Quantcast

Bookmark and Share
General Discussion on any topic relating to CPAP and/or Sleep Apnea.
deaconbill1
 
Posts: 1
Joined: Sun Feb 21, 2010 2:29 pm
Gender: None specified

Dislike?

Postby deaconbill1 on Sun Feb 21, 2010 2:32 pm

Are there any users here who are not happy with or are disappointed with being prescribed to use a CPAP machine?

User avatar
Jersey Girl
 
Posts: 694
Joined: Thu Feb 04, 2010 9:28 am
Gender: Female

Re: Dislike?

Postby Jersey Girl on Sun Feb 21, 2010 2:43 pm

I don't think that I ever said to myself, "wouldn't it be fun to sleep with a mask on my face every night"? However, I was so fatigued that when I found out that there was a solution, I was happy to know that I could do something about it. It's the results that feel good. Yesterday I really saw those results - my husband took a mid day nap, but I didn't need one! :D

_________________
Mask: Swift™ FX Nasal Pillow CPAP Mask with Headgear
Humidifier: HumidAire H4i™ Heated Humidifier
Additional Comments: Pressure - 8, CMS 50D+ Pulse Oximeter, Regenesis cpap pillow, Pursleep scents, padacheek fleece hose covers

Happiness is from the heart out, not the world in.

User avatar
montana
 
Posts: 251
Joined: Sun Nov 26, 2006 4:11 pm
Gender: Female

Re: Dislike?

Postby montana on Sun Feb 21, 2010 3:02 pm

Me...I was grateful to learn why I could not sleep on my back. Grateful to learn why elevating bed, using those goofy nose strips , being embarrassed to sleep on a plane or someone elses house,and thinking I had "allergies". .. Ect ect. Everyone can relate.
"If it weren't for electricity we'd all be watching television by candlelight. "
.............Kate Hepburn

User avatar
carbonman
 
Posts: 2399
Joined: Wed Jun 25, 2008 7:57 am
Gender: Male

Re: Dislike?

Postby carbonman on Sun Feb 21, 2010 3:15 pm

deaconbill1 wrote:Are there any users here who are not happy with or are disappointed with being prescribed to use a CPAP machine?


viewtopic/t49471/viewtopic.php?f=1&t=43582&p=386725&

No regrets.....thankful for this blessing.
"If your therapy is improving your health but you're not doing anything
to see or feel those changes, you'll never know what you're capable of."
I said that.

User avatar
bearded_two
 
Posts: 460
Joined: Mon Aug 10, 2009 8:01 pm
Gender: None specified

Re: Dislike?

Postby bearded_two on Sun Feb 21, 2010 3:20 pm

I was very happy to have had my problem diagnosed and to be able treat it. I was unhappy finding out that I had to use such a piece of equipment for the rest of my life; it was like a sense of loss of my independence. I felt several phases of adjustment, including denial, anger, acceptance, and adaptation.

_________________
Machine: IntelliPAP AutoAdjust Travel CPAP Machine with SmartFlex
Mask: ComfortGel Original Nasal CPAP Mask with Headgear
Software: SmartLink Version 2 Software
Additional Comments: Battery Geek CPAP Battery (lasts two days), Optima AGM Deep Cycle Battery (lasts a week), Pressure: 1 pz

User avatar
plr66
 
Posts: 1327
Joined: Sun Sep 07, 2008 6:33 pm
Gender: None specified

Re: Dislike?

Postby plr66 on Sun Feb 21, 2010 3:47 pm

bearded_two wrote:I was very happy to have had my problem diagnosed and to be able treat it. I was unhappy finding out that I had to use such a piece of equipment for the rest of my life; it was like a sense of loss of my independence. I felt several phases of adjustment, including denial, anger, acceptance, and adaptation.

Bill, your feelings are legitimate. All of us come to this thing from different places and with different reactions. I felt so horrible and so literally believed that I was dying, that I never experienced denial or anger as bearded mentioned. I actually could not wait to put on that mask and feel the rush of air into my nose, as if it really was bringing my life back. And it has.

So no matter what disappointment or anger or negativity you naturally feel now, it will be important for you to work on your attitude and get your thoughts into a constructive direction (the adaptation and acceptance mode). You will find tons of suggestions here about how to incorporate this device into your lifestyle so that you don't have to feel like this is the end of anything, but truly an enhancement to your life. And by the way, I am well aware of how Pollyanna this probably sounds to you right now. But attitude is everything, and if you can start some positive self-talk about this rather than dwelling on the negatives, you will succeed!

