I'm At Crossroads: Do I need to go back on Seroquel?

Sure, this isn't 100 percent sleep apnea related, but when things are in dire straights for you, being politically correct.... Whatever. I am not a troll, I'm just a guy in need of desperate help and I encourage you to just not respond to me if you're gonna troll me and call me a troll.

No I still haven't got an answer back from the doctors. I was hoping to get a CPAP along with my personal settings, which I don't know. And I posted the test results on here and people on here were just as clueless for whatever reason and refused to give me medical recommendations.

I do wanna start trying to use the machine again that was given to me, even though the mask doesn't fit 100 percent perfectly. However, there is one problem. I don't sleep easily or well. And the mask doesn't make it any easier, in fact much harder because I have to focus hard on keeping my body and head still, I can't wiggle around or else it's going to come off. Even if I got USED to the mask, what you have to understand is that with our without the mask, I still have problems getting to sleep at a normal time. It's not just something I could work on, it's something that's too powerful for me.

So we have a couple different problems here.

I want to give you a brief history. When I was a teenager, I went on pretty heavy doses of Seroquel. The drug actually put weight on me, increased my appetite, and made me a bit sluggish early in the morning. However, it put me to sleep. At the time I wasn't having major sleep problems, but the pill put me to sleep and made me very very tired when I woke up. It would wear off after a couple of hours.

A number of years ago, I went on a Detox Program with Scientology. (Aren't with them anymore.) To help get me off of the drug. I felt it was necessary at the time, because I was always dependant on Seroquel. I would feel suicidal at times when I'd rarely forget to take it, or for some reason went without it for whatever the reason was. I was dependent on it. So I felt that in the long run, I needed to become independent from it.

So it took several of months to ween me off of the drug once we started the program. I was even down to a very small dose at 25 mg. It took me 6 months to go from 25 mg down to 0. Then it took another 6 to 8 months to get used to not having the drug anymore.

But the side effect was that I no longer could sleep. Back when I used to take Seroquel, it would make me extra drowsy, but I'd fall asleep instantly within 15 minutes. Even if I was on a small dose, I'd fall asleep. Why is it that my brain just needed that really small dose and what makes it a night and day difference to have 25 mg or 0 mg?

The point I'm trying to make is that even if I were to get my settings and the properly fitted mask, what's the point in using it if I know that I can't sleep very easily? We could argue all we want about how I just need to TRY different ways and therapies to sleep, but the thing is that you don't understand. You don't understand how nearly impossible it is for me to sleep. Tryptophan, melatonin, tea, etc... those things only work temporarily.... Then they stop working and I go back to square 1 rather quickly. So I have some confusing issues here. If I went back on the drug to get back to sleep, I would be heading right back to square one. And Seroquel can cause the other side effects like weight gain and extra tiredness in the morning too. It's not an easy decision.

This is something you need to discuss with your doctor.

read what you wrote, makes you feel like crap, makes you suicidal, you had to go to detox and it leaves you groggy. Where is the positive?

My wife has trouble sleeping as well, and she does very well on homeopathic remedies.

I wish you well. It sounds like there are significant issues that effect your sleep. Taking a drug only temporarily alleviates the symptom but not the underling causes. The drug then becomes an issue on top of the other issues.

Although there is great advice here on how to use and get used to using CPAP equipment, I don't think there is anyone here that has the ability or credentials to help you out with this type of medical advice, BUT we can help you walk that road.

I suggest that you seek both medical and psychological help in working through this tough road you are on. For me personally, I would try and do this without the need for drugs.

There is a lot to be said for strenuous exercise, good diet, education, positive mental attitude, religious beliefs, family and friends, peer support and just good old fashion hard core self reliance that can move you through this tough time in your life.

I cant speak for everyone here, but I personally will offer you my support via this forum to help keep you going, but you need to find the right kind of support to get through this issue, and I don't think that is here.

R1200ST, I would suggest that you do some reading on Enchanters previous threads, he has been given a machine and several masks by members here, also and most importantly he has been given TONS of advice that he choses to ignore.

Enchanter, we are not doctors, we cannot give you advice on drugs.

