first week has been torture
first week has been torture
After much difficulty dealing with insurance companies and DME companies I finally got my first CPAP machine.
I was given a Resmed Airsense 10 Auto sense and a Resmed airfit large last Thursday.
I haven't slept more than a couple of hours since. I actually had to take off from work today because I could not trust myself to drive.
Apparently it works when attached but I invariably wake up after an hour or so and can't get back to sleep. The machine says the mask fit is good but I have been getting emails from the Myair system telling me it is leaking badly.
I am at my wits end on this thing and am really looking for reasons not to give it back.
I was given a Resmed Airsense 10 Auto sense and a Resmed airfit large last Thursday.
I haven't slept more than a couple of hours since. I actually had to take off from work today because I could not trust myself to drive.
Apparently it works when attached but I invariably wake up after an hour or so and can't get back to sleep. The machine says the mask fit is good but I have been getting emails from the Myair system telling me it is leaking badly.
I am at my wits end on this thing and am really looking for reasons not to give it back.
- Wulfman...
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- Joined: Mon Sep 01, 2014 6:41 pm
- Location: Nearest fishing spot
Re: first week has been torture
What are your settings?BigLou21 wrote:After much difficulty dealing with insurance companies and DME companies I finally got my first CPAP machine.
I was given a Resmed Airsense 10 Auto sense and a Resmed airfit large last Thursday.
I haven't slept more than a couple of hours since. I actually had to take off from work today because I could not trust myself to drive.
Apparently it works when attached but I invariably wake up after an hour or so and can't get back to sleep. The machine says the mask fit is good but I have been getting emails from the Myair system telling me it is leaking badly.
I am at my wits end on this thing and am really looking for reasons not to give it back.
Sounds like maybe it's set to a range of pressures and something is driving the pressures up. Could be linked to sleep stages which cycle around 90 - 120 minutes.
If you're not using software and downloading your data, you need to do so to see what's going on. The answers are in the details.
Den
.
(5) REMstar Autos w/C-Flex & (6) REMstar Pro 2 CPAPs w/C-Flex - Pressure Setting = 14 cm.
"Passover" Humidification - ResMed Ultra Mirage FF - Encore Pro w/Card Reader & MyEncore software - Chiroflow pillow
User since 05/14/05
"Passover" Humidification - ResMed Ultra Mirage FF - Encore Pro w/Card Reader & MyEncore software - Chiroflow pillow
User since 05/14/05
Re: first week has been torture
Setting range is 8-20.
I have often woken up at night for a minute or two. I have been purposely exhausting myself prior to going to sleep so I fall asleep OK. Once I rewake regardless of the reasons I can't get back to sleep. I go to bed relatively late 12-1 AM and get up early 5:30 so the window for me to lay there awake or get up and roam around the house is pretty small.
I have often woken up at night for a minute or two. I have been purposely exhausting myself prior to going to sleep so I fall asleep OK. Once I rewake regardless of the reasons I can't get back to sleep. I go to bed relatively late 12-1 AM and get up early 5:30 so the window for me to lay there awake or get up and roam around the house is pretty small.
- BlackSpinner
- Posts: 9745
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Re: first week has been torture
Instead of relying on emails instal Sleepyhead software and look at the details of your night.
Spend some quality time while awake wearing the system while watching TV to get your body/mind used to this strange thing on your face.
Spend some quality time while awake wearing the system while watching TV to get your body/mind used to this strange thing on your face.
_________________
Machine: PR System One REMStar 60 Series Auto CPAP Machine |
Mask: Hybrid Full Face CPAP Mask with Nasal Pillows and Headgear |
Additional Comments: Quatro mask for colds & flus S8 elite for back up |
71. The lame can ride on horseback, the one-handed drive cattle. The deaf, fight and be useful. To be blind is better than to be burnt on the pyre. No one gets good from a corpse. The Havamal
- Wulfman...
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Re: first week has been torture
So, I guess you're not using something like Sleepyhead software to SEE what's happening just before you wake up?BigLou21 wrote:Setting range is 8-20.
I have often woken up at night for a minute or two. I have been purposely exhausting myself prior to going to sleep so I fall asleep OK. Once I rewake regardless of the reasons I can't get back to sleep. I go to bed relatively late 12-1 AM and get up early 5:30 so the window for me to lay there awake or get up and roam around the house is pretty small.
