Accident prone (please read please)

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
Punchyandtired
Posts: 125
Joined: Mon Jan 12, 2015 12:12 pm

Accident prone (please read please)

Post by Punchyandtired » Sat Feb 28, 2015 4:00 pm

To follow up my post about "why am I not feeling better".......

I started cpap dec 19.

Got the pressure straight on Feb. 2 (min 13)

Last Saturday i gave myself a 2 mm scratch on my cornea. I was brushing my hair while tilting my head to the left and I caught my eye with a stiff hair hair brush. Got to the doc on sunday (brother of friend-- he was at the office anyway) and had to go for two follow ups this past week to change out contact lens band aid and to check on progress of heal.

So then....

Thursday i was filling up the large corner unit tub to clean the jets and while it was filling, went to make a salad for lunch and totally forgot about the tub, which had both spigots going full blast.....

I flooded the master bath, bedroom, both closets and my son's room.

DH told my sleep doc and the word of the day is "CONCERNED"....

I would be really upset about all of this except I'm too tired, so Im just really really sad. I cant believe this is where I am.

Plus now i feel under complete pressure to snap out of it and get better because that is what everyone expects. Thanks to the movie "Still alice" my siblings want me tested for early alzeheimers. While this concerns me too.... I mean, maybe i just need a few more months to come out of the sleep apnea fog???!!!! I think ive had severe sleep apnea for 25 years.

What do you all think about this? I would prefer people who know what Im going through to comment. (And thank you in advance).

BTW, I had a brain MRI in December before the sleep apnea diagnosis, and that was 100% normal.


In terms of follow up appointments, I have:

one with my psych on tuesday to discuss the antidepressants (whether or not to get back on), the ambien that the sleep doc wants me off of, and to tell him about the severe sleep apnea and to get a new plan.

one with the sleep doc in about 2 weeks for follow up.

One with the cardiologist to check about the PVCs but this one isnt until May.
45 year old female
First AHI: 33.6 (including 2 desats less than 70%)
Pressure setting: min 13 max 20. 95% pressure has been around 15-16.
Trying to like the resmed p10 air pillows and headgear
Started therapy December 19, 2014

User avatar
Krelvin
Posts: 1977
Joined: Tue Jun 06, 2006 5:23 pm
Location: Metro Phx Area - Dry Heat!

Re: Accident prone (please read please)

Post by Krelvin » Sat Feb 28, 2015 4:10 pm

Not really clear what you are asking for.
Current Settings PS 4.0 over 10.6-18.0 (cmH2O) - Resmed S9 VPAP Auto w/h5i Humidifier - Quattro Air FFM
TNET Sleep Resource Pages - CPAP Machine Database
Put your equip in your Signature - SleepyHead v1.0.0-beta-1
Kevin... alias Krelvin

User avatar
Julie
Posts: 19898
Joined: Tue Feb 28, 2006 12:58 pm

Re: Accident prone (please read please)

Post by Julie » Sat Feb 28, 2015 4:11 pm

For heaven's sake! People without apnea or Alzheimer's, 40 yrs old and good at life screw up all the time! You're focusing on this stuff (two unfortunate events close together) because you're hyper aware now of OSA, and your sibs should be shot for their speculation. Be much easier on yourself, and tell them to take a hike. Even if you're on track for dementia - at some time in the distant future (like lots of us will be), looking at every little slip-up-of-life just waiting for doom is the worst thing you can do... self fulfilling prophecies and all that - anxiety will be finish you if you're not careful. Just do your Cpap thing one day at a time, believe you're going to be better, be careful of brushes, etc., and forgive yourself for the flood - we've all been there at one time or another. Really !

