Privacy problems of forum

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
User avatar
tomjax
Posts: 1094
Joined: Mon Feb 14, 2005 1:20 am
Contact:

Privacy problems of forum

Post by tomjax » Fri Sep 30, 2005 5:44 am

Another forum I participate in has much more draconian posting
limitations and my psots are frequently removed.
There is absolutely no way for posters to contact each other and any mention of other sites or any commercial site is not permitted.
No auction posts or pressure change posts are permitted.
My question to those here is if any privacy invasion has happened here and what happened..
Has anyone had problems of any kind by making themselves subject to contact by others?
Has anyone been harmed by unrestricted postings that are not moderated?
Does the moderator have any conserrn for liability problems if a person is harmed from incorrect or harmful postings?
I will send this to other forums.
None of the yahoogroups or TAS or any other forum ever mention problems.
Just wondering.

Sleepless on LI
Posts: 3997
Joined: Mon May 30, 2005 6:46 pm
Location: Long Island, New York

Post by Sleepless on LI » Fri Sep 30, 2005 6:20 am

This site is absolutely amazing. I remember the first time I posted something about another site selling something for much less (might have been the smart card reader 2factors.com) and afterwards realizing that it could be adversely affecting this site since they sold the same product. They are hosting this wonderful forum for us to be candid and share all our knowledge about things maybe "they," the medical profession, and others, don't want us to know about, such as changing our own pressures, etc., and they allow us to freely exchange information without the worries of being deleted or censored in any way, so I did feel a bit guilty about posting the information. But I now realize that they are giving this site to us just for that purpose and/or any other purpose we feel we need to discuss.

That is one of the main reasons, unless it's a major, major savings, I deal with this site for what I need. My last purchase was my Aura back in the beginning of this month. They do deserve some loyalty for treating us the way they do. But that, too, is what allows this site to be the best site out there, as far as I'm concerned, dealing with OSA. The only time I ever visit another site that has message boards like this is if there is a link provided in someone's post to look at some particular thread.

I say to whoever makes the decisions to give us, the users, free reign here, "Thank you so much for allowing us to voice our opinions without the fear of being censored." I guess that's what makes this place as great as it is, not lessening the fact that we have the best members here anyone could ask for.

L o R i
Image

Sleepless on LI
Posts: 3997
Joined: Mon May 30, 2005 6:46 pm
Location: Long Island, New York

Post by Sleepless on LI » Fri Sep 30, 2005 6:33 am

Got this this morning and thought it kind of went along with the freedom given to us on this site. Never thought I would post anything political, but it's really not the point I'm trying to make. Hope you see my connection. And thank you to the Australian humanitarian who wrote the reply.

You probably missed it in the rush of news last week, but there was actually a report that someone in Pakistan had published in a newspaper an offer of a reward to anyone who killed an American, any American. So an Australian dentist wrote the following response to let everyone know what an American is .. so they would know when they found one.
*********************************

  • An American is English, or French, or Italian, Irish, German, Spanish, Polish, Russian or Greek. An American may also be Canadian, Mexican, African, Indian, Chinese, Japanese, Korean, Australian, Iranian, Asian, or Arab, or Pakistani, or Afghan.

    An American may also be a Comanche, Cherokee, Osage, Blackfoot, Navaho, Apache, Seminole or one of the many other tribes known as Navajo Indian.

    An American is Christian, or he could be Jewish, or Buddhist, or Muslim. In fact, there are more Muslims in America than in Afghanistan. The only difference is that in America they are free to worship as each of them chooses.

    An American is also free to believe in no religion. For that he will answer only to God, not to the government, or to armed thugs claiming to speak for the government and for God.

    An American lives in the most prosperous land in the history of the world. The root of that prosperity can be found in the Declaration of Independence, which recognizes the God given right of each person to the pursuit of happiness.

