Policy Question

derek · Post by **derek** » Tue Feb 22, 2005 12:01 pm

People,
Should we, as members of this board, adopt a policy about revealing how to access the clinicians' set-up menus on various machines?

I would not advocate displaying the information publicly, but how about privately by email or PM? I can see potential problems with changing CPAP pressures, but the changing of APAP limits, especially with software verification of efficacy, seems to be less problematical.

What do you think? Upsides? Downsides?

If we can reach a consensus, I'll be happy to go along with it either way.

Derek

chrisp · Post by **chrisp** » Tue Feb 22, 2005 12:03 pm

This was asked by the forum admin a few weeks ago. It got pretty heated.

Do a search.

Cheers,

Chris

It was the first week of February.

wading thru the muck! · Post by **wading thru the muck!** » Tue Feb 22, 2005 12:07 pm

derek,

Johnny and crew posted a thread a little while back asking this same question. They were considering posting it on either this board or on the cpap.com site. If I remeber correctly the replies were mixed. I don't know if they ever came to a decision, but if so it may be part of one of the many upcoming site upgrades.

derek · Post by **derek** » Tue Feb 22, 2005 12:10 pm

Sorry - it must have been before I found the forum... I'll look it up.
derek

Post by **forumadmin** » Tue Feb 22, 2005 12:10 pm

Howdy,

The Jury is still out on this. The people who say we should post it are correct and so are the people who say we should not post it. I think it'll most likely find it's way in the CPAP User Encyclopedia once it's published.

wading thru the muck! · Post by **wading thru the muck!** » Tue Feb 22, 2005 12:12 pm

derek,

No need to appologize for asking the same question as Johnny. It's obvious great minds think alike.

derek · Post by **derek** » Tue Feb 22, 2005 12:30 pm

I've just read Johnny's thread. It really asks a different question - namely should the information be publicly displayed by cpap.com?

My question was - should we as "Members of the Board" adopt a policy that whenever somebody asks for instructions on the board we should or should not feel free to respond privately? I know it's a personal decision, but I'd be interested in the collective wisdom.

derek
Vive l'AutoPAP

Liam1965 · Post by **Liam1965** » Tue Feb 22, 2005 12:32 pm

Personally, I handle it by sending PMs to anyone who asks.

I'm in the middle on the discussion. I don't think people who haven't spent enough time working on understanding the ins and outs of their treatment need to be given the information to play and possibly screw themselves up.

On the other hand, I don't believe people who have legitimate things they wish to change should be prevented from doing so.

Liam, sitting on the fence, with a fence post up his, er, hose.

Liam1965 · Post by **Liam1965** » Tue Feb 22, 2005 12:34 pm

Oh, and if we're "Members of the Board", then perhaps Muckster should be "Chairman of the Board", with Johnny as CEO?

Just a thought.

Liam, who works in the mailroom.

wading thru the muck! · Post by **wading thru the muck!** » Tue Feb 22, 2005 12:58 pm

You guys are embarassing me.

In my book rested gal will always be chairman of this board.

Liam1965 · Post by **Liam1965** » Tue Feb 22, 2005 1:06 pm

wading thru the muck! wrote:In my book rested gal will always be chairman of this board.

Ah. I saw her more as Chief Technology Officer.

Liam, who hopes these assignments aren't making anyone board.

wading thru the muck! · Post by **wading thru the muck!** » Tue Feb 22, 2005 1:08 pm

derek,

Sorry to derail the original intent of your thread. I doubt we will come to a consensus as a board on this. My personal approach is to pass along this info if feel the it will be used for the correct purpose. It's probaly hard to know for sure, but if someone says my Doc says I need 18cm and I want to try to lower it to 12cm and see if that works, I would not pass the info along. If someone says I have an auto and my lower limit is set at 4cm and I feel like I'm suffocating, I'd pass along the info. This is why I think it will have to be a personal decision based on each situation. Either way, this information is out there if someone wants to find it.

Liam1965 · Post by **Liam1965** » Tue Feb 22, 2005 1:10 pm

wading thru the muck! wrote:Either way, this information is out there if someone wants to find it.

Exactly. I guess my point is, I just want to make it a little bit easier on those who are motivated enough to find it eventually anyway, just save them a little frustration, without letting some moron (not that there are any on this board, of course) go "Well lookee all them there buttons. I wonder what'd happen if I set my pressure to 53!"

Liam, who knows they don't generally go above 20, but thinks a pressure of 53 might be what turns a "moron" into an "airhead".

wading thru the muck! · Post by **wading thru the muck!** » Tue Feb 22, 2005 1:18 pm

My fear has been that there are some users out there that are not morrons or airheads, but are desparate to get some relief. Add to that, the fact that they may have been left hanging by their medical proffesionals and they may try something that will get them in trouble. I cringe thinking about the day that we read on cpapnews.com about someone they found in bed witha bloddy mask on and the machine running at 53cm. (I know, not possible, but some people have a way of finding a way)

Guest · Post by **Guest** » Tue Feb 22, 2005 1:25 pm

I would like to have access to some info from my bilevel. My DME has mine set at the simple screen. All I can see is the ramp time and the number of hrs used! I would like to see the info regarding any apnea episodes I have, that kind of stuff. I think it is unfair to me, the user (victum) to be blocked from access to info regarding me. I would truly like to know if I am still having AHI and what the number is.

So my vote is a resounding YES.

Gilda

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