If your pressures are escalating, it could be they're disturbing your sleep.
Did you have a titration? And, if so, what was your prescribed pressure?
Den
.
(5) REMstar Autos w/C-Flex & (6) REMstar Pro 2 CPAPs w/C-Flex - Pressure Setting = 14 cm.
"Passover" Humidification - ResMed Ultra Mirage FF - Encore Pro w/Card Reader & MyEncore software - Chiroflow pillow
User since 05/14/05
"Passover" Humidification - ResMed Ultra Mirage FF - Encore Pro w/Card Reader & MyEncore software - Chiroflow pillow
User since 05/14/05
Re: first week has been torture
Maybe you missed the part where I posted my pressure settings 8-20 and said this is my first week and I haven't slept more than a couple hours a night. I don't even know what sleepyhead software is. You also seem to have missed that waking up and going back to sleep is a normal part of my sleep cycle.
I did not have a titration. For insurance purposes I has to take a home sleep study.
I did not have a titration. For insurance purposes I has to take a home sleep study.
- Wulfman...
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- Joined: Mon Sep 01, 2014 6:41 pm
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Re: first week has been torture
I didn't miss that.BigLou21 wrote:Maybe you missed the part where I posted my pressure settings 8-20 and said this is my first week and I haven't slept more than a couple hours a night. I don't even know what sleepyhead software is. You also seem to have missed that waking up and going back to sleep is a normal part of my sleep cycle.
I did not have a titration. For insurance purposes I has to take a home sleep study.
I guess that you missed the part where I said that the pressure changes/increases may be what is disturbing your sleep.
Sleepyhead software has been and is being discussed all over the pages of this forum.
But, since you're apparently doing your "titration" with your machine, you'll have to figure out how to tough it out.
We all went through the initial problems in various ways.
Maybe they gave you the wrong size mask or just the wrong mask.
Den
.
(5) REMstar Autos w/C-Flex & (6) REMstar Pro 2 CPAPs w/C-Flex - Pressure Setting = 14 cm.
"Passover" Humidification - ResMed Ultra Mirage FF - Encore Pro w/Card Reader & MyEncore software - Chiroflow pillow
User since 05/14/05
"Passover" Humidification - ResMed Ultra Mirage FF - Encore Pro w/Card Reader & MyEncore software - Chiroflow pillow
User since 05/14/05
- BlackSpinner
- Posts: 9745
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Re: first week has been torture
Nope.BigLou21 wrote:Maybe you missed the part where I posted my pressure settings 8-20 and said this is my first week and I haven't slept more than a couple hours a night. I don't even know what sleepyhead software is. You also seem to have missed that waking up and going back to sleep is a normal part of my sleep cycle.
I did not have a titration. For insurance purposes I has to take a home sleep study.
Read the first thread at the top "pudgies tutorials...." to get the Sleepyhead software.
Using software you can see WHY you are waking up - many people have more events during REM sleep and the sudden increase in pressure wakes them up.
Wearing the equipment during the day teaches your body/mind to let go of the issues, that it is nothing to worry about.
_________________
Machine: PR System One REMStar 60 Series Auto CPAP Machine |
Mask: Hybrid Full Face CPAP Mask with Nasal Pillows and Headgear |
Additional Comments: Quatro mask for colds & flus S8 elite for back up |
71. The lame can ride on horseback, the one-handed drive cattle. The deaf, fight and be useful. To be blind is better than to be burnt on the pyre. No one gets good from a corpse. The Havamal
Re: first week has been torture
Yes, posting your equipment (CPAP mfgr. and model and mask) is very helpfully facilitated by going to your User Control Panel (link at the top left of the forum screen), then going to the Profile tab and then to "Equipment" and using the drop down lists to select your equipment. You may be using nasal pillows or a nasal mask and opening your mouth at night. Or a liner for a full face mask can be really helpful, too. There's going to be a better mask and/or mask size out there for you. I know from experience that the static "mask fit" indication that you can get at the beginning of the night can be much different than the dynamic performance of a mask as you move around on your bed while you're sleeping.
Anyways, in order to have a more helpful dialogue here, what would be useful is for you to display your equipment profile on your posts (as mentioned above, "User Control Panel" link), and also to get up on the curve of being able to share your sleep data so that others can see what your machine is seeing. As was mentioned, you'll need to install some software (Sleepyhead works for a wide variety of cpap's, but there is other software that may be required by your machine) in order to be able to share your data, and you'll need an SD card reader on one of your computers as well.