Punchyandtired
Posts: 125
Joined: Mon Jan 12, 2015 12:12 pm

Re: Accident prone (please read please)

Post by Punchyandtired » Sat Feb 28, 2015 4:15 pm

Krelvin wrote:Not really clear what you are asking for.
Does anyone have an opinion on any of this? Like does any of this scream to you that something is very very wrong with me? Or does it sound like par for the course for severe OSA?
Last edited by Punchyandtired on Sat Feb 28, 2015 4:24 pm, edited 1 time in total.
45 year old female
First AHI: 33.6 (including 2 desats less than 70%)
Pressure setting: min 13 max 20. 95% pressure has been around 15-16.
Trying to like the resmed p10 air pillows and headgear
Started therapy December 19, 2014

Punchyandtired
Posts: 125
Joined: Mon Jan 12, 2015 12:12 pm

Re: Accident prone (please read please)

Post by Punchyandtired » Sat Feb 28, 2015 4:20 pm

Julie wrote:For heaven's sake! People without apnea or Alzheimer's, 40 yrs old and good at life screw up all the time! You're focusing on this stuff (two unfortunate events close together) because you're hyper aware now of OSA, and your sibs should be shot for their speculation. Be much easier on yourself, and tell them to take a hike. Even if you're on track for dementia - at some time in the distant future (like lots of us will be), looking at every little slip-up-of-life just waiting for doom is the worst thing you can do... self fulfilling prophecies and all that - anxiety will be finish you if you're not careful. Just do your Cpap thing one day at a time, believe you're going to be better, be careful of brushes, etc., and forgive yourself for the flood - we've all been there at one time or another. Really !
Yeah, I'm very embarrassed by all of this. I don't think I have early dementia, but i guess if I did would I know? It seems to me with the severe OSA, any alzheimers doc would make me wait like 6 months anyway before testing me because how would anyone be able to tell between dementia or severe OSA? I don't know.

I also misplaced my glasses on Right before the flood and now that half the house is turned upside down, little chance of finding them any time soon.

So i guess there is my question:

How can I tell if im exhausted or demented?


Thanks,Julie. I'm reminding myself all the time to be patient with this process but it really does feel like my body is very confused at the moment.
45 year old female
First AHI: 33.6 (including 2 desats less than 70%)
Pressure setting: min 13 max 20. 95% pressure has been around 15-16.
Trying to like the resmed p10 air pillows and headgear
Started therapy December 19, 2014

User avatar
Julie
Posts: 19898
Joined: Tue Feb 28, 2006 12:58 pm

Re: Accident prone (please read please)

Post by Julie » Sat Feb 28, 2015 4:26 pm

Your 'symptoms' are not those of dementia, though of course anything can be interpreted any way, but unless you routinely forget your name, where you live, etc, I wouldn't worry a whole lot... but if you're really concerned (tho' I'd definitely wait til you have Cpap under control and are more relaxed) your MD can certainly check you out. You're 'goofing', not hard-core forgetting... not the same things!

User avatar
kteague
Posts: 7768
Joined: Tue May 16, 2006 8:30 pm
Location: West and Midwest

Re: Accident prone (please read please)

Post by kteague » Sat Feb 28, 2015 4:35 pm

If you just got your effective pressure dialed in on Feb 2 you haven't had much time for recovery. You'll need some time with your data showing good treatment and you getting adequate (and maybe even a bit more) sleep to see how your mind will work when recovered and rested. While you are going through this time of sorting through what exactly is going on, I can only say I would be hesitant about adding any meds that could muddy the picture. You may at some point need to do that, but if not an immediate need, I'd wait. Now, keep in mind I'm not a medical professional. Just someone who has experienced brain fog and was once very concerned about my deteriorating mental status. I became unable to safely drive or even cook for myself, and was a hazard to myself and others. It's amazing how much of a difference good sleep and fewer/less meds can make. And until you have good sleep fairly consistently, it will be hard to know what other diagnoses may be at play. Does your sleep feel restful or is it restless and broken? Are you on any meds that can cause your symptoms? Have you been tested for nutritional deficiencies? It may be that a repeat sleep test while using your CPAP at its proven therapeutic pressure could reveal if your sleep is indeed what it needs to be. If that test showed you are getting proper sleep, it may be time to consider looking outside sleep for a diagnosis. But if your sleep is of inadequate quantity or quality or you are on meds that change your mental status, an accurate diagnosis might be difficult to obtain. Good luck going forward.

_________________
Mask: TAP PAP Nasal Pillow CPAP Mask with Improved Stability Mouthpiece
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: Bleep/DreamPort for full nights, Tap Pap for shorter sessions

Punchyandtired
Posts: 125
Joined: Mon Jan 12, 2015 12:12 pm

Re: Accident prone (please read please)

Post by Punchyandtired » Sat Feb 28, 2015 4:42 pm

It's definitely been a slow process to get the CPAP tweaked. The second sleep study on Feb 2/3 (negative MSLT) is when I was titrated.