I have said this many times, I guess, but I approached the whole thing with curiosity and as a nightly experiment. Couldn't wait to get to bed to try different equipment, different pillows, different settings, etc. That approach made the trials of it all relatively painless. And I just don't give a thought to it anymore. I did not let it interfere with my love for travel; and I'm sure you see here that many folks frequently ask about how to make it work even while camping. Just to say, if you look at it from the point of view of acceptance rather than dread or resentment, you'll be far and away ahead of the game. And able to enjoy some peace with it due to your newfound energy & health.
DeVilbiss IntelliPap Std Plus with Smartflex; Everest2 w/humidifier & batt for travel. UltraMirage FFM; PadACheeks; PurSleep scents; PaPillow. Using straight CPAP at 13.0/passover humidifier. AHI consistently < 1.5. Started CPAP 9/4/08.

User avatar
JohnBFisher
 
Posts: 3810
Joined: Wed Oct 14, 2009 6:33 am
Gender: None specified

Re: Dislike?

Postby JohnBFisher on Sun Feb 21, 2010 4:49 pm

deaconbill1 wrote:... Are there any users here who are not happy with or are disappointed with being prescribed to use a CPAP machine? ...

Heck yes! I would LOVE to not need my machine. I would love to be able to just pack a bag and go ... and not worry about if I have a ASV unit packed with everything I need.

But then I would love to be able to see without my glasses. I've worn them almost every day of my life since I was 5. I got used to glasses. I *STILL* find them frustrating. (Especially when I put them down, don't remember where, and then spend an hour trying to find them because I can't see them! :oops: :lol: :lol: )

But life is what it is. In this case the benefit of wearing glasses is greater than not wearing them. So I put up with them. Ditto with the ASV unit.

_________________
Machine: PR System One REMStar 60 Series BiPAP autoSV Advanced
Mask: Quattro™ FX Full Face CPAP Mask with Headgear
Humidifier: PR System One Heated Humidifier
Additional Comments: User of xPAP therapy for over 20 yrs. Resmed & Respironics ASV units with EEP=9cm-14cm H2O; PSmin=4cm H2O; PSmax=15cm H2O; Max=25cm H2O
"I get up. I walk. I fall down. Meanwhile, I keep dancing” from Rabbi Hillel
"I wish to paint in such a manner as if I were photographing dreams." from Zdzisław Beksiński

User avatar
rosacer
 
Posts: 1152
Joined: Thu Dec 10, 2009 11:37 am
Gender: Female

Re: Dislike?

Postby rosacer on Sun Feb 21, 2010 4:56 pm

When I knew I needed a cpap I said to myself, I don't want to be maried to a machine for the rest of my life! :evil: I don't want a cpap :evil:

The months started passing by and my mental capacities deteriorating at the point I was not functionnal, then I started telling BRING ME THAT MACHINE FAST PLEASE, PLEASE! :lol: :lol:

I'm VERY happy I have a cpap, I know there is people suffering of all the consequences of sleep apnea who can't afford a cpap or don't even know why they feel so tired, empty brained, or are distroying their health. I don't regret my treatment a split second. Yes I would prefer to sleep no mask as a normal person but the reality is I can't, I accepted it and now I see a big difference in my life, and The Best Is Yet To Come :D

rosacer

_________________
Machine: S9 AutoSet™ CPAP Machine
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: Headrest modified and Ultra Mirage FFM (alternate), Hose Lift System, SleepyHead software. Pressure settings 7 cmH2O constant.

User avatar
Judy R
 
Posts: 183
Joined: Sun Jan 03, 2010 1:34 pm
Gender: Female

Re: Dislike?

Postby Judy R on Mon Feb 22, 2010 12:31 am

I don't think that there's many of us, who like to be tethered to this machine. However, and I can only speak for myself, I was glad to find out why I was so tired all of the time. Infact, having the sleep study done, and getting this machine truly saved my life. I was told by my Dr. that if we hadn't have done the study when we did, I might have only a few days, before I would go to bed one night, and never wake up again. If that doesn't shock you into reality, I don't know what would. No, I'm not thrilled about having to be on this machine, but as far as I am concerned it's my life line, and I want to be around for a very long time.

_________________
Mask Humidifier 
Additional Comments: She wasn't what you would call refined, She wasn't what you would call unrefined, She was the kind of a person who keeps a Parrot. *Mark Twain*
Judy R.

User avatar
terrydk
 
Posts: 93
Joined: Thu Dec 10, 2009 10:11 pm
Gender: Male

Re: Dislike?

