHY!
...but at least I have you guys and gals from over the water
...but at least I have you guys and gals from over the water
"Not all mask are for hiding behind"
- chunkyfrog
- Posts: 34390
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Re: Covert Operations (Dont Tell)
Sometimes the best therapy is 'group therapy'--but the mighty gods of medicine sure don't like it much.
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Re: Covert Operations (Dont Tell)
Beware: Turn in your Guns to the government and the Crap Poliece are free to come in the night and unhook your mask. Not in the USA. Jim
Use data to optimize your xPAP treatment!
"The art of medicine consists in amusing the patient while nature cures the disease." Voltaire
"The art of medicine consists in amusing the patient while nature cures the disease." Voltaire
- chunkyfrog
- Posts: 34390
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- Location: Nebraska--I am sworn to keep the secret of this paradise.
Re: Covert Operations (Dont Tell)
They'll have to pry it from my cold, green claws.
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Re: Covert Operations (Dont Tell)
Each country's medical care system seems to have its problems.
This forum is where I receive the answer to most of my questions. By the time I see my doctor, I have it down to a few questions that are specific to me. He knows I look at my data. He seems pleased that I do, and I'd think a "secure" doctor would encourage patients to learn as much as they can.
I wouldn't change my settings without talking to my doctor, but that's because he's on my side.
This forum is where I receive the answer to most of my questions. By the time I see my doctor, I have it down to a few questions that are specific to me. He knows I look at my data. He seems pleased that I do, and I'd think a "secure" doctor would encourage patients to learn as much as they can.
I wouldn't change my settings without talking to my doctor, but that's because he's on my side.
_________________
Machine: AirCurve™ 10 VAuto BiLevel Machine with HumidAir™ Heated Humidifier |
Mask: Swift™ FX Nano For Her Nasal CPAP Mask with Headgear |
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
Additional Comments: Resmed S9 VPAP Adapt |
Re: Covert Operations (Dont Tell)
I havent seen a doctor for over a year and Ive still got 7 months to go before I see one, so for about 18 months I have to look after myself! Do these doctors have shit for brains? If they think Im just going to put on my mask every night without checking whats going on ??? I they found out and started being funny about it I would tell them where they can stick there hose!!! .....and then I'd sue them
"Not all mask are for hiding behind"
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Re: Covert Operations (Dont Tell)
If you did that, and they did that, I wouldn't want to sleep with the hose ever again.
_________________
Machine: AirCurve™ 10 VAuto BiLevel Machine with HumidAir™ Heated Humidifier |
Mask: Swift™ FX Nano For Her Nasal CPAP Mask with Headgear |
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
Additional Comments: Resmed S9 VPAP Adapt |