Here are my stats: Scroll to the bottom for the latest

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
Conex_Dart
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Here are my stats: Scroll to the bottom for the latest

Post by Conex_Dart » Mon Feb 23, 2015 3:04 pm

Hello all,

I had lately been waking up feeling suffocated. I can remember at least three times in the past six months. It usually occurs when I go to bed after a few drinks. I thought it had lot to do with acid reflux, as sleep apnea was something that I had no idea existed in this world. The feeling was like of drowning. I would wake up gasping for air. It feels like if I hadn't got up that very moment I probably would never have. I went to see my doctor and explained my experiences. He suggested I should get a sleep apnea test done, and sent me home with SNAP diagnostic machine. I recorded it for 3 nights back to back. The results are almost the same. Therefore, I will just post the stat of one of the three nights here:

Total number of Hypnosis (4%): 18 Total Number of Hypopneas: 103
Total number of Apneas (obs & cen): 231 Average Hypopnea (sec): 13
Average Apnea (sec): 16 Hypopnea Index: 36.8
Apnea Index (obs & cen) : 82.5 Central Apnea Index: 4.6
Total number of Central Apneas: 13 RDI (AHI) Max Dens Index (>10 Min): 166.15
Apnea Max Dens. Index (>10 Min) : 147.69 RDI (AHI): 119.3[/b]

Analyzed Sleep time 168 mins.

The diagnosis came crashing on me. My doctor was saying in his 37 years of practice ha has never seen AHI as high as mine - 166.15

I am a medium set, 41 years old male. I had lived an active life until 9 years ago when I got injured in service which left me with a partial paralysis of my right hand. That changed my world, all of a sudden I couldn't do most of the things I loved doing. It took physical, mental and emotional beating. Slowly, I started retiring more often to my couch. All I wanted to do was to sleep, and no matter how much od it I did, it never was enough. I wake up in the morning thinking and conjuring ways to get back to the bed at the earliest. I start my day thinking of getting back at bed. My work, friends, family, and house anything that takes me away from my sleeping has started becoming a huge weight over my shoulder, and I have to literally drag myself, to get anything done. Some days I wake up to go to work, wearily get ready, and just stand by the door holding onto the knob and would just retire back to bed. I would not dare making through that door for the fear of losing sleep. I feel I would do anything for a good sleep even if it costs me my job. Getting a good sleep seems like better trade off than losing a job. And, even if I managed to step out that door, the rest of the day seems like a brain fog. Other area that it has really affected me is on my memories. I have been having problems with simple things like remembering names, events, incidents, and words and above all, expressing myself. I literally have to struggle to find words, they don't come easy to me and that too scares me a lot. With that said I apologize if I am all over the topic and not making any sense with my posting here.

I don't know if my sedentary life style after my injury led to sleep apnea or it is the other way around. I don't know how I have managed to survive this long with such a high AHI.

To cut the story short, I will be picking up an Airsense 10 Auto CPAP tomorrow. The technician will set me up with the machine and I can't get today to be over with. I haven't been this excited about anything in a very long time. I just want to thank you all for sharing your personal experiences, insights and suggestions.

Few things are basically of my concern at this point:
1. Will I also benefit from the therapy as most of you in these forums have?
2. Will it also help me regain my memories?
3. Will it ever be cured or do I have to rely on the machine for the rest of my life?
4. Can any of you good people in here tell me more from reading my result?

This is the first time I have ever signed up in a forum, and I hope to live longer and be able to update with the progress as I start with my therapy tomorrow.

Respectfully,
-b

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palerider
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Re: Here are my stats and a new journey begins tomorrow

Post by palerider » Mon Feb 23, 2015 3:13 pm

Conex_Dart wrote: 1. Will I also benefit from the therapy as most of you in these forums have?
2. Will it also help me regain my memories?
3. Will it ever be cured or do I have to rely on the machine for the rest of my life?
4. Can any of you good people in here tell me more from reading my result?
  1. probably
  2. maybe
  3. think of a cpap for your airway the same as you think of glasses for your eyes
  4. I'll leave that one to others.