    An American is generous. Americans have helped out just about every other nation in the world in their time of need, never asking a thing in return. When Afghanistan was over-run by the Soviet army 20 years ago, Americans came with arms and supplies to enable the people to win back
    their country!

    As of the morning of September 11, Americans had given more than any other nation to the poor in Afghanistan.

    Americans welcome the best of everything, the best products, the best books, the best music, the best food, the best services. But they also welcome the least.

    The national symbol of America, The Statue of Liberty, welcomes your tired and your poor, the wretched refuse of your teeming shores, the homeless, tempest tossed. These in fact are the people who built America.

    Some of them were working in the Twin Towers the morning of September 11, 2001 earning a better life for their families. It has been told that the World Trade Center victims were from at least 30 different countries, cultures, and first languages, including those that aided and abetted the terrorists.

    So you can try to kill an American if you must. Hitler did. So did General Tojo, and Stalin, and Mao Tse-Tung, and other blood-thirsty tyrants in the world. But, in doing so you would just be killing yourself. Because Americans are not a particular people from a particular place. They are the embodiment of the human spirit of freedom. Everyone who holds to that spirit, everywhere, is an American.


L o R i
Image

User avatar
WillSucceed
Posts: 1031
Joined: Sun Nov 07, 2004 7:52 am
Location: Toronto, Ontario

Post by WillSucceed » Fri Sep 30, 2005 7:07 am

I have wondered at times about the validity of postings and know that people make errors in what they post. I'm guilty of this and fortunately, there have been others on this forum who have pointed out when I've posted erroneous information.

I worry about how much valid information we will miss if we moderate what is posted in our effort to prevent invalid information. I think that the site SHOULD monitor and block postings that are hateful, bigotted, attacking, vulgar or clearly intended to harm or mislead. Otherwise, I'd be inclined to leave the postings open to whatever folk want to post.

All of us need to both give, and take, information presented on this forum with a huge grain of salt and not act on any one posting. I have learned more from this site (thanks RG, you still be da' bomb!) than I did from the sleep quack and the folk at the equipment supplier. As such, I believe that this site, left open for the hugeness of information that it provides, is an invaluable resource.
Buy a new hat, drink a good wine, treat yourself, and someone you love, to a new bauble, live while you are alive... you never know when the mid-town bus is going to have your name written across its front bumper!

User avatar
neversleeps
Posts: 1141
Joined: Wed Apr 20, 2005 7:06 pm
Location: Minnesota

Re: Privacy problems of forum

Post by neversleeps » Fri Sep 30, 2005 8:07 am

tomjax wrote:Has anyone had problems of any kind by making themselves subject to contact by others?
No.
tomjax wrote:Has anyone been harmed by unrestricted postings that are not moderated?
No.

User avatar
WillSucceed
Posts: 1031
Joined: Sun Nov 07, 2004 7:52 am
Location: Toronto, Ontario

Post by WillSucceed » Fri Sep 30, 2005 8:45 am

Neversleeps wrote:
tomjax wrote:
Has anyone been harmed by unrestricted postings that are not moderated?

No.
Can't say that I have the same response as Neversleeps. I can think of occasions when people have felt injured by things that were said on this forum that were insensitive/bigotted/attacking in nature. Does not happen often, but it does happen.

And before I get jumped on for this, I'm not just referring to myself. There have been posting from folk objecting to the comments of others.
Buy a new hat, drink a good wine, treat yourself, and someone you love, to a new bauble, live while you are alive... you never know when the mid-town bus is going to have your name written across its front bumper!

User avatar
johnnygoodman
Posts: 784
Joined: Sun Oct 24, 2004 5:13 pm
Contact:

Post by johnnygoodman » Fri Sep 30, 2005 9:43 am

Howdy,

Ironically, I'm someone who often feels hurt/slandered/unfairly treated by "unrestricted postings".

