bump

arthuranxious wrote:I brought my card and data to sleep doctor. he said "I don;t want to see that, I am much more worried about your coping and worrying about it than I am about your sleep apnea."
And when i asked the famous NYU sleep center, where Dr Krieger writes world famous research articles about slee[p apnea, if I should bring my APAP card when coming for a second opinion. they told me they don't have a card reader, and never see the data except when monitoring compliance for prof truck drivers and pilots.

Hmmmmm.....
Do those two statements sound contradictory to anyone?
How do they monitor compliance for those two categories without a card reader?

Not questioning YOU, Arthur......just struck me as a little odd.....like double-talk.

Den

I brought my card and data to sleep doctor. he said "I don;t want to see that, I am much more worried about your coping and worrying about it than I am about your sleep apnea."
And when i asked the famous NYU sleep center, where Dr Krieger writes world famous research articles about slee[p apnea, if I should bring my APAP card when coming for a second opinion. they told me they don't have a card reader, and never see the data except when monitoring compliance for prof truck drivers and pilots.

I'm always asked if I could or would drop off my data card about an hour before my appointment. I do and then go have lunch w/a friend who lives near the sleep clinic.

So he's checked it three times and he does go thru it whilst we are in the exam room. He has turned me loose for the next 6 months now so I assume they won't ask for it again until then or unless I call them w/a problem.

My sleep doc, (pulmonary) has never asked for compliance data. He is an accredited sleep disorder physician. The DME told me I did not need a smartcard.

After I took control of my therapy, I told my doc last time I saw him that I was now using an auto cpap. He started telling me that the autopaps did not work and that they could not move from one pressure to another in time to stop apneas. As politely as possible I told him, "I don't want to hear anymore of that. I know that some doctors still believe what you're saying, but I know it isn't true." So he then asked, "Which do you prefer?" My answer was "The autopap, of course."

Those of you who actually have a doctor who really understands xpap treatment and cares if your treatment is working are indeed blessed.

Regards,

Alisha

I've only been on CPAP for a little less than a month (doing well) and my sleep Doc asked me to bring the smartcard with me for my first follow-up in a couple of weeks.

I'll see if I can get tips on reading the data - I've ordered the card reader and software.

I've never laid eyes on the physician who signed my initial PSG and titration studies. Don't think my GP knows too much about machines, though she's willing to be supportive. Machine was a purchase from the start, so no queries from the DME.

MY 19 year old daughter will soon be scheduled for an initial PSG. I'd guess that the sleep center will show the same immense amount of interest in her treatment. My wife had a study at a different (hospital-affiliated) lab and was not impressed. I may need to look into other options locally.

i have never been asked for a report by anyone
but i have follow up appts every 6 months
and bring a copy of my report with me to give him

he makes notes on it and says you are doing
well

wolf

A good poll deserves to be bumped every now and again.

Regards,
Bill

my MD always asks how I'm doing on CPAP but has never once asked about my data.

The Dr. never, but I give him or the girls a printout everytime. No need he trusts me to act in my own best interest, I've shown him i've got it controlled. He says he wishes his other patients took it seriously.

The DME, Lincare, wants me to bring in my machine to they can read the compliance, I tell them if it breaks I'll bring it in, and give them a made up number for the hours. (I don't use that machine at all anymore, it's stored)

I would have gave it back and stopped the INS payments on it, but the INS wouldn't reimburse me for buying my own. That's showed me the INS wasn't wanting to save any money, so I am letting them pay for it while it sets in the closet. Jim

Close to my 4 year cpap anniversary, and the initial Sleep Doctor never has contacted me for a followup. He wrote my first apap prescription.

I went to a new Pulmonologist last year, took him my detailed reports, and got a new prescription from him. So I purchased a 2nd machine in case my first one fails.

My sleep doctor has requested data downloaded from my Synchrony BiPAP ST and he even wrote out script for me to have the software. I went ahead and bought it, since all I needed was the software, no card reader for the Synchrony, and didn't want to hassle with insurance or anything. How often he requested the information depended on what was going on, if things were staying about the same, there really wasn't a need other then a summary report or two I'd bring to office visits. When things got worse last year, he had me send in or drop off the data regularly, along with my notes on how I slept & how I felt during the day, every week or so. After he reviewed it, we would talk via phone and often he made recommendations to try slightly different settings, especially pertaining to the backup rate on my BiPAP ST to see if it made any significant differences. My situation is a little different then most, with having Central Sleep Apnea with Complex Sleep Disordered Breathing tendencies, severe Alpha Wave Intrusion, CAP and a lot of other non-sleep related medical issues.

Snoozin' Bluezzz wrote:Bill got me curious.

In 14 months one RT has asked me once for compliance data only.

In 4 visits no doctor has asked.

David

I'm two months in, and no request from my Dr. However I did receive a questionnaire from Apria though. No data request, just a few basic questions.

However since I'm with Kaiser HMO, this may be par for the course.

Nobody ever asked.
A few weeks after I started therapy, (at a scheduled, follow-up appointment) I took in copies of my reports from Encore Pro and the doctor tried to claim that the reports couldn't be accurate since I was using almost half the pressure he'd prescribed. (He prescribed 18....I changed it to 10 on my own)

Later that year, I happened to accompany my wife to the same clinic for a doctor's appointment and dropped off another set of MyEncore (cumulative) reports. And, last year, when I asked for a copy of my sleep study, what did they send me?......copies of THOSE reports that I'd given his office staff.

They don't know.....they don't care.

Den (depriving his sleep doctor of some income)