Fill the scrip one last time, get a large glass of water, line all the pills up in front of you . . .
Well, everybody is thinking it--somebody had to say it!
See, there is a third choice--not the right one, guaranteed!
Look at the other two, choose what you have NOT done,
And DO THAT!

I saw this post first thing this morning and the first thing that went through my head was "NOBODY POST TO THIS THREAD" because most of us have been down this rabbit hole enough to know that it leads to nowhere.

But of course, somebody just HAD to post. :::sigh:::

And here we go again.

M'ohms wrote:This is something you need to discuss with your doctor.

Congrats, the saga begins (Again), we got a few hours, without anyone stirring up the pot. Almost a record, even got the post 1/2 way down the page, then the fresh coffee took hold, and the saga begins afresh. Feed the adiction. Jim

R1200ST wrote:My wife has trouble sleeping as well, and she does very well on homeopathic remedies.

I wish you well. It sounds like there are significant issues that effect your sleep. Taking a drug only temporarily alleviates the symptom but not the underling causes. The drug then becomes an issue on top of the other issues.

Although there is great advice here on how to use and get used to using CPAP equipment, I don't think there is anyone here that has the ability or credentials to help you out with this type of medical advice, BUT we can help you walk that road.

I suggest that you seek both medical and psychological help in working through this tough road you are on. For me personally, I would try and do this without the need for drugs.

There is a lot to be said for strenuous exercise, good diet, education, positive mental attitude, religious beliefs, family and friends, peer support and just good old fashion hard core self reliance that can move you through this tough time in your life.

I cant speak for everyone here, but I personally will offer you my support via this forum to help keep you going, but you need to find the right kind of support to get through this issue, and I don't think that is here.

Thanks. There is a lot of negativity on here toward me. Please be open minded and understand that I am for real. Sure, I may need the right kind of support but you have to understand that even KNOWING where to go in an issue I have at hand as well.

Last night I tried the CPAP machine (the one given to me on here) and in the middle of the night the machine fell off the table. I have had trouble even using the CPAP and have a hard time sleeping with it. Usually the mask falls off too.

Madalot wrote:I saw this post first thing this morning and the first thing that went through my head was "NOBODY POST TO THIS THREAD" because most of us have been down this rabbit hole enough to know that it leads to nowhere.

But of course, somebody just HAD to post. :::sigh:::

And here we go again.

This isn't about you Madalot.

Madalot is doing what you SHOULD be doing--being sensible and reasonable.
Failing that, you might be ahead with that large glass of water.
Sensible is better. Just take the good advice you've been given.
And STOP jerking the nice people around!

Enchanter wrote:

Madalot wrote:I saw this post first thing this morning and the first thing that went through my head was "NOBODY POST TO THIS THREAD" because most of us have been down this rabbit hole enough to know that it leads to nowhere.

But of course, somebody just HAD to post. :::sigh:::

And here we go again.

This isn't about you Madalot.

You are correct, Enchanter. This is not about me. Sadly, it's not about you anymore either. Some of the kindest, most caring and smartest people on this forum have given of themselves to try to help you - to no avail. Many of those people have washed their hands of you completely, some leaving the forum for a while after the attempt.

For whatever reason, you are unable (or unwilling) to take the sound advice given to you and keep repeating the same questions over and over again, rarely addressing questions that are asked of you.

So, who is this about then?

It's about the newcomers that come in and try to help you. They don't have a clue what they're getting themselves into when they put themselves out there to help you. But we do.

So, it's about them. They can benefit from our experience in trying to help you and hopefully, not waste a terrible amount of time thinking they can be of any benefit to you.

Enchanter, you need a lot of help in a lot of areas (by your own admission). Sadly, that help is not on the internet. Your time on this forum is a testament to that.

Just a suggestion, E, but you should try checking yourself into an institution,
since it is obvious you are unable and unwilling to take care of yourself.
It might be the only way you can get help.

chunkyfrog wrote:Madalot is doing what you SHOULD be doing--being sensible and reasonable.
Failing that, you might be ahead with that large glass of water.
Sensible is better. Just take the good advice you've been given.
And STOP jerking the nice people around!

I'm just being me. I'm just being me. I'm just being me. What you see is what you get. I have problems, and I don't know how to explain them or treat them. It is what it is. I do what I do. I post what I post. I'm not okay.