Newly Diagnosed?

MaxINTJ · Post by **MaxINTJ** » Tue Sep 12, 2017 10:30 am

I noticed the Especially for the newly diagnosed thread in Announcements and was just curious...

Where is the thread for the newly NOT diagnosed?

MaxINTJ · Post by **MaxINTJ** » Tue Sep 12, 2017 10:51 am

xxyzx wrote:
MaxINTJ wrote:I noticed the Especially for the newly diagnosed thread in Announcements and was just curious...

Where is the thread for the newly NOT diagnosed?

======

thats on another website with a different forum

Can't be bothered to include a link?

ChicagoGranny · Post by **ChicagoGranny** » Tue Sep 12, 2017 10:57 am

MaxINTJ wrote:Where is the thread for the newly NOT diagnosed?

It's here --> http://www.nfdma.com/

Bertha deBlues · Post by **Bertha deBlues** » Tue Sep 12, 2017 11:05 am

ChicagoGranny wrote:
MaxINTJ wrote:Where is the thread for the newly NOT diagnosed?
It's here --> http://www.nfdma.com/

ha ha.
MaxINTJ, maybe you should start a new thread with a title like "why is getting a diagnosis so hard?" or something along those lines.

MaxINTJ · Post by **MaxINTJ** » Tue Sep 12, 2017 11:08 am

ChicagoGranny wrote:
MaxINTJ wrote:Where is the thread for the newly NOT diagnosed?
It's here --> http://www.nfdma.com/

Now that's mean....

chunkyfrog · Post by **chunkyfrog** » Tue Sep 12, 2017 11:08 am

Oh, granny, that was so cold.

MaxINTJ · Post by **MaxINTJ** » Tue Sep 12, 2017 11:14 am

Bertha deBlues wrote:
ChicagoGranny wrote:
MaxINTJ wrote:Where is the thread for the newly NOT diagnosed?
It's here --> http://www.nfdma.com/
ha ha.
MaxINTJ, maybe you should start a new thread with a title like "why is getting a diagnosis so hard?" or something along those lines.

Ummm.... because that would actually make sense to everyone?

Honestly, I am nearing the point of giving up hope for any kind of diagnosis. My symptoms, sleep study results, and CPAP data can only say I'm getting really crappy sleep. Out of the several people who have looked at my info (including multiple sleep techs), the only answers I have been able to get are:

a) what it's not, or
b) don't know

ChicagoGranny · Post by **ChicagoGranny** » Tue Sep 12, 2017 11:20 am

MaxINTJ wrote: My symptoms, sleep study results, and CPAP data can only say I'm getting really crappy sleep. Out of the several people who have looked at my info (including multiple sleep techs), the only answers I have been able to get are:

a) what it's not, or
b) don't know

Maybe you should consider traveling to a really top-notch sleep lab/sleep doctor?

MaxINTJ · Post by **MaxINTJ** » Tue Sep 12, 2017 11:28 am

ChicagoGranny wrote:
MaxINTJ wrote: My symptoms, sleep study results, and CPAP data can only say I'm getting really crappy sleep. Out of the several people who have looked at my info (including multiple sleep techs), the only answers I have been able to get are:

a) what it's not, or
b) don't know
Maybe you should consider traveling to a really top-notch sleep lab/sleep doctor?

I would if I could.

I have no PTO available until next year (mostly because of one short vacation and all these doctor appointments), and then it would be very expensive. It would be next year some time at the earliest. I would love to be seen by Dr. Krakow but that is a really long way from central MO.

If there is such a person within the VA system, maybe at least cost wouldn't be such an issue...

MaxINTJ · Post by **MaxINTJ** » Tue Sep 12, 2017 1:48 pm

xxyzx wrote:his thread should be for people in denial who are special and wont accept they need a cpap and sleep on their back

Since you have obviously not been paying attention (again or still), I have been compliant since my neck swelling has gone down, and nothing has changed other than I can keep my mask on all night. Sleep is still absolutely crappy.

I have no accurate diagnosis, so there is no solution at this point in time. It is unknown whether or not a CPAP, BiPAP or ASV will actually help, so how YOU can decide I need one is beyond me...

MaxINTJ · Post by **MaxINTJ** » Tue Sep 12, 2017 1:52 pm

xxyzx wrote: you dont want a diagnosis
you want to bellyache and whine
you need a good shrink to fix your real problem

I didn't know mind reading was also a talent of yours....

xxyzx wrote:or do you prefer to think you are special and have the only disease nobody has ever had ever before because you are so special so they cant fix it

i guarantee that you are not as special as you think you are and the answer is out there if you really want it

if I had unlimited funds and time, sure, I could travel anywhere and see the best doctors - but I live in the real world.

ChicagoGranny · Post by **ChicagoGranny** » Tue Sep 12, 2017 1:54 pm

MaxINTJ wrote:how YOU can decide I need one is beyond me...

He can decide everything for everyone.

Pugsy · Post by **Pugsy** » Tue Sep 12, 2017 1:59 pm

ChicagoGranny wrote: He can decide everything for everyone.

Yep..
He must have a better crystal ball than the rest of us since he knows so much...cough cough spit spit.

MaxINTJ · Post by **MaxINTJ** » Tue Sep 12, 2017 2:05 pm

xxyzx wrote:your wussie insults insult me by not being good enough showing you dont care enough to try to make a really bad insult take a lesson from palerider and lsat - they care enough to insult their very best

I am not all surprised that subtly would be lost on you.

I'm thinking anything less than a 2x4 won't get through, and that's not my style.

MaxINTJ · Post by **MaxINTJ** » Tue Sep 12, 2017 2:09 pm

xxyzx wrote:you have an accurate diagnosis
crappy sleep

OK, you are really being dense now.

Crappy sleep is a SYMPTOM - not a diagnosis.

Sheesh...

di·ag·no·sis
ˌdīəɡˈnōsəs
noun
1.
the identification of the nature of an illness or other problem by examination of the symptoms.

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