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postitnote
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Re: Here are my stats and a new journey begins tomorrow

Post by postitnote » Mon Feb 23, 2015 3:14 pm

Hi B!

To answer question 1, yes you will benefit from cpap! You should sleep better and wake up and start your day without being tired, The only time I nap anymore is if I am ill or my grandchildren have worn me into the ground (2 of them are 3 year olds).

Question 3, Maybe it's just me but if there was a cure for SA I'd still use a machine just set lower I suppose to each their own but once I lay down and my machine is on my body just drifts off to sleep within a few minutes. I wake in the morning recalling pleasant dreams and feeling wonderful. I don't think I'd have that without my cpap.

Good luck on your journey!
Morbius, are you bored?

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kteague
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Re: Here are my stats and a new journey begins tomorrow

Post by kteague » Mon Feb 23, 2015 3:17 pm

Hello and welcome. You have every reason to be optimistic about the changes this treatment will make in how you feel. Everyone's journey is unique but no matter what you face with the treatment, there should be others who can relate and offer tips for overcoming. If your change to a sedentary lifestyle after your injury brought on your sleep apnea, becoming active again as you feel better could resolve it. It's anybody's guess right now. It could be you were just younger and stronger and able to tolerate it more back in those days. For now, congrats on getting a diagnosis and getting started on your treatment with such a positive attitude. Let us know how things go and if we can be of any help.

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Bill44133
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Re: Here are my stats and a new journey begins tomorrow

Post by Bill44133 » Mon Feb 23, 2015 5:44 pm

Welcome to the forum.. I know exactly how you feel. My AHI was 140 and my Oxygen dropped to 50 something %..
Your symptoms read exactly like mine did...

You are lucky to have found this forum before you started your therapy it took me about 3 months into my therapy to find this site. Which helped me get my therapy optimized. The kind people here saved my life. Work all your therapy issues out here.

I will give you the advise my Neurologist told me: You are a very sick man.. Concentrate on getting your therapy correct and above everything else sleep using your machine. If you follow this you will get better.

I can tell you that I am 22 months into this journey and things day by day and month by month have gotten better memory and all. The damage was caused overtime and it will take some time to get bettter.

I wish you well..

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amenite
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Re: Here are my stats and a new journey begins tomorrow

Post by amenite » Mon Feb 23, 2015 5:58 pm

Conex_Dart wrote:Hello all,

I had lately been waking up feeling suffocated. I can remember at least three times in the past six months. It usually occurs when I go to bed after a few drinks. ...
I have wondered how much of the "hangover" experience for drinkers in general is actually the result of apneas occurring with greater frequency and/or duration when sleeping off a few too many drinks. Looks like you're a contender for the apnea olympics with numbers like that, but I will tell you 8 months ago mine were in that ballpark and I feel so much better now. One unexpected side effect of treatment for me was no longer having to get up in the night to pass water. I can tell you that since June 2014 I have not woken up one single time for that reason (YMMV).

Get a copy of your sleep study and your prescription right up front. It's your property and you may find it convenient and empowering to tell a misbehaving DME to kiss off if necessary Keep hanging around here to find out anything you need to know about this world of CPAP and dial yourself in to normal sleep

Conex_Dart
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Married to Airsense 10 Auto & the journey begins

Post by Conex_Dart » Tue Feb 24, 2015 6:09 pm

Thank you all for your responses. I just got back home with my Resmed Airsense 10.

I fell in love with it the minute I saw it, and I haven't even started using it yet. I guess, the feeing that we belong to each other for the rest of my life helped me bond with it spontaneously. For the mask, I tried an Airfit N10 mask and a Mirage fx. They both felt good but the Mirage felt like a better fit. And, the secondary reason Mirage being a fighter jet and the Mirage FX looks like the breathing tube sticking out of a fighter pilot's helmet, I think it's just cool. Now, that there is a hope that I can dream and if I dream of flying I would probably look cool on a Mirage fx mask than on an Airfit N10 on my dreams. I can not wait to be dreaming. I will try to update my experience with it tomorrow but for now, sorry got a hit the sack and it is only 7:00 pm. The therapist was saying that I hadn't slept in decades, and I can't wait to catch up on it. Goodnight!

p.s. Just realized how wonderful it felt to bid goodnight. Hope is a wonderful thing!!