I'm sleeping better and my AHI under 1 now, but i still spend a lot of time during the night fidgeting with the full face mask.

Im working on improving my nutrition and trying to get in some good salads with lots of veggies and things like avocados-- omega 3s, etc.
45 year old female
First AHI: 33.6 (including 2 desats less than 70%)
Pressure setting: min 13 max 20. 95% pressure has been around 15-16.
Trying to like the resmed p10 air pillows and headgear
Started therapy December 19, 2014

User avatar
Sir NoddinOff
Posts: 4190
Joined: Mon May 14, 2012 5:30 pm
Location: California

Re: Accident prone (please read please)

Post by Sir NoddinOff » Sat Feb 28, 2015 4:57 pm

Usually when true dementia/Alzheimer's sets in all observers generally acknowledge its onset. BTW, I've been an observer several times. There are very specific signposts for the various onset phases, plus specific medical tests can be performed which will lead to a diagnosis. When I had severe OSA several years ago I was also worried about the same things that bother you, however over time it just turned out to be sleep deprivation due to sleep apnea. If you are overwhelmingly concerned then by all means go get tested. As a side note: from your sentences and spelling, I'd have to say you appear pretty coherent. That's often one of the first things to go. <okay kids, can all the wisecracks directed at me>

_________________
Mask: AirFit™ F10 Full Face Mask with Headgear
Additional Comments: Sleepyhead software v.0.9.8.1 Open GL and Encore Pro v2.2.
I like my ResMed AirFit F10 FFM - reasonably low leaks for my ASV therapy. I'm currently using a PR S1 AutoSV 960P Advanced. I also keep a ResMed S9 Adapt as backup. I use a heated Hibernite hose. Still rockin' with Win 7 by using GWX to stop Win 10.

Punchyandtired
Posts: 125
Joined: Mon Jan 12, 2015 12:12 pm

Re: Accident prone (please read please)

Post by Punchyandtired » Sat Feb 28, 2015 5:06 pm

Thanks, Sir. I'm not even sure who I would see to get tested since I live in a small town, and I'm certainly too tired to drive and hour or two right now to get tested anyway.

If this kind of stuff continues, i will get tested.
45 year old female
First AHI: 33.6 (including 2 desats less than 70%)
Pressure setting: min 13 max 20. 95% pressure has been around 15-16.
Trying to like the resmed p10 air pillows and headgear
Started therapy December 19, 2014

library lady
Posts: 1116
Joined: Wed Feb 05, 2014 11:10 am
Location: Rochester, MN

Re: Accident prone (please read please)

Post by library lady » Sat Feb 28, 2015 5:50 pm

I watched my mother descend into dementia; she made the same "errors" over and over again in the beginning. She didn't do either of the things you describe, but would forget she had taken her medicine and take it again an hour later, having forgotten she'd taken it even though her weekly meds box was empty for that night. She stuck her credit card in the freezer, and, repeatedly, dirty dishes went back into the cupboard as she'd forgotten she needed to wash them first... not long after I noticed the repetition of the behaviors, my siblings and I went to work on getting her diagnosis, finding a facility to place her in, etc.
If the error happens once, it's usually just a goof. Don't worry about it unless things start happening over and over again... or when you start forgetting what season of the year it is, especially if you live in a northern climate where winter doesn't look anything like summer.

_________________
Machine: PR System One REMStar 60 Series Auto CPAP Machine
Mask: AirFit™ F10 Full Face Mask with Headgear
Additional Comments:  Sleepyhead
Now using AirFit F10 mask; Quattro Air is backup mask. RemZzzz mask liners with both.

