TRACHEOTOMY

JohnnyBravo · Post by **JohnnyBravo** » Thu May 26, 2016 11:58 pm

Hi:

It's kind of hard to post this, since everyone here uses cpap. I don't. It hasn't worked for me. I've tried about everything, including MMA, which i had 3 months ago and it seems like i'm worse. I've had untreated severe sleep apnea for years now and i'm very sick and weak now. So, I'm looking for a tracheotomy now. I know it's hard to find and convince a doctor to get one for sleep apnea. Does anybody know one? Does anybody know anyone who got a tracheotomy for sleep apnea? All forums i've found are old and the emails don't exist anymore. I'm not in the US, but i can travel. Thanks for any help.

John.

Goofproof · Post by **Goofproof** » Fri May 27, 2016 12:22 am

After the Tracheotomy, what part are you going to mutilate, you are going to run out of parts. Jim

49er · Post by **49er** » Fri May 27, 2016 1:36 am

JohnnyBravo wrote:Hi:

It's kind of hard to post this, since everyone here uses cpap. I don't. It hasn't worked for me. I've tried about everything, including MMA, which i had 3 months ago and it seems like i'm worse. I've had untreated severe sleep apnea for years now and i'm very sick and weak now. So, I'm looking for a tracheotomy now. I know it's hard to find and convince a doctor to get one for sleep apnea. Does anybody know one? Does anybody know anyone who got a tracheotomy for sleep apnea? All forums i've found are old and the emails don't exist anymore. I'm not in the US, but i can travel. Thanks for any help.

John.

Hi JohnnyBravo,

I am so sorry about your situation.

What does your MMA surgeon say about your condition and have you asked him/her for a referral? That might be the best place to start.

Also, if I remember correctly, you had mentioned going to see Dr. Steven Park, right? Would he be able to do one or refer you to someone who does?

49er

49er · Post by **49er** » Fri May 27, 2016 2:48 am

I just found this site that may be helpful:

http://trachs.com/web-resources/

As an FYI, I checked the link to the yahoo support group and while it doesn't seem to be very active, there were postings this year in April and a few in May.

kteague · Post by **kteague** » Fri May 27, 2016 2:54 am

JohnnyBravo wrote:It's kind of hard to post this, since everyone here uses cpap. I don't. It hasn't worked for me. I've tried about everything, including MMA, which i had 3 months ago and it seems like i'm worse. I've had untreated severe sleep apnea for years now and i'm very sick and weak now. So, I'm looking for a tracheotomy now. I know it's hard to find and convince a doctor to get one for sleep apnea. Does anybody know one? Does anybody know anyone who got a tracheotomy for sleep apnea? All forums i've found are old and the emails don't exist anymore. I'm not in the US, but i can travel. Thanks for any help. John.

I don't know your history, so I'm just thinking out loud here. Was your effort with CPAP before or after the MMA procedure? Just wondering if MMA + CPAP might work for you. The airway should be a bit wider giving CPAP a better chance. If you've already done that, please disregard.

Matt00926 · Post by **Matt00926** » Fri May 27, 2016 6:47 am

Have you had a proper sleep study done in a lab? Have you undergone a titration for CPAP or Bi-level therapy? Please provide more information. I have never heard of a tracheotomy done for non-cardiopulmonary issues.

Michelle-OH · Post by **Michelle-OH** » Fri May 27, 2016 8:33 am

Wow, I wouldn't think it would be that hard to find a doc to agree to a tracheostomy if everything else truly has failed, because there aren't a lot of other options. I would be so scared of infections related to the trach site, but I guess if that's your only option. Have you contacted the larger, teaching hospitals? I'm just guessing that might be a way to start if your sleep doc hasn't put you in contact with anyone.

Cardsfan · Post by **Cardsfan** » Fri May 27, 2016 8:55 am

Have u looked into Inspire Implant Device
http://Www.inspiresleep.com

avi123 · Post by **avi123** » Fri May 27, 2016 11:42 am

Tracheostomy is wrongly spelled.
Johnny Bravo's post seems to be the wrong medical approach to treating his problem.

Julie · Post by **Julie** » Fri May 27, 2016 11:50 am

Johnny Bravo's been around for a long time, just didn't sign in this time.

Lucyhere · Post by **Lucyhere** » Fri May 27, 2016 11:57 am

avi123 wrote:Tracheostomy is wrongly spelled.
Johnny Bravo's post seems to be a troll.

Avi -- if a person misspelts a word or perhaps makes a tippo, it don't make em a trolle!

Julie · Post by **Julie** » Fri May 27, 2016 12:18 pm

"Tippo"? Typo, you ignoramus.

Thatgirl · Post by **Thatgirl** » Fri May 27, 2016 1:08 pm

Julie wrote:"Tippo"? Typo, you ignoramus.

Since every other word's spelling was horribly mangled in that post, I'm confident they were being humorous.

Lucyhere · Post by **Lucyhere** » Fri May 27, 2016 2:24 pm

Julie wrote:"Tippo"? Typo, you ignoramus.

Poor Julie... you're such a lame human being. Get a life. Stop belittling people. Such a sad woman! No wonder Pugsy has you on her ignore list.

Thanks, Thatgirl.

RogerSC · Post by **RogerSC** » Fri May 27, 2016 3:17 pm

Lucyhere wrote:
Julie wrote:"Tippo"? Typo, you ignoramus.
Poor Julie... you're such a lame human being. Get a life. Stop belittling people. Such a sad woman! No wonder Pugsy has you on her ignore list.

Thanks, Thatgirl. :)

Your signature line about being kind really doesn't fit with the above sentiment, does it? I agree with your signature line, let's be kind.

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