"New drug shows promise in patients with narcolepsy, sleep a

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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TASmart
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Re: "New drug shows promise in patients with narcolepsy, sleep a

Post by TASmart » Mon Jun 19, 2017 9:54 am

I saw this too. My thought was that treating a lack of sleep with a chemical to mask the symptoms of lack of sleep is a bad idea. Better to treat the lack of sleep rather than the symptoms. But that feed into the western philosophy of do more, sleep less be a big success!
All posts reflect my own opinion based on my experience and reading.
Your mileage may vary
Past performance is no guarantee of future results
Consult with your own physician as people very

Guest

Re: "New drug shows promise in patients with narcolepsy, sleep a

Post by Guest » Mon Jun 19, 2017 11:34 am

who needs sleep if you can have cocaine or meth?

Guest

Re: "New drug shows promise in patients with narcolepsy, sleep a

Post by Guest » Mon Jun 19, 2017 1:38 pm

if you don't fall asleep you can't have apneas. If you can't have apneas your O2 doesn't drop. If your O2 does not drop your heartrate doesn't spike.

O2 is important - as is the heart rate.

please read up on that if you don't know and stop bullying me. I can't believe that you are stalking and harassing me only because I don't like your shitty drug if there are already the perfect drugs out there.

what are you? a professional online-harasser?

Guest

Re: "New drug shows promise in patients with narcolepsy, sleep a

Post by Guest » Mon Jun 19, 2017 5:25 pm

xxyzx wrote: dont post about me and i wont reply to you
you are the one harrassing me!

I just stated the facts, backed up by several double blind studies, that cocaine and meth helps you very well to stay awake.

I'm really sorry that your shitty drug is doing a poor job on that. do promote that shit on your facebookpage but keep us alone with your drug. Or show some facts to that. your drug is only to make some quick money out of the poor people suffering from an illness.
cocaine and meth are far less expensive and do a much better job.

It is really important that your oxygen-levels do no drop below the point you are able to comprehend facts. You clearly are no longer able to do that and have harass me just to promote your shitty drug.

Stop quoting me in a really poor attempt to get your shit sold. It is really a shame how you try to squeeze a dim out of the poor bastards who suffered from severe oxygen drops and can no longer think clearly and might believe you.

aspen
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Re: "New drug shows promise in patients with narcolepsy, sleep a

Post by aspen » Mon Jun 19, 2017 5:27 pm

I have a pretty complicated sleep disorder and a narcolepsy type thing related to another condition is part of my problem.

I would look into this med. I can't take modafinil but it completely organized my sleep. Sleep problems can most definitely be due to daytime wakefulness problems. And it's a vicious circle, for sure.

To who ever said if you don't sleep, you can't have apnea -- untrue. My issue exactly. If I can SLEEP through the apnea episodes, my AHI is high. However my system has overcompensated and I don't. My AHI is low but I wake for almost every episode of apnea. (THanks to this board I've been able to figure this out in the last week).

A med like this would be very helpful for some.

Guest

Re: "New drug shows promise in patients with narcolepsy, sleep a

Post by Guest » Mon Jun 19, 2017 5:37 pm

most likely UARS - total different story.

I was talking about blood oxygen. clearly no problem for you.

amenite
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Joined: Sat Jan 31, 2015 7:02 pm

Re: "New drug shows promise in patients with narcolepsy, sleep a

Post by amenite » Mon Jun 19, 2017 6:25 pm

xxyzx wrote:
Guest wrote:who needs sleep if you can have cocaine or meth?
========

you are so brilliant and witty

that answer was really helpful

but when you dont know crap
you have to hide it with silly answers
Yet there's something to our Guest's comment. Perhaps this example will pass your silliness test. Not cocaine or meth exactly but read on anyhow:

https://en.wikipedia.org/wiki/Paul_Erd%C5%91s

D.H.
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Re: "New drug shows promise in patients with narcolepsy, sleep a

Post by D.H. » Mon Jun 19, 2017 9:21 pm

I'm sorry about the nasty tone of this forum, and this thread in particular.

It seems that this drug is similar to Modafinil. It seems that sleep lost to Modafinil somehow does not create a sleep debt. I used to take this, but I discontinued it because I didn't like the effect and after enough years on CPAP, the residual sleepiness finally subsided.

My concern about Modafinil is that it will record the asset (sleep completed) on the ledger, but that asset will not be in the warehouse!

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49er
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Re: "New drug shows promise in patients with narcolepsy, sleep a

Post by 49er » Tue Jun 20, 2017 3:08 am

I also sorry about the tone of this thread. Having narcoleptic like issues in addition to sleep apnea even before my current health problems that made it worse, I visited a lot of narcolepsy forums just to see if anything resonated which, unfortunately, it didn't. Many people with narcolepsy struggled to find the right med so if this new drug helps those folks, I am completely in favor of it.

As far as taking these drugs for sleep apnea, TASmart, I don't disagree with you that it is more important to find the cause of sleep issues vs. medicating it. But there is a small portion of people treated with sleep apnea who were never able to overcome their excess sleepiness. So if these drugs help their quality of life, then again, I am happy for them.

49er

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TASmart
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Re: "New drug shows promise in patients with narcolepsy, sleep a

Post by TASmart » Tue Jun 20, 2017 7:42 am

I want to clarify, my thoughts on this drug were through the lens of sleep apnea. For other conditions such as narcolepsy, I think these drugs are appropriate. For highly refractive SA - I think that short term use is OK, but for the long-term health of anyone with SA they need to be able to find sleep, not chemically reduce the need for sleep.
All posts reflect my own opinion based on my experience and reading.
Your mileage may vary
Past performance is no guarantee of future results
Consult with your own physician as people very