Why people get frustrated with dr and dme

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
Greg Riddle
Posts: 409
Joined: Wed Aug 13, 2014 4:48 pm
Contact:

Why people get frustrated with dr and dme

Post by Greg Riddle » Mon Dec 22, 2014 8:33 pm

Am I being impatient or not. At the beginning of September I started having back and rib pain issues that kept me from sleeping on my side. Since then I have noticed symptoms of sleep apnea coming back.10 weeks ago i went to see the dr and scheduled another titration. 6 weeks ago finally went for the test. After waking in the morning I was told my pressure was to low at 13 cpap and I needed bi level set at 19 14. Finally had the follow up visit last Monday. They went over the info and said they would get the info to the dme right away. Called dme last Thursday and nothing called the dr they said there working on it. Called dme today they still said they didn't have all the info they needed. Called dr they said they'll get the rest of the info over to dme. Dme said it might take two weeks to get the new machine after they get all the info. Since I went to dr 10 weeks ago my symptoms have gotten worse. I'm exhausted to the extreme. I hate the thought of lying down to sleep. I've been getting the startling wake ups a lot the last week. I'm having trouble thinking and my legs are starting to hurt again. I'm starting to not be able remember things I was told 2 minutes before

Am I being impatient or is the dr and dme really dithering around that much

Amenite

Re: Why people get frustrated with dr and dme

Post by Amenite » Mon Dec 22, 2014 9:27 pm

My experience is that unless you are willing to know your stuff going in, and also willing to make yourself a major PITA for whoever is dragging this out, they will continually shuffle you to the bottom of their pile. My doctor took 5 weeks from the time my study was done to tell me that I was having 100+ events per hour and needed CPAP. I didn't know anything at that point and was shocked to hear I was that bad and had been left waiting that long for a followup and prescription. It took another 1.5 weeks for the DME they referred me to to get me a machine. Only after I let that DME know at week one that I would be going elsewhere did they snap to it and have it done in 48 hours.

If you have any leeway at all in shopping around, use it. You don't have to go elsewhere, just make sure they know you will go elsewhere if they can't get their act together. And call frequently. Sometimes they'll get it done just so you stop calling. Sad but true.

User avatar
Julie
Posts: 19907
Joined: Tue Feb 28, 2006 12:58 pm

Re: Why people get frustrated with dr and dme

Post by Julie » Mon Dec 22, 2014 9:37 pm

Greg, if you're having back 'issues' and your legs are hurting, you must see a doctor because you could have coincidentally new back problems unrelated to Cpap. Cpap can only solve so much, but a bad back and/or bed need to be addressed on their own.

User avatar
kteague
Posts: 7771
Joined: Tue May 16, 2006 8:30 pm
Location: West and Midwest

Re: Why people get frustrated with dr and dme

Post by kteague » Mon Dec 22, 2014 9:44 pm

You might ask them if they have a loaner used machine they can set up for you until your new machine arrives.

_________________
Mask: TAP PAP Nasal Pillow CPAP Mask with Improved Stability Mouthpiece
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: Bleep/DreamPort for full nights, Tap Pap for shorter sessions

Greg Riddle
Posts: 409
Joined: Wed Aug 13, 2014 4:48 pm
Contact:

Re: Why people get frustrated with dr and dme

Post by Greg Riddle » Mon Dec 22, 2014 9:47 pm

Fixed the need last week. My back and back issue may be dislocated rib or two but I'll get slapped for discussing that one lol. I've been to dr and been saying chiropractor. The pain is improving greatly but still hurts one of my ribs when I lay on my side. I figure off I can sleep on my back for a while it will get better. But I can't sleep on my back without the apnea getting worse. I figure out would have taken longer to notice the worse apnea of I hasn't Benn forced to sleep on my back for a while.
The leg pain is the same calf pain a felt before I started cpap. After about a month on cpap with some success it stopped for about a year

Greg Riddle
Posts: 409
Joined: Wed Aug 13, 2014 4:48 pm
Contact:

Re: Why people get frustrated with dr and dme

Post by Greg Riddle » Mon Dec 22, 2014 9:49 pm

kteague wrote:You might ask them if they have a loaner used machine they can set up for you until your new machine arrives.
I asked they said it was to expensive for then to have loner xpap machines

Greg Riddle
Posts: 409
Joined: Wed Aug 13, 2014 4:48 pm
Contact:

Re: Why people get frustrated with dr and dme

Post by Greg Riddle » Mon Dec 22, 2014 10:03 pm

I'm going to sleep in the recliner tonight to see off I can get some good sleep

User avatar
mike1953
Posts: 154
Joined: Sun Aug 31, 2014 7:15 pm
Location: Kansas

Re: Why people get frustrated with dr and dme

Post by mike1953 » Mon Dec 22, 2014 10:11 pm

Greg Riddle wrote:I'm going to sleep in the recliner tonight to see off I can get some good sleep
My question is why aren't you using your current machine?