User avatar
postitnote
Posts: 922
Joined: Sat Feb 14, 2015 4:36 pm

Re: Accident prone (please read please)

Post by postitnote » Sat Feb 28, 2015 6:04 pm

Punchyandtired wrote:
Krelvin wrote:Not really clear what you are asking for.
Does anyone have an opinion on any of this? Like does any of this scream to you that something is very very wrong with me? Or does it sound like par for the course for severe OSA?
My first reaction is you are scared and stressed out. So long as you have no other pressing illnesses just deal with the SA for now. Focus on getting that part under control and then see how you feel. I took the outside of my toe (one toe) off a month ago and then a few days later cut the bottom of my foot from walking barefoot due to having a huge bandage on toe. When it rains it pours sometimes.
Last edited by postitnote on Sat Feb 28, 2015 7:02 pm, edited 1 time in total.
Morbius, are you bored?

User avatar
kteague
Posts: 7768
Joined: Tue May 16, 2006 8:30 pm
Location: West and Midwest

Re: Accident prone (please read please)

Post by kteague » Sat Feb 28, 2015 6:21 pm

Punchyandtired wrote: ...The second sleep study on Feb 2/3 (negative MSLT) is when I was titrated...
I don't understand the rationale of doing the MSLT when one has a diagnosed sleep disorder that's untreated. Guess if it's negative it rules out narcolepsy, but if positive I would be suspect of its accuracy. Did your reports make any mention of limb movements?

_________________
Mask: TAP PAP Nasal Pillow CPAP Mask with Improved Stability Mouthpiece
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: Bleep/DreamPort for full nights, Tap Pap for shorter sessions

User avatar
Sir NoddinOff
Posts: 4190
Joined: Mon May 14, 2012 5:30 pm
Location: California

Re: Accident prone (please read please)

Post by Sir NoddinOff » Sat Feb 28, 2015 6:23 pm

library lady wrote:I watched my mother descend into dementia; she made the same "errors" over and over again in the beginning. She didn't do either of the things you describe, but would forget she had taken her medicine and take it again an hour later, having forgotten she'd taken it even though her weekly meds box was empty for that night. She stuck her credit card in the freezer, and, repeatedly, dirty dishes went back into the cupboard as she'd forgotten she needed to wash them first... not long after I noticed the repetition of the behaviors, my siblings and I went to work on getting her diagnosis, finding a facility to place her in, etc.
If the error happens once, it's usually just a goof. Don't worry about it unless things start happening over and over again... or when you start forgetting what season of the year it is, especially if you live in a northern climate where winter doesn't look anything like summer.
Ditto to that. Library Lady aptly described my personal observations to a T. A goof or two is no big deal once in awhile... making the same mistakes or having the same memory lapses over and over, day after day, is a big deal.

_________________
Mask: AirFit™ F10 Full Face Mask with Headgear
Additional Comments: Sleepyhead software v.0.9.8.1 Open GL and Encore Pro v2.2.
I like my ResMed AirFit F10 FFM - reasonably low leaks for my ASV therapy. I'm currently using a PR S1 AutoSV 960P Advanced. I also keep a ResMed S9 Adapt as backup. I use a heated Hibernite hose. Still rockin' with Win 7 by using GWX to stop Win 10.

Punchyandtired
Posts: 125
Joined: Mon Jan 12, 2015 12:12 pm

Re: Accident prone (please read please)

Post by Punchyandtired » Sat Feb 28, 2015 6:40 pm

library lady wrote:I watched my mother descend into dementia; she made the same "errors" over and over again in the beginning. She didn't do either of the things you describe, but would forget she had taken her medicine and take it again an hour later, having forgotten she'd taken it even though her weekly meds box was empty for that night. She stuck her credit card in the freezer, and, repeatedly, dirty dishes went back into the cupboard as she'd forgotten she needed to wash them first... not long after I noticed the repetition of the behaviors, my siblings and I went to work on getting her diagnosis, finding a facility to place her in, etc.
If the error happens once, it's usually just a goof. Don't worry about it unless things start happening over and over again... or when you start forgetting what season of the year it is, especially if you live in a northern climate where winter doesn't look anything like summer.
I'm sorry your family went through this, but thanks for helping. I understand what you are saying are the differences. I read a few "I have early Alzheimer's" stories and I had to stop because they were too sad. Very very sad.
45 year old female
First AHI: 33.6 (including 2 desats less than 70%)
Pressure setting: min 13 max 20. 95% pressure has been around 15-16.
Trying to like the resmed p10 air pillows and headgear
Started therapy December 19, 2014