Call For Participants: Uni of Wisco Milwaukee Study

[johnnygoodman]

Greetings CPAPtalkers,

Beth Rodgers is a University of Wisconsin - Milwaukee professor who is about to engage in some very important work. These kinds of studies are important first steps in creating an awareness and understanding of what "real life OSA" is like. I encourage members of our community to participate in this and future trials.

To skip to the enrollment for this study, please click this link:

trial/CPAPtalk-Uni-Wisco-MI-OSA-Study.doc

To read Beth's message to me and get more background on the study she is conducting, please read on:

Johnny, I contacted you over a year ago to elicit your assistance with a research project I was planning to do. It took awhile, but I finally am getting started on that. One of the exciting parts of this for me is that the study is funded by the National Institutes of Health which shows recognition of OSA as a significant issue deserving of federal funds. At the time you agreed to post a notice on the forums to help me find individuals willing to share their stories of their OSA experiences with me.

As a nurse, a researcher, and a person with OSA, and previously a frequent contributor to CPAPtalk (under the name "ProfessorSleep"), I have the unique opportunity to use my combined skills to help improve the quality of health care for people with OSA. This study involves email correspondence with people 18 years of age or older who have been diagnosed with OSA or who are concerned that they MIGHT have OSA. By hearing about each individual's experiences with their symptoms, health care, diagnosis, lifestyle, and management of the condition, I can share our collective information with health care providers to let them know how best to help us manage our OSA. I believe that the information I collect also can be very helpful to people who think they might have OSA or who need help getting information and seeking treatment for themselves.

We all have struggled to some degree with our OSA and I believe we have the desire to help others as well, as evidenced by the wonderful participants in this forum. I hope some of those who participate in the ongoing discussions in this venue will be willing to share their confidential experiences with me in an effort to have a broader impact.

I am attaching the notice regarding this study that I would appreciate your posting in an appropriate location on the forum area if you are still willing. Feel free to post this message as well.

Thank you, as always, for your assistance in this study and for the incredible work you and the members of the forum do to help all of us with OSA.

With respect and gratitude to you and all the members of the CPAPtalk community,


Beth Rodgers, Ph.D., RN, FAAN
Professor
University of WI-Milwaukee
College of Nursing

[HelpMeBreath]

I live in Milwaukee and want to get in this. I am having some problems with the link

Never mind. Its a .doc file. All set.

[motogary]

I'd like to participate, though I don't know what I could contribute.

[ProfessorSleep]

If you have OSA, or even think you have OSA, you have something to contribute! We all deal with this experience in different ways. I am interested in communicating with as many people as possible regarding what things have been like for you in managing your apnea or other sleep disordered breathing problem. Feel free to check out the web page that is linked in the announcement, or you can contact me directly at the email address provided as well. Thank you for considering sharing your story with me!

Beth

[gasp]

I would be willing to participate.

[ProfessorSleep]

thank you, Gasp! Please contact me per the instructions in the posting, that is by sending email to sleep@uwm.edu

Beth