Postby terrydk on Mon Feb 22, 2010 12:53 am

Like...not really, dislike...sometimes, need...absolutely. My wife described my many episodes of no breathing :cry: or gasping for air but other than being tired all the time and getting up several times a night to use the bathroom I didn't really notice. Then I started waking up more and more often with headaches and a very dry mouth. So off to the local sleep center we went for a sleep study. It wasn't fun by any means but I was diagnosed with sever obstructive apnea with 126 apneas an hour. :oops: Now two months later I think I have adjusted pretty quickly in comparison to many that post here. I can now sleep the entire night without getting up, no more headaches or tossing and turning. :) The hardest part for me was finally going to sleep after getting the mask on...it can be a big hurdle to overcome but with persistence it can happen. At first its hard to keep the mask on all night but if you just try and keep it on a little longer each night it will finally get to the point that you leave it on all night, I am now getting almost 7 hrs a night and even 8 on some occasions.

If the statistics are anywhere near accurate :?: ...it's an alarming number, there are a lot of people that are missing out on some therapy that would help them sleep better and feel better.

_________________
Machine Mask 
Additional Comments: AHI 126 - Began Therapy 12/21/09, Auto Set Low 12cm - High 17cm

User avatar
thewetlizard
 
Posts: 162
Joined: Wed Oct 28, 2009 4:32 pm
Location: florida
Gender: Female

Re: Dislike?

Postby thewetlizard on Mon Feb 22, 2010 11:50 am

I highly dislike my cpap. It took me 4 months to really start wear it. I don't like something on my face and I don't like being restricted by a hose either. The only really thing I acknowledged was my very loud snoring and waking up to a very dry mouth. I didn't have that "fog" or day time sleepyness.

_________________
Mask Humidifier Software 
stop the bull the cow is dead!

User avatar
Craig P
 
Posts: 77
Joined: Sat Feb 20, 2010 12:51 pm
Gender: Male

Re: Dislike?

Postby Craig P on Mon Feb 22, 2010 12:14 pm

Not in any way shape or form. I would probably not be alive today if I had not started on my cpap therapy 10 years ago. I am now 57, the same age as my father when he died. In looking back I know he had undiagnosed sleep apnea and he suffered greatly for it. I WILL NOT go through that. Using a cpap is easy compared to that.

_________________
Machine: S9 AutoSet™ CPAP Machine
Mask: Swift™ FX Nasal Pillow CPAP Mask with Headgear
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: Actually ResScan 3.10
In looking back I know my father had undiagnosed sleep apnea and he suffered greatly for it. I WILL NOT go through that. Using a cpap is easy compared to that.

User avatar
roster
 
Posts: 8248
Joined: Wed Jan 18, 2006 8:02 pm
Location: Matthews, NC
Gender: Male

Re: Dislike?

Postby roster on Mon Feb 22, 2010 12:16 pm

deaconbill1 wrote:Are there any users here who are not happy with or are disappointed with being prescribed to use a CPAP machine?


I imagine all the members do not like having sleep-disordered breathing.

As far as CPAP, would anyone have preferred the doctor to say, "There is no treatment. Go home, suffer, and die prematurely."?

_________________
Mask: Hybrid Full Face CPAP Mask with Nasal Pillows and Headgear
Software: Encore Pro Smart Card
Additional Comments: M Series Integrated Humidifier
Rooster
I have a vision that we will figure out an easy way to ensure that children develop wide, deep, healthy and attractive jaws and then obstructive sleep apnea becomes an obscure bit of history. http://www.youtube.com/watch?v=0ycw4uaX ... re=related

User avatar
Papillon2
 
Posts: 54
Joined: Mon Feb 15, 2010 11:38 am
Location: Colorado
Gender: Female

Re: Dislike?

Postby Papillon2 on Mon Feb 22, 2010 1:04 pm

Count me among those who were thrilled to death to find out what the problem was, and that it was treatable. I had been SO lethargic and sleepy, and felt like I was drugged a lot of the time. The brain fog was frightening. I had recently had a full blood panel done, and my internist told me that I "had the best blood results she'd seen in years". I couldn't reconcile that result with feeling awful all the time. So, when she prescribed a sleep test, I was actually hoping that I had apnea, because I needed to find a diagnosis. Afterwards, I found my mask easily and saw an almost immediate improvement, and now I look forward to bedtime, because I know it's therapeutic. Hopefully, you'll adjust soon and count yourself lucky that you were diagnosed before you had any catastrophic consequences.


Return to CPAP and Sleep Apnea (CLICK HERE TO READ POSTS)

Who is online

Users browsing this forum: CzechCzar, grayghost4 and 21 guests