Thanks.
Anyways, in order to have a more helpful dialogue here, what would be useful is for you to display your equipment profile on your posts (as mentioned above, "User Control Panel" link), and also to get up on the curve of being able to share your sleep data so that others can see what your machine is seeing. As was mentioned, you'll need to install some software (Sleepyhead works for a wide variety of cpap's, but there is other software that may be required by your machine) in order to be able to share your data, and you'll need an SD card reader on one of your computers as well.
Thanks.
_________________
Machine: ResMed AirSense™ 10 AutoSet™ CPAP Machine with HumidAir™ Heated Humidifier |
Mask: ResMed AirFit N30 Nasal CPAP Mask with Headgear |
- grayghost4
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Re: first week has been torture
Lou : Welcome to Cpaptalk,
You should register on the site and then list your equipnent and mask in your profile.
This is another source of information about Sleepyhead software and at the bottom is information about a way to get into a chat room for special help if you need it to get started with the software :
https://sleep.tnet.com/resources/sleepyhead
You should register on the site and then list your equipnent and mask in your profile.
This is another source of information about Sleepyhead software and at the bottom is information about a way to get into a chat room for special help if you need it to get started with the software :
https://sleep.tnet.com/resources/sleepyhead
If you're not part of the solution you're just scumming up the bottom of the beaker!
Get the Clinicians manual here : http://apneaboard.com/adjust-cpap-press ... tup-manual
Get the Clinicians manual here : http://apneaboard.com/adjust-cpap-press ... tup-manual
Re: first week has been torture
I put the model and mask in the post. I understand that I may have broken some unwwritten cpap forum rules by not filling out a profile to your liking but if people aren't going to read the original post why answer?
I will say that after looking a little more in depth at this forum I am unlikely to find any help here. It reads like an AA meeting. Affirmations are helpful to some but do nothing for me. I'll figure out the problem I am having another way.
I will say that after looking a little more in depth at this forum I am unlikely to find any help here. It reads like an AA meeting. Affirmations are helpful to some but do nothing for me. I'll figure out the problem I am having another way.
Re: first week has been torture
God Bless you and Good Luck..Guest wrote:I put the model and mask in the post. I understand that I may have broken some unwwritten cpap forum rules by not filling out a profile to your liking but if people aren't going to read the original post why answer?
I will say that after looking a little more in depth at this forum I am unlikely to find any help here. It reads like an AA meeting. Affirmations are helpful to some but do nothing for me. I'll figure out the problem I am having another way.
_________________
Machine: DreamStation BiPAP® Auto Machine |
Mask: Zzz-Mask Full Face CPAP Mask with Headgear |
Humidifier: DreamStation Heated Humidifier |
Additional Comments: Settings are IPap 23 EPap 19 |
Re: first week has been torture
As far as the mask Resmed Airfit has F10 for full face N10 for nasal and P10 for pillows and I didn't see which mask you had. With leaks it would help to know which one it is. On CPAP.com find your mask and check the size. If it is the F10 here is the fitting guide.https://5faacd0c97cf0d23c6dc-064f3cd61b ... onents.pdf
Sometimes liners are a help with leaks and make the mask more comfortable. http://www.padacheek.com/
If you are really looking for the reasons not to give it back. I think there are many, they are just hard to see when you are sleep deprived. If you would let us help you I think things could be better. It takes work and learning to find out what is needed. Looking at your detailed data with software is the best way to do that. Many are here that will help you get it downloaded where you can see what is happening at night and make adjustments.
Read this thread viewtopic/t88983/Pugsys-PointersSleepyH ... Hints.html and this site is good with lots of information and pictures. https://sleep.tnet.com/resources/sleepyhead Let us know if there is something specific you don't understand or need help with.
Sometimes liners are a help with leaks and make the mask more comfortable. http://www.padacheek.com/
If you are really looking for the reasons not to give it back. I think there are many, they are just hard to see when you are sleep deprived. If you would let us help you I think things could be better. It takes work and learning to find out what is needed. Looking at your detailed data with software is the best way to do that. Many are here that will help you get it downloaded where you can see what is happening at night and make adjustments.