On rare occasions, I have had to delete or strongly warn people who have used racial slurs/outright name calling. Those are easy to moderate. What is harder are the posts written in a civil toungue that are still clearly aimed at doing harm. Our business has been on the receiving end of too many of these lately and frankly, I'm getting a lot of heat from our organization to do more than provide calm, reasoned replies to many of the half truths. I can understand there position. The cpap.com team is the most proficient, elite group of CPAP experts on the planet, bar none. How would you feel if you were a member of this team, cared deeply about the work you did, and then woke up to read about how bad a job you were doing on the board you founded to help people? Years of work and good intentions can be "whiped away" by one uninformed loudmouth.

This isn't something that can be solved outright. A balance must be struck between allowing a free marketplace of ideas to discover the truth and removing outright falsehoods/objectionable material.

This board was founded to be free and it free. It has been hard to do and I'm damn proud of it.

For those wondering, here are the "levels of censorship":

Auto-deleted:

1. Slurs/Namecalling of any kind.
2. Dealers hawking product but not supporting the community.

Warnings/My Judgement Call

1. Moving cpap.com support issues to cpaptalk.com. cpap.com is a store, cpaptalk.com is an online support community. We registered a different domain for a reason!

2. Users slandering others products unfairly or without iron clad justification.

On the warnings stuff, the governing rule of reason is, solve your problems one on one with the source. cpaptalk.com is not your personal bullhorn.

There are obviously a number of other rules that could be written. Instead of drafting a cpaptalk Constitution though, I favor keeping it simple and helping people out who come here.

Thats how I feel, I'm glad someone asked.

Johnny

User avatar
WillSucceed
Posts: 1031
Joined: Sun Nov 07, 2004 7:52 am
Location: Toronto, Ontario

Post by WillSucceed » Fri Sep 30, 2005 9:56 am

johnnygoodman wrote:
Auto-deleted:

1. Slurs/Namecalling of any kind.
Oh really? I recall some namecalling fairly recently that went completely unchecked.
Buy a new hat, drink a good wine, treat yourself, and someone you love, to a new bauble, live while you are alive... you never know when the mid-town bus is going to have your name written across its front bumper!

Sleepless on LI
Posts: 3997
Joined: Mon May 30, 2005 6:46 pm
Location: Long Island, New York

Post by Sleepless on LI » Fri Sep 30, 2005 9:59 am

Johnny,

I can only imagine the fine line you must walk every day being connected to cpap.com AND cpaptalk.com. On the one hand, you want to offer freedom of speech to the users of this forum, but then there are lines that you have to feel strongly about that are being crossed. What to do. Can't be easy, making that decision. Seems to me like you are really between the proverbial rock and the hard place, although I think most of the people on this site are courteous and aware of what they're writing most of the time.

I have to say, all my dealings with cpap.com have been more than pleasant. I can't make one complaint about any dealings I've ever had with the company. Your customer service is courteous, helpful and down to earth to speak with. In other words, you deal with real people when you call, not just some operator doing her job. And I honestly feel, like I said, unless the savings is such that I can't pass it up, there should be some sort of loyalty to patronize this site if we avail ourselves of what it gives to us. And, personally, I feel it gives more than you can get anywhere else. I have learned 99% of what I now know about OSA and the equipment related to it on this talk site.

Whatever you're doing, it seems to be working. I don't like to think that you are being pressured from the powers-that-be because I think most people on this site would agree that you're doing a great job. If I do things occasionally that might ruffle your feathers, I apologize and don't realize when I write something that it may cause you grief. I hope I have not been one of your "problems." I will try to keep what you wrote in mind in the future when posting my opinions.

I say, keep up the good work. I think this forum is the best of its kind.

L o R i
Image

Guest

Forums

Post by Guest » Fri Sep 30, 2005 11:02 am

What are some of the other forums out there (perhaps not connected to a DME like CPAP.COM) ??


sleepy gal
Posts: 108
Joined: Tue Mar 08, 2005 1:59 pm
Location: upstate New York

Post by sleepy gal » Fri Sep 30, 2005 11:47 am

Johnny, Just want you to know that you and CPAP.com and CPAPtalk.com are greatly appreciated for all that you do for all of us OSA sufferers.