_________________
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: Using a Buckwheat pillow its great

Greg Riddle
Posts: 409
Joined: Wed Aug 13, 2014 4:48 pm
Contact:

Re: Why people get frustrated with dr and dme

Post by Greg Riddle » Mon Dec 22, 2014 10:24 pm

I am but I can't turn the pressure up high enough to sleep on my back without having central problems and bad areophagia. I have it set at 15.5, higher than the rx of 13 but not enough. I've tried several times to get it higher but wale up several times a night with bad stomach cramps and needing to relieve a seriously bloated stomach. I'm going to try sleeping in chair with the cpap set at 15.5 see how I feel tomorrow

User avatar
archangle
Posts: 9294
Joined: Sun Mar 27, 2011 11:55 am

Re: Why people get frustrated with dr and dme

Post by archangle » Mon Dec 22, 2014 10:36 pm

What model new machine are you getting? Do you know what machines are fully data capable?

Check with your insurance to see if there are other in-network DME's in your area. If so, call the alternatives and ask if they can get you a machine right away.

_________________
Mask: Swift™ FX Nasal Pillow CPAP Mask with Headgear
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: Also SleepyHead, PRS1 Auto, Respironics Auto M series, Legacy Auto, and Legacy Plus
Please enter your equipment in your profile so we can help you.
Click here for information on the most common alternative to CPAP.
If it's midnight and a DME tells you it's dark outside, go and check for yourself.

Useful Links.

Greg Riddle
Posts: 409
Joined: Wed Aug 13, 2014 4:48 pm
Contact:

Re: Why people get frustrated with dr and dme

Post by Greg Riddle » Wed Dec 24, 2014 7:00 am

The machine should be a resmed s9 vpap auto.

Hose_Head
Posts: 804
Joined: Wed Mar 12, 2008 6:43 pm
Location: Ontario Canada

Re: Why people get frustrated with dr and dme

Post by Hose_Head » Wed Dec 24, 2014 9:55 am

Greg Riddle wrote:Am I being impatient or not. At the beginning of September I started having back and rib pain issues that kept me from sleeping on my side. Since then I have noticed symptoms of sleep apnea coming back.10 weeks ago i went to see the dr and scheduled another titration. 6 weeks ago finally went for the test. After waking in the morning I was told my pressure was to low at 13 cpap and I needed bi level set at 19 14. Finally had the follow up visit last Monday. They went over the info and said they would get the info to the dme right away. Called dme last Thursday and nothing called the dr they said there working on it. Called dme today they still said they didn't have all the info they needed. Called dr they said they'll get the rest of the info over to dme. Dme said it might take two weeks to get the new machine after they get all the info. Since I went to dr 10 weeks ago my symptoms have gotten worse. I'm exhausted to the extreme. I hate the thought of lying down to sleep. I've been getting the startling wake ups a lot the last week. I'm having trouble thinking and my legs are starting to hurt again. I'm starting to not be able remember things I was told 2 minutes before

Am I being impatient or is the dr and dme really dithering around that much
I've never understood why doctors and DMEs insist on communicating directly. Doctor's don't do this with your pharmacist!

It's far better when you see your sleep doctor and he/she provides a new prescription, to get a written copy of the new script before you leave the doctor's office. DO NOT WAIT for it to be sent over to the DME. With the script in hand, you can go directly to the DME of your choice to have it filled. Also make a copy of it so that you have it on hand - needed later to buy supplies such as a new mask, etc.

As a previous poster suggested, forewarned is forearmed. Know the equipment that you want and ensure that the doctor provides the necessary details on the script. What information was the DME waiting for, anyway?
I'm workin' on it.

Greg Riddle
Posts: 409
Joined: Wed Aug 13, 2014 4:48 pm
Contact:

Re: Why people get frustrated with dr and dme

Post by Greg Riddle » Wed Dec 24, 2014 9:59 am

They needed information that would prove to the insurance co that I needed a bilevel machine

tan
Posts: 565
Joined: Sat Aug 30, 2014 11:58 am

Re: Why people get frustrated with dr and dme

Post by tan » Wed Dec 24, 2014 12:19 pm

Greg Riddle wrote:They needed information that would prove to the insurance co that I needed a bilevel machine
weird, I would think 19/14 means just that.

Greg Riddle
Posts: 409
Joined: Wed Aug 13, 2014 4:48 pm
Contact:

Re: Why people get frustrated with dr and dme

Post by Greg Riddle » Wed Dec 24, 2014 12:59 pm

That's what I thought but idk. I think there trying to not by another machine since mine is just a little over a year old