New machine?
New machine?
My appointment with the sleep nurse has opened up the possibility of a new machine - the Respironics A40 was mentioned. However, it looks to me like a machine for someone who needs a ventilator. Not an ASV, as far as I can see? is this machine really the one I need?
It is not definite yet as I have an appointment with the sleep doctor at the end of the month.
I discovered I have not been titrated as this is not NHS policy.
The nurse also mentioned sending me to a tertiary centre to have a thorough investigation done, although I have already done an overnight study where I was filmed, wired up, etc. But if it helps get my treatment working I am willing to go along with it.
It is not definite yet as I have an appointment with the sleep doctor at the end of the month.
I discovered I have not been titrated as this is not NHS policy.
The nurse also mentioned sending me to a tertiary centre to have a thorough investigation done, although I have already done an overnight study where I was filmed, wired up, etc. But if it helps get my treatment working I am willing to go along with it.
Machine: Philips Respironics BiPAP C Series.
Mask: Respironics Comfort Gel Nasal Mask.
Pressure 12-18.
Mask: Respironics Comfort Gel Nasal Mask.
Pressure 12-18.
Re: New machine?
Do you need a new machine because the old one is technically not the correct machine, or is it just because it's time to replace?
If it's the latter and you are happy with your machine, I suggest asking for the updated version of the one you have.
If it's the latter and you are happy with your machine, I suggest asking for the updated version of the one you have.
- chunkyfrog
- Posts: 34377
- Joined: Mon Jul 12, 2010 5:10 pm
- Location: Nebraska--I am sworn to keep the secret of this paradise.
Re: New machine?
Please disregard the previous ignorant comment.
You need to follow the direction of the NHS nurse's advice.
You obviously need something this machine offers. And it may NOT be invasive!
The NHS is so slow, you need to move on this ASAP, to have proper care now and in the future.
". . . The BiPAP A40 comes with well-known and clinically proven Philips Respironics technology such as Auto-Trak, AVAPS and a Dry Box humidifier design. The device is capable of non invasive and invasive pressure ventilation, up to 40 cmH2O, providing treatment for your chronic insufficiency respiratory patients"
You need to follow the direction of the NHS nurse's advice.
You obviously need something this machine offers. And it may NOT be invasive!
The NHS is so slow, you need to move on this ASAP, to have proper care now and in the future.
". . . The BiPAP A40 comes with well-known and clinically proven Philips Respironics technology such as Auto-Trak, AVAPS and a Dry Box humidifier design. The device is capable of non invasive and invasive pressure ventilation, up to 40 cmH2O, providing treatment for your chronic insufficiency respiratory patients"
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Re: New machine?
40cmH20... ? Thanks good info to know, I thought they only went to 30 ... Learning something new here every day ...chunkyfrog wrote: ↑Sun May 13, 2018 12:05 pmPlease disregard the previous ignorant comment.
You need to follow the direction of the NHS nurse's advice.
You obviously need something this machine offers. And it may NOT be invasive!
The NHS is so slow, you need to move on this ASAP, to have proper care now and in the future.
". . . The BiPAP A40 comes with well-known and clinically proven Philips Respironics technology such as Auto-Trak, AVAPS and a Dry Box humidifier design. The device is capable of non invasive and invasive pressure ventilation, up to 40 cmH2O, providing treatment for your chronic insufficiency respiratory patients"
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Additional Comments: ResMed S9 VPAP ST |
- chunkyfrog
- Posts: 34377
- Joined: Mon Jul 12, 2010 5:10 pm
- Location: Nebraska--I am sworn to keep the secret of this paradise.
Re: New machine?
Me, too!
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Additional Comments: Airsense 10 Autoset for Her |
Re: New machine?
40cmH2O?
While I always thought that CPAP up to 20cmH2O was very safe, I really have to wonder if there are risks in such a high range not generally known in the lower range.
While I always thought that CPAP up to 20cmH2O was very safe, I really have to wonder if there are risks in such a high range not generally known in the lower range.
Re: New machine?
D.H., Is there anything you don't wonder about, in the world.... I doubt it, that would require reading. Jim
Use data to optimize your xPAP treatment!
"The art of medicine consists in amusing the patient while nature cures the disease." Voltaire
"The art of medicine consists in amusing the patient while nature cures the disease." Voltaire
Re: New machine?
An ASV has been mentioned before as a possible solution as the current machine does not appear to be working that well for me. I wondered whether the A40 really is the best option.
This is an ASV and looks very similar to my existing machine:
https://www.philips.co.uk/healthcare/pr ... v-advanced
The Dreamstation was the machine previously mentioned:
https://www.1800cpap.com/dreamstation-b ... onics.aspx
The A40:
http://www.compassmedical.com.my/produc ... 0-machine/
The nurse admitted at the outset she "Didn't know what to do with me". so I have little confidence that the people treating me know what they are doing.