You are walking a fine line, but it seems to be working....yes, once in a while someone may vent, or perhaps unintentionally hurt someone, but that could happen if you were in a room talking with someone.,..not just on-line.

Anyhow, I think you are doing one heck of a job! And not an easy one.


_________________
Mask
Nan

User avatar
neversleeps
Posts: 1141
Joined: Wed Apr 20, 2005 7:06 pm
Location: Minnesota

Post by neversleeps » Fri Sep 30, 2005 3:55 pm

johnnygoodman wrote:On rare occasions, I have had to delete or strongly warn people who have used racial slurs/outright name calling. Those are easy to moderate. What is harder are the posts written in a civil tongue that are still clearly aimed at doing harm.
This is so true!! In fact, I find those seemingly innocuous, "civil-tongued" posts to be the most insidious, injurious, insensitive, bigoted, attacking and dangerous ones of all.
johnnygoodman wrote:.... cpaptalk.com is not your personal bullhorn.
Something we (and that includes ME!) should ALL keep in mind.
johnnygoodman wrote:This board was founded to be free and it [is] free. It has been hard to do and I'm damn proud of it.
As you should be! The lack of heavy-handed censorship is just one of the things that makes cpaptalk the best! The fact that we are allowed to publicly disagree is a true testament to your profound belief in the freedom you espouse.

I'd like to add that any disagreement, even something as simple as disagreeing with the determent of slotted-nared individuals from ordering nasal pillow interfaces, is never intended as a personal affront, or to hurt or slander you. It is simply a suggestion for the suggestion box. I fervently hope it is taken as exactly that; a suggestion.

You are to be congratulated for making cpaptalk an absolutely fantastic resource for us. I have always marvelled at your dedication and knowledge regarding all things cpap, especially since you, personally, do not have OSA. (At least, I think I read that somewhere along the way; correct me if I'm wrong!) Yet, you definitely know more about it than I probably ever will!! I appreciate the fact that you continue to educate us by providing this site, and continue to share your knowledge with us as we go along. I can honestly tell you, if it weren't for cpaptalk, I would have quit therapy long ago. I think it is fair to say you are saving lives here, and I, for one, am sincerely grateful to you.

User avatar
WAFlowers
Posts: 1172
Joined: Wed Jul 27, 2005 10:59 am
Location: Clearwater FL
Contact:

Post by WAFlowers » Fri Sep 30, 2005 3:58 pm

ozij, you said a mouthful!
The CPAPer formerly known as WAFlowers

Sleepless on LI
Posts: 3997
Joined: Mon May 30, 2005 6:46 pm
Location: Long Island, New York

Post by Sleepless on LI » Fri Sep 30, 2005 4:41 pm

WAFlowers wrote:ozij, you said a mouthful!
Bill, did Ozij delete her post? I couldn't find one from her. Or did you get the name mixed up and mean Neversleeps? Told you, doesn't take a lot to confuse me lately.
L o R i
Image

User avatar
rock and roll
Posts: 1222
Joined: Mon Nov 01, 2004 7:30 pm
Location: Texas

Post by rock and roll » Fri Sep 30, 2005 6:43 pm

Johnny,

You have been very patient with us, some more than others and for that I am grateful. It is a great forum and I am proud to be a member and you have a company you should be proud of and I for one plan to do busniess with you as long as you are the class organization you are. We do tend to be an overly grumpy bunch at times and I guess it goes along with the lack of sleep and frustrations of our ailment. You seem to understand this as a true professional. Most disagreements end up with the combatants good friends like Wader and I have become after our little spat. If Will Succeed wants to call a truce and give up the ghost and be friends, I am open to that as well. But I truly want to thank you for being as understanding and non interfering as you are.