Read this thread viewtopic/t88983/Pugsys-PointersSleepyH ... Hints.html and this site is good with lots of information and pictures. https://sleep.tnet.com/resources/sleepyhead Let us know if there is something specific you don't understand or need help with.
_________________
Machine: AirCurve™ 10 VAuto BiLevel Machine with HumidAir™ Heated Humidifier |
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear |
Additional Comments: Sleepyhead Software |
Last edited by OkyDoky on Thu Feb 26, 2015 4:07 pm, edited 2 times in total.
ResMed Aircurve 10 VAUTO EPAP 11 IPAP 15 / P10 pillows mask / Sleepyhead Software / Back up & travel machine Respironics 760
- SleepDisturbed
- Posts: 276
- Joined: Thu Apr 25, 2013 1:52 pm
- Location: East Texas
Re: first week has been torture
"I am at my wits end on this thing and am really looking for reasons not to give it back."
Reduced risk of Diabetes, heart attacks, stroke, weight gain, likelihood of dementia. Not annoying your SO with freight train snoring, better sex. Those are some reasons. Enough?
If so, please relax. This place is not AA. Many people have come here for help and have been. However, since none of us are there with you there are certain pieces of information folks here need to know to help you. Your specific equipment is one, and although you have told us about your machine, we don't really know what type of mask you are using -- could be one of three I think. By putting this info in your profile it shows up automagically every time you post -- saves a lot of time and effort.
And, using software to inspect your data is about the only way anyone here can help. Doing anything else is sort of shooting in the dark.
So if you do want help, and not just another reason to quit, please register, fill out your profile, het some software, and post some data. How to do all this is in the stickies at the top. I would hope that you do this, cause it sure sounds like you could use the help!
Reduced risk of Diabetes, heart attacks, stroke, weight gain, likelihood of dementia. Not annoying your SO with freight train snoring, better sex. Those are some reasons. Enough?
If so, please relax. This place is not AA. Many people have come here for help and have been. However, since none of us are there with you there are certain pieces of information folks here need to know to help you. Your specific equipment is one, and although you have told us about your machine, we don't really know what type of mask you are using -- could be one of three I think. By putting this info in your profile it shows up automagically every time you post -- saves a lot of time and effort.
And, using software to inspect your data is about the only way anyone here can help. Doing anything else is sort of shooting in the dark.
So if you do want help, and not just another reason to quit, please register, fill out your profile, het some software, and post some data. How to do all this is in the stickies at the top. I would hope that you do this, cause it sure sounds like you could use the help!
_________________
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear |
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
Additional Comments: 9.6 - 15 Pressure on APAP. EPR 2 / Sleepyhead software |
What I lack in verbosity, I make up in brevity.
- Wulfman...
- Posts: 6688
- Joined: Mon Sep 01, 2014 6:41 pm
- Location: Nearest fishing spot
Re: first week has been torture
The vast majority of forums won't even let you post without registering. Not this one.Guest wrote:I put the model and mask in the post. I understand that I may have broken some unwwritten cpap forum rules by not filling out a profile to your liking but if people aren't going to read the original post why answer?
I will say that after looking a little more in depth at this forum I am unlikely to find any help here. It reads like an AA meeting. Affirmations are helpful to some but do nothing for me. I'll figure out the problem I am having another way.
We were just trying to extract some more information from you about your situation. Yes, you did mention your mask in your original post, but the model wasn't capitalized...... "Resmed airfit large" and some might have missed that. I was concentrating mainly on why you were waking up. Besides the pressure settings, there are many other "settings" that can make it hard getting used to this therapy.......Ramp and humidity settings to name a couple.
If you WANT help, we'll TRY to help you. But, we're just a bunch of users who have a variety of personalities......similar to what you may find on other forums.....or other places where "people" congregate. Actually, some of the members here are also on some of the other forums.
Your call.
Den
.
(5) REMstar Autos w/C-Flex & (6) REMstar Pro 2 CPAPs w/C-Flex - Pressure Setting = 14 cm.
"Passover" Humidification - ResMed Ultra Mirage FF - Encore Pro w/Card Reader & MyEncore software - Chiroflow pillow
User since 05/14/05
"Passover" Humidification - ResMed Ultra Mirage FF - Encore Pro w/Card Reader & MyEncore software - Chiroflow pillow
User since 05/14/05