What an I supposed to do about tweaking settings if they don't titrate and I am not supposed to touch them myself? As they don't want to tweak them any more.
Respironics also failed to request a download so I am going to chase them up right away before I see the doctor at the end of the month.
This is an ASV and looks very similar to my existing machine:
https://www.philips.co.uk/healthcare/pr ... v-advanced
The Dreamstation was the machine previously mentioned:
https://www.1800cpap.com/dreamstation-b ... onics.aspx
The A40:
http://www.compassmedical.com.my/produc ... 0-machine/
The nurse admitted at the outset she "Didn't know what to do with me". so I have little confidence that the people treating me know what they are doing.
What an I supposed to do about tweaking settings if they don't titrate and I am not supposed to touch them myself? As they don't want to tweak them any more.
Respironics also failed to request a download so I am going to chase them up right away before I see the doctor at the end of the month.
Machine: Philips Respironics BiPAP C Series.
Mask: Respironics Comfort Gel Nasal Mask.
Pressure 12-18.
Mask: Respironics Comfort Gel Nasal Mask.
Pressure 12-18.
- chunkyfrog
- Posts: 34377
- Joined: Mon Jul 12, 2010 5:10 pm
- Location: Nebraska--I am sworn to keep the secret of this paradise.
Re: New machine?
A download of what?
If you mean the software, then you are asking the wrong people.
Others here have the site where you need to request that,
--since the manufacturer (in their "infinite" wisdom)
choose not to put anything useful in the hands of PATIENTS.
With the software, YOU can load YOUR data onto YOUR computer,
and evaluate YOUR treatment, and do the job your providers refuse to even TRY.
_________________
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Additional Comments: Airsense 10 Autoset for Her |
- chunkyfrog
- Posts: 34377
- Joined: Mon Jul 12, 2010 5:10 pm
- Location: Nebraska--I am sworn to keep the secret of this paradise.
Re: New machine?
Would it be too much to ask that you STOP inserting yourself into threads
where you obviously KNOW NOTHING WHATSOEVER?
_________________
Mask: AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear |
Additional Comments: Airsense 10 Autoset for Her |
Re: New machine?
I meant supply a download of my data to the clinic, that the nurse had requested.chunkyfrog wrote: ↑Mon May 14, 2018 4:23 amA download of what?
If you mean the software, then you are asking the wrong people.
Others here have the site where you need to request that,
--since the manufacturer (in their "infinite" wisdom)
choose not to put anything useful in the hands of PATIENTS.
With the software, YOU can load YOUR data onto YOUR computer,
and evaluate YOUR treatment, and do the job your providers refuse to even TRY.
It is a massive struggle to get Encore Pro working on my computer. If I was not so darned tired I reckon I would have got it working by now. Pugsy has kindly been downloading data for me in the meantime.
Any thoughts as to the machines I linked above, anyone? Is the A40 actually ASV?
Machine: Philips Respironics BiPAP C Series.
Mask: Respironics Comfort Gel Nasal Mask.
Pressure 12-18.
Mask: Respironics Comfort Gel Nasal Mask.
Pressure 12-18.
Re: New machine?
Here is the user guide for the A40, it is a great machine but no it does not offer ASV mode .. it does offer AVAPS ..
https://www.google.com/url?sa=t&source= ... g2HmahpS3n
https://www.google.com/url?sa=t&source= ... g2HmahpS3n
_________________
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear |
Additional Comments: ResMed S9 VPAP ST |
Last edited by BTS on Mon May 14, 2018 8:53 am, edited 1 time in total.
Re: New machine?
https://www.philips.com.tr/healthcare/p ... ventilator
https://www.usa.philips.com/healthcare/ ... pap-autosv
There is a reason that there are 2 different model machines....because they aren't the same thing and don't do the same jobs.
Similar yes...but not the same.
https://www.usa.philips.com/healthcare/ ... pap-autosv
There is a reason that there are 2 different model machines....because they aren't the same thing and don't do the same jobs.
Similar yes...but not the same.
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If you want to try the Eclipse mask and want a special promo code to get a little off the price...send me a private message.
Re: New machine?
I just love the looks of the DSASV that black front cover...
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Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear |
Additional Comments: ResMed S9 VPAP ST |
- chunkyfrog
- Posts: 34377
- Joined: Mon Jul 12, 2010 5:10 pm
- Location: Nebraska--I am sworn to keep the secret of this paradise.
Re: New machine?
Re: supplying data to clinic---
Remove the sd card from your machine, and take it to the clinic.
If NHS supplied a machine without an sd card,
somebody forgot something.
Time to get on somebody's case.
Remove the sd card from your machine, and take it to the clinic.
If NHS supplied a machine without an sd card,
somebody forgot something.
Time to get on somebody's case.
_________________
Mask: AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear |
Additional Comments: Airsense 10 Autoset for Her |