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Bill44133
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Re: Here are my stats and a new journey begins tomorrow

Post by Bill44133 » Tue Feb 24, 2015 7:27 pm

Good Night and Good Luck... Sleeping and breathing at the same time is wonderful thing..


I wish you well...

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Conex_Dart
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Re: Here are my stats: Day 1&2 of the new journey

Post by Conex_Dart » Thu Feb 26, 2015 9:18 am

Day 1:

My first night went alright. I went to bed around 8 and cough woke me up around 10. I realized it is almost impossible to cough with the pressure flowing in, and so is yawning problematic. I again fell asleep around 11:30 and got up around 7 the next morning. I had taken a day off from work to assess the differences. I went out for driving to see if the world would actually look and feel different. It must be the euphoria but differences did I feel. I felt more relaxed, rested and attentive. I noticed the houses along the way on my daily driving route that I hadn't noticed for a year and half . I logged into the website to track my sleep and I scored 95/100. I had to frequently adjust the mask to find a more comfortable setting and that is where I think I lost 5 points. It also reported 3.6 apneas per hour, and now if anyone can translate what it means I'd be much obliged.

Day 2:

The second night, was a bit more uncomfortable than the first one. I remember waking up atleast 16 times to adjust my mask. Despite so many trials, it still managed to scrape the part of the nose where the mask rests. I scored better though, 99/100. I can not access the detailed or a break down summary through my work computer which I find it very odd, so I don't know the events per hour for my second night sleep.

So far, I feel better than before but then again I have a very long road to recovery and only time will tell how much beter can I get, and I am trusting my Airsense 10 to get me there.

Cheers,
-b

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Conex_Dart
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Re: Here are my stats: Day 3 of the new journey

Post by Conex_Dart » Fri Feb 27, 2015 7:59 am

Day 3:

I had a good sleep of 7.56 hrs on the third night.

3.0 events per hour
20/20 on the mask seal

I scored 100/100 on myair resmed score.

cheers,
-b

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Nick Danger
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Re: Here are my stats: A New Journey Begins

Post by Nick Danger » Fri Feb 27, 2015 10:22 am

You're doing great! Keep it up.

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sleepydc
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Re: Here are my stats: A New Journey Begins

Post by sleepydc » Fri Feb 27, 2015 11:35 am

Best of luck to you! You can do it, and this is a great forum to come to for help.

Do keep in mind that perhaps half of cpap users give up -- it's not an easy rode to adjust, but it is still very doable. It will take some tinkering and some time to get all the equipment down and get used to it, and on top of that your brain has a lot of adjustment to do just with sleeping better.

Also, don't forget: it's not so much about chasing "perfect" apnea numbers, as it is about sleeping well and getting more rest.

Good luck.

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RuthArt
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Re: Here are my stats: A New Journey Begins

Post by RuthArt » Fri Feb 27, 2015 3:13 pm

I'm so happy for you and hope that you have continued success...

it has been a bumpy road for me
but I'm sticking with it because I am finally feeling better and don't have those pesky 'gasping for breath'
events that make me feel like I'm dying. For quite some time I was afraid to go to bed because of
those horrible events. Haven't had anything like that since I started CPAP. Also, I'm finally starting
to remember my dreams (in the early morning hours). Not sure if my memories are any clearer or not
though.

Keep up the good work.

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Re: Here are my stats: A New Journey Begins

Post by yaconsult » Fri Feb 27, 2015 3:59 pm

I think acclimation may actually be somewhat easier for those of us with severe apnea because the difference between cpap and no cpap sleep is so huge. From here on, it's all fine tuning. As you get used to it, you can start downloading your data and be able to see in detail how your nights are going. There are lots of wonderful, helpful people here to give advice on any issues that crop up.

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chunkyfrog
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Re: Here are my stats: A New Journey Begins

Post by chunkyfrog » Fri Feb 27, 2015 4:00 pm

My drowning/running/suffocating nightmares came to an end the very first night.
I hope your feedback is as positive and immediate as mine has been.
The only way I'd love this machine more would be